PIP - UK Poland Syndrome Support

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PIP - UK Poland Syndrome Support UK charity for Poland Syndrome a rare birth difference. Find us on Instagram, TikTok, Twitter & Lin Well we're here to tell you that's not the case.

PIP-UK is dedicated to providing a network of support and education for Poland Syndrome. This is a rare syndrome, so rare that is frequently not diagnosed until late into a child's life. We have already met a lot of adults who didn't find out they had Poland Syndrome until they were well into adulthood. People with Poland Syndrome or friends and family members have often felt like they are the only person in the world or in their location who have this. Come see our website! We'll introduce you to lots of different people who tell their own stories, share their experiences and give some great tips for how to overcome some day to day obstacles. If you'd like to support PIP-UK you can make a donation by clicking on this link http://pip-uk.org/donate

Thanks for your support

We’re looking for new Trustees to help lead and continue to develop PIP UK.We’d love to hear from you if you have skills...
23/10/2026

We’re looking for new Trustees to help lead and continue to develop PIP UK.

We’d love to hear from you if you have skills, knowledge or experience in HR and / or Safeguarding

If you have previous Trustee experience this would be very welcome, but it’s not essential.

Most of all we want people who care about this community and want to support us to achieve our aims of increasing visibility and raising awareness of Poland Syndrome, and providing support to our community.

If you are interested in talking more, please contact us at [email protected] and include your CV

Please share this post with anyone you think may be interested

We’re gathering for our monthly Community Connect on Sunday and you’re so welcome to join us.This is a relaxed, friendly...
21/10/2026

We’re gathering for our monthly Community Connect on Sunday and you’re so welcome to join us.

This is a relaxed, friendly online space for people affected by Poland Syndrome to connect, share, listen, and simply be together. No pressure to talk. No agenda to perform. Just community.

If you’ve been meaning to connect but haven’t known where to start, this is for you 💛

📅 Sunday 25th October
💻 Online 7-8pm BST
💬 Open, gentle, supportive

Book your place here: https://tidycal.com/sampipuk/pip-uk-community-connect

🎫 A quick update on our 15th anniversary prize draw 🎫💚 Thank you to everyone who purchased tickets - the final total is ...
19/10/2026

🎫 A quick update on our 15th anniversary prize draw 🎫

💚 Thank you to everyone who purchased tickets - the final total is to be confirmed, but we have raised over £900, which is amazing 💚

👀 We can also confirm the draw has been made and everyone who won a prize will be contacted by email this week - so keep your eyes on your inbox!

LAST CHANCE - PRIZE DRAW CLOSES TONIGHT!We have now revealed all 15 prizes and for just £2, you could be in with a chanc...
13/10/2026

LAST CHANCE - PRIZE DRAW CLOSES TONIGHT!

We have now revealed all 15 prizes and for just £2, you could be in with a chance of winning one of our fantastic prize AND making a real difference to us as a charity

Every ticket helps support our charity and the vital work we do, helping us continue to make a positive impact in our community 💚

🎫 Just £2 per ticket!

If everyone who follows us purchases just ONE TICKET for £2 the difference it would make to us would be MASSIVE

Why not give it a go? You never know, it could be your lucky day! 🍀

👉 Buy your ticket today and help us make a difference!

https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw
Thank you for your amazing support. 🫶

🎫 15th Anniversary Prize Draw - Prize Fifteen 🎫The 15th prize in our anniversary prize draw is a signed Aston Villa FC s...
13/10/2026

🎫 15th Anniversary Prize Draw - Prize Fifteen 🎫

The 15th prize in our anniversary prize draw is a signed Aston Villa FC shirt

💚 Victor Lindelof kindly donated this prize 💚

The final prize in our anniversary draw is a signed Aston Villa FC shirt - an amazing prize for any Villa, or football, fan. The shirt features centre back Victor Lindelof's squad number 3 and is signed by the players.

To be in with your chance of winning this prize, buy your tickets here: https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

🎫 15th Anniversary Prize Draw - Prize Fourteen🎫The 13th prize in our anniversary prize draw is a a bottle of Disaronno a...
13/10/2026

🎫 15th Anniversary Prize Draw - Prize Fourteen🎫

The 13th prize in our anniversary prize draw is a a bottle of Disaronno and a Sipsmith gin set

💚 Hannah Williams kindly donated this prize 💚

Our penultimate prize is a 700ml bottle of Italian liqueur, Disaronno, and 5ml each trio of Sipsmith gins in different flavours; lemon drizzle, London dry gin and zesty orange

To be in with a chance of winning this prize be sure to get your tickets in our draw here: https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

🎫 15th Anniversary Prize Draw - Prize Thirteen 🎫The 13th prize in our anniversary prize draw is a £50 Marks and Spencer ...
12/10/2026

🎫 15th Anniversary Prize Draw - Prize Thirteen 🎫

The 13th prize in our anniversary prize draw is a £50 Marks and Spencer gift card!

💚 Matthew Walton kindly donated this prize 💚

From clothing for the whole family, to homeware and not just any food, a Marks and Specner gift card would come in handy for everyone! To be in with a chance of winning this versatile prize be sure to get your tickets in our draw here: https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

PIP-UK is 15! Enter now to support us and be in with a chance of winning one of our 15 prizes. Your entry makes a real difference—thank you

🎫 15th Anniversary Prize Draw - Prize Twelve 🎫The 12th prize in our anniversary prize draw is a ch*****ne and prosecco💚 ...
11/10/2026

🎫 15th Anniversary Prize Draw - Prize Twelve 🎫

The 12th prize in our anniversary prize draw is a ch*****ne and prosecco

💚 Nicci Swindells kindly donated this prize 💚

Our next prize is two bottles of bubbles; one bottle of Pol Guyot brut ch*****ne and one bottle of Canti Prosecco D.O.C.

🥂 Cheers!

To be in with your chance of winning this prize, buy your tickets here: https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

*****ne

🎉 Fancy being a winner while supporting a great cause? For just £2, you could be in with a chance of winning a fantastic...
09/10/2026

🎉 Fancy being a winner while supporting a great cause?

For just £2, you could be in with a chance of winning a fantastic prize AND make a real difference! 🙌

Every ticket helps support our charity and the vital work we do, helping us continue to make a positive impact in our community. 💚

✨ Small price, big impact!

🎫 Just £2 per ticket

And every ticket makes a difference! If everyone who follows us purchases just ONE TICKET for £2 the difference it would make to us would be MASSIVE

Why not give it a go? You never know, it could be your lucky day! 🍀

👉 Buy your ticket today and help us make a difference! https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

Thank you for your amazing support. 🫶

🎫 15th Anniversary Prize Draw - Prize Eleven🎫The 11th prize in our anniversary prize draw is a £50 One 4 All gift vouche...
08/10/2026

🎫 15th Anniversary Prize Draw - Prize Eleven🎫

The 11th prize in our anniversary prize draw is a £50 One 4 All gift voucher!

💚 Nick Spicer kindly donated this prize 💚

With the ability to spend this gift card in over 10,000 different shops, and both in store or online, this is one of the most versatile gift cards you can have. And with Christmas fast approaching this would be a great prize to win!

To be in with a chance of winning this prize, please purchase your tickets for our 15th Anniversary Prize Draw here: https://www.crowdfunder.co.uk/p/15th-anniversary-prize-draw

Address

Stockport
SK38JE

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

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