Dementia Positive Pendle

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Dementia Positive Pendle This is our new page, our old page is no longer active. We care passionately about those in our Pendle communities who are living with Dementia.

We are working towards making Pendle 'Dementia friendly'.

12/10/2026

🧠 Have you noticed your loved one becoming more confused, agitated, forgetful, or withdrawn?

Sometimes, it's not just dementia progressing. Other factors may be contributing to the changes you're seeing.

Here are 10 things caregivers should watch for:

1. 🦠 Infections – UTIs, pneumonia, and other illnesses can trigger sudden confusion.
2. 💧 Dehydration & Poor Nutrition – Can affect energy, alertness, and overall health.
3. 😴 Poor Sleep – May worsen confusion, mood, and behavior.
4. 💜 Stress & Anxiety – Can increase fear, restlessness, and agitation.
5. 🚶 Lack of Physical Activity – Can affect mobility, balance, and well-being.
6. 👥 Social Isolation – May contribute to loneliness and withdrawal.
7. 🔊 Loud Noises & Chaos – Can cause sensory overload and distress.
8. ❤️ Unrecognized Pain – May appear as agitation, aggression, or resistance to care.
9. 💊 Certain Medications – Some medications can contribute to confusion or drowsiness.
10. 🧠 Excessive Stimulation – Too many activities or demands can become overwhelming.

💜 REMEMBER: Not every change in behavior means dementia is getting worse.

Sudden or significant changes in confusion, alertness, or behavior need prompt medical assessment. Some contributing conditions are treatable.

✨ Small adjustments can make everyday care more comfortable.

📚 NEED MORE GUIDANCE ON DEMENTIA CARE?

Our Dementia Care Starter Guide and Dementia Care Behavior Guide provide practical information to help families understand changes, recognize possible triggers, and respond with greater confidence.

👉 Explore our guides through the link in the bio.

💜 Follow Dementia Care Guides for practical caregiving tips, dementia education, and compassionate support throughout your caregiving journey.

Created by a Registered Nurse & Certified Dementia Care Provider.

09/10/2026

It is one of the most heartbreaking parts of being a primary caregiver.

You tell your loved one with dementia something important, and they don't believe you. They might even accuse you of lying. But five minutes later, a neighbor, a doctor, or a distant relative says the exact same thing... and your loved one accepts it without question.

If this has happened to you, please know: You are not alone, and you are not doing anything wrong. ❤️

It is incredibly painful, but it is the disease talking, not your loved one. Here is why this happens:

• The "Primary Caregiver" Trap: Because you handle the tough daily routines (meds, doctor visits, bathing), their brain unconsciously links you to frustration or a loss of independence.

• The Novelty Effect: A fresh face feels neutral and "safe" to a damaged brain. Without that daily emotional weight, it’s easier for them to process information from an outsider.

• Brain Miswiring: Dementia directly damages the brain's ability to recognize familiar faces and process trust.

When this happens, try to take a deep breath and step back. Don't waste your precious energy arguing or trying to prove you are right. If a visitor or another family member can get the point across easier, let them take the win!

Give yourself some grace today. You are doing beautiful, hard work. Remember, it’s the disease, not you. 🕊️

09/10/2026

Dementia is often described as progressing through three main stages: early, middle and late. 🧠

In the middle stages, the signs and symptoms become more obvious and may have a bigger impact on the person’s daily life.

People with dementia and their family often want to know how their condition will progress so they can make decisions and plan for the future. However, this is difficult to predict as dementia affects people in different ways depending on factors like the type of dementia, age, general health and lifestyle.

For more information about the stages of dementia, you can visit our website: https://www.dementiauk.org/information-and-support/about-dementia/stages-of-dementia/?misc=social&utm_campaign=advice&utm_source=facebook&utm_medium=social

Dementia Positive Pendle is celebrating a fantastic fundraising effort after receiving £500 from an incredible 12-hour e...
09/10/2026

Dementia Positive Pendle is celebrating a fantastic fundraising effort after receiving £500 from an incredible 12-hour endurance push kart challenge held at Seedhill Running Track in Nelson on 1st August.

Social Prescribing Link Worker James Smith, PCN Health and Wellbeing Coach Ady Lamb, and Dementia Positive Pendle’s very own Chairman, Mr Steve Wilson, took part in the gruelling challenge to raise vital funds for several local charities, including Dementia Positive Pendle (DPP).

The event brought the local community together in support of some very worthy causes, with a brilliant atmosphere throughout the day. It was fantastic to see so many people turn out to cheer on the participants, with some enthusiastic supporters even taking to the karts themselves to complete a few laps!

Spirits remained high throughout the challenge, and the event proved to be a wonderful example of the community coming together to make a real difference.

Through their efforts, the team raised an amazing £1,000 for the selected charities, with £500 going directly to Dementia Positive Pendle.

DPP would like to extend a heartfelt thank you to James and Ady for their continued support, enthusiasm and dedication to the charity. Year after year, they go above and beyond to find new and exciting ways to raise funds and help DPP continue its important work within the local community.

This generous donation will help fund additional support services across Pendle for people living with dementia, as well as those caring for someone with the condition. Every contribution helps DPP continue to provide support, raise awareness and make a positive difference to the lives of local families affected by dementia.

Although the charity has been unable to hold its much-loved annual summer event this year, there is exciting news on the horizon! Dementia Positive Pendle has recently secured a date and venue for its popular Christmas Party.

Watch this space for further details!

Dementia Positive Pendle would once again like to thank everyone who supported the challenge, cheered on the participants and helped make the event such a success. Your generosity and community spirit mean so much to a small local charity, and every penny raised will help support people affected by dementia throughout Pendle.

07/10/2026

Behavior Is Communication in Dementia

A person living with dementia may not always have the words to say:
“I am in pain.”
“I am scared.”
“I am confused.”
“I am hungry or thirsty.”
“I need help.”
Instead, their needs may appear as agitation, shouting, pacing, refusing care, repeated questions, withdrawal, or other changes in behavior.

Before calling it difficult behavior, pause and ask:
What is this behavior trying to tell me?
Could the person be in pain, tired, hungry, thirsty, uncomfortable, frightened, overwhelmed, or confused?

Behavior is not always simply something to stop or control.
Sometimes, it is a message waiting to be understood.
Look beyond the behavior.
Listen for the need.
See the person.

07/10/2026

The most difficult aspect of dementia care

It’s not the memory loss.
It’s not the repeated questions.
It’s not the changes in behavior.
The hardest part is loving someone through a reality that keeps shifting, while holding your own heart together in the process.

07/10/2026

We have places remaining on our upcoming one day Understanding Dementia Course in Barnoldswick. The course is a fantastic way to develop skills and confidence as well as meet other carers. Lunch will be provided for the in person course.

🗓️ Friday 16th October
⏰ 10:30am - 3pm
📍 Barnoldswick library, Fernlea Avenue, Barnoldswick, BB18 5DW

Booking is essential, if you'd like to book a place visit our Dementia Carer page on our website and complete our online booking form https://www.carerslinklancashire.co.uk/dementia-support

07/10/2026

Dementia is often described as progressing through three main stages: early, middle and late. 🧠

In the early stages, a person may begin to experience symptoms that affect their everyday life. They might notice these changes themselves, or they may be noticed by family, friends or colleagues.

It’s important to speak to a GP, who can rule out other conditions or begin the process of getting a diagnosis. This can help the right support to be put in place as early as possible.

Were any of these early signs familiar to you? Share your experience in the comments if you feel comfortable. 👇

22/09/2026

A filing cabinet with missing or misfiled folders

Good for explaining why information can’t be found even if it “should” be there.
Imagine the brain as a large, well-organized filing cabinet.

Each folder represents something important:
• memories
• names
• appointments
• skills
• life experiences
For most of life, the cabinet works smoothly. You open a drawer, find the right folder, and pull out exactly what you need.
With dementia, the problem isn’t that the cabinet disappears, it’s that the filing system starts to break down.

Some folders are:
• misfiled → information is there, but in the wrong place
• mislabeled → the memory comes up, but it’s confused or inaccurate
• hard to reach → it takes longer, or comes and goes
• missing entirely → the information can’t be found at all
What this looks like in real life

Someone might:
• Know a face but not find the “name” folder
• Remember something from 30 years ago but not yesterday
• Be completely confident in something that’s actually incorrect
From their perspective, they are still opening the cabinet and pulling out a folder; it just isn’t the right one, and they often don’t realize that.
Why reasoning doesn’t always work
If you tell them, “That’s not right,” it can feel confusing or even upsetting.

Because in their mind:
“I checked the file. This is what was there.”
They’re not ignoring logic; they’re working with faulty or incomplete files.
Why it leads to frustration or defensiveness
Imagine knowing you’ve used this filing system your entire life

and now:
• things aren’t where they should be
• others are telling you you’re wrong
• but you feel like you’re doing the same thing you’ve always done
That gap creates anxiety. And often, that comes out as:
• insisting they’re right
• rejecting help
• or feeling insulted when questioned
The most important takeaway

The filing cabinet analogy helps shift the perspective from:
“They’re being difficult or stubborn”
to
“They’re working with a system that isn’t organizing information correctly anymore”
A gentle way to use this in conversation
If you ever wanted to express this without sounding critical, it could sound like:
“I think sometimes it’s not about whether you know things—it’s that the ‘files’ might not always be where they used to be. That happens to a lot of people as the brain changes.”
This keeps dignity intact while opening the door to support.

25/06/2026

Protect loved ones by providing essential information with the Herbert Protocol, a risk reduction tool for swift response and peace of mind.

Address

Pendle Community Hospital
Nelson
BB99SZ

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+447842791940

Website

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