Vulval Pain Society

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Vulval Pain Society

UK charity supporting, educating, providing practical advice to people with vulval pain

12/10/2026

Take part in a study about experiences of living with vulvodynia

Clinical Psychology student Megan writes 'Hello! I’m recruiting participants for my doctoral thesis exploring experiences of living with vulvodynia, including how pain feels, how it is expressed visually and through words, and how others respond to vulval pain.

Vulval pain is often dismissed and remains an under-researched condition. My hope is to create a space where women can share their experiences, feel heard, and contribute to improving understandings of vulval pain, and also exploring creative ways of communicating pain.

If vulvodynia is part of your life and you’d like to take part, please get in touch by emailing [email protected] or filling out the form linked in my bio.'

Please share this post with anyone who might be interested 💖

09/10/2026

The Manchester Vulval Support Network is back!

If you're living with a vulval health condition, would like to meet with other women and listen to informative talks from experts, the MVSN's next meeting will be on Tuesday 10 November 2026, 1.30pm - 3.00pm, Women's Physiotherapy Gym, Ground Floor, St Mary's Hospital, Manchester

Refreshments and complimentary product samples will be available!

12/09/2026

Pain Awareness Month. Week 2: ADVOCATE.

📌 Make the most of limited consultation time. Get your questions answered. Get heard.

Free checklist on our website - scan qr code in image or use the link👆

Communication + collaboration + shared decision-making = better care

08/04/2026

Book now for the British Society for the Study of Vulval Disease Annual Scientific Meeting 2026 at the Novotel, Southampton

- 12th May 2026 – Educational Day
- 13th & 14th May 2026 – ASM with Educational Dinner

Registration is via the BSSVD website at www.bssvd.org/meetings

18/03/2026

🔊 VULVODYNIA MEDICATION RESEARCH: Manchester is now open for recruitment!📍

The ongoing clinical trial by MAC Clinical Research - investigating a potential new medication for provoked vulvodynia - has now expanded to a Manchester site.

You'll receive a free health check-up, up to £1730 for time and commitment, plus reasonable travel expenses.

Options to register your interest with MAC Clinical Research:

🌐 Website: https://bit.ly/3ZJNCZ9

📱 UK Freephone: 0800 917 7617

📽️ If you've not already watched our Q&A with MAC's clinical lead discussing this exciting research, you'll find the link in the first comment.

29/01/2026

Just one week to go! ⏳

💊 A NEW MEDICATION FOR VULVODYNIA❓

Join us 7pm Thurs 5th Feb for a Q&A with Dr John Connell, Chief Scientific Officer at MAC Clinical Research, discussing the clinical trial for this potential new treatment for provoked vulvodynia.

VPS trustees Sheren and Dr Winston will be putting questions to Dr John and please bring your questions on the day.

💬 You can also drop your question in the comments here or DM us but we hope you can make it live, over on our YouTube channel.

🗓️ Thurs 5th Feb
🕖 7pm GMT
▶️ Right here on Facebook (and also on on YouTube channel)

26/01/2026

❓ Have you faced barriers in diagnosing vulval pain or having it diagnosed?

🗣️ HAVE YOUR VOICE HEARD:

wants to hear from you, if you're:

1️⃣ over 18 and have lived with any vulval pain for over 3 months: vulvodynia, vestibulodynia, lichen sclerosus, lichen planus, or atrophic vaginitis OR

2️⃣ a healthcare professional providing care to people living with any vulval pain

📧 Contact Athina: [email protected]

🔗 The link to take part is in our bio and also here: bit.ly/AthinaResearch

23/01/2026

There is a real need for new medicines for the treatment of vulvodynia.

is looking for volunteers with vulvodynia to take part in a clinical trial investigating a potential new treatment. 💊

👉📲 Swipe to learn more about this research and if you may be eligible to take part.

Eligible participants will receive a free health check-up, up to £1730 for their time and commitment, plus reasonable travel expenses will be paid.

For more information, and to register your interest in this research:
🌐 visit researchforyou.co.uk OR
📞 call UK Freephone 0800 917 7617

16/01/2026

📌 DATE FOR YOUR DIARY: 7pm Thurs 5th Feb

💬💊 We're discussing trial of possible new treatment for provoked vulvodynia

❔❓ Drop your questions in the comments for the clinical lead of this trial who will be speaking with!

Link to Livestream coming soon.
Trial details - see link in bio. We know you'll have more questions so let us know! ❤️

Address

PO Box 7804
Nottingham
NG35ZQ

Website

https://vulvalpainsociety.org.uk/

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