Ataxia aware

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Ataxia aware People with Ataxia have problems with speech, coordination and balance. Ataxia gets worse over time, until they become dependent on others.

patient founded and patient focused, run by patients Ataxia Patients Charity 1184030

Patients Helping Patients
encompassing associated Rare disease and Movement Disorders
Maximising the patient voice within the Medical / Health / pharma community

Amelia  speaking at Wales Gene Park  young persons   cafe
22/10/2026

Amelia speaking at Wales Gene Park young persons cafe

Sophie Shaw   Cardiff University  speaking at Wales Gene Park  young persons   cafe
22/10/2026

Sophie Shaw Cardiff University speaking at Wales Gene Park young persons cafe

First speaker at Wales Gene Park  young persons   cafe is from All Wales Medical Genomics Service
22/10/2026

First speaker at Wales Gene Park young persons cafe is from All Wales Medical Genomics Service

Explore the details: https://bit.ly/4zP4sWPTwin prime editing removed expanded GAA repeats in Friedreich’s ataxia patien...
22/10/2026

Explore the details: https://bit.ly/4zP4sWP

Twin prime editing removed expanded GAA repeats in Friedreich’s ataxia patient-derived cells, boosting frataxin production.


shared via Friedreich's Ataxia News

Twin prime editing removed expanded GAA repeats in Friedreich’s ataxia patient-derived cells, boosting frataxin production.

Not all impairments or Health conditions are visible ...
21/10/2026

Not all impairments or Health conditions are visible ...

A reminder that not all impairments and health conditions are visible, and access requirements aren't up for debate.

Let's stop policing appearances and start removing the barriers that disable us.

Learn more about creating an inclusive society in our Social Model of Disability Toolkit: https://www.disabilitywales.org/resources/

Image description: White text on a navy graphic. A quote at the top is crossed out, it says "You don't look disabled." Below text reads: Not all impairments or health conditions are visible - and access requirements aren't up for debate. Stop policing appearances. Start removing barriers. DW's logo is in the top right corner.

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