ERN RECONNET

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ERN RECONNET

ERN ReCONNET is the European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases.

ERN ReCONNET is a European Reference Network (ERN) approved by the ERN Board of Member States. The ERNs are supported by the European Commission. For more information about the ERNs and the EU health strategy, please visit ec.europa.eu/health/ern. The content on this page represents the views of the network and is its sole responsibility; it can in no way be taken to reflect the views of the European Commission or any other body of the European Union.

08/10/2026

🎓 ERN ReCONNET Webinar | Antiphospholipid Syndrome (APS)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“The management of reproductive health and pregnancy in Antiphospholipid Syndrome (APS): answers to the patients’ questions”

Planning a pregnancy with antiphospholipid syndrome? What are the real risks, and how can they be managed safely?
Join our webinar to explore the questions patients ask most often about obstetric APS, from preconception counselling and pregnancy management to fertility, contraception and reproductive health. We'll look at hypertensive disorders of pregnancy, such as preeclampsia and HELLP syndrome, and what they mean for both mother and baby. We'll also cover long-term cardiovascular and thrombotic outcomes for women, the interplay between APS and lupus, and how children born to mothers with APS do over time. Throughout, we'll discuss anti-thrombotic treatment during and outside pregnancy in line with current clinical guidelines, with particular attention to bleeding risks.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 14th October 2026
• Time: 16:00 CET
• Target Audience: patients, caregivers, and family members
• Dedicated to: Antiphospholipid Syndrome (APS)
• ✍️ Registration: rb.gy/ui67nz

🎤 Speaker: Prof. Laura Andreoli
🎙 Moderators: the ePAGs Jamy Pullen and Silvia Aguilera

⚙️ ERN ReCONNET APS Resources: https://reconnet.ern-net.eu/disease-aps/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

07/10/2026

🎓 ERN ReCONNET Webinar TODAY | Connective Tissue Diseases (CTDs)

Don’t miss our webinar TODAY at 16 CET:
“Gender effects on pathogenesis and clinical progression in autoimmune rheumatic connective tissue diseases (CTDs) "

Event Details:
• Date: TODAY, 7th October 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers and family members
• Dedicated to: Connective Tissue Diseases (CTDs)
• ✍️ Registration: rb.gy/983198

🎤 Speaker: Dr. Emanuele Gotelli
🎙 Moderator: Prof. Maurizio Cutolo

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on CTDs are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-info/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

05/10/2026

The inspiring docufilm “A Soul in Struggle” explores the challenges of living with scleroderma, arthritis and osteoarthritis, and the strength and resilience of those facing them.

📍 Venice | 📅 17 October 2026

The event was endorsed by ERN ReCONNET - more info in the post 👇

02/10/2026

🎓 ERN ReCONNET Webinar | Connective Tissue Disease (CTD)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Gender effects on pathogenesis and clinical progression in autoimmune rheumatic connective tissue diseases”

Why are autoimmune diseases so much more common in women? And do hormones really make a difference?
Join our webinar to explore how s*x hormones (estrogens, progesterone and androgens) shape the onset and course of autoimmune connective tissue diseases such as rheumatoid arthritis, lupus and systemic sclerosis. We'll look at the latest preclinical and clinical evidence, how risk differs between women and men, and what this means for patients and their families.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 7th October 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals, patients, caregivers and family members
• Dedicated to: Connective Tissue Disease (CTD)
• ✍️ Registration: rb.gy/983198

🎤 Speaker: Dr. Emanuele Gotelli
🎙 Moderator: Prof. Maurizio Cutolo

⚙️ ERN ReCONNET rCTD Resources: https://reconnet.ern-net.eu/disease-info/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

30/09/2026

🎓 ERN ReCONNET Webinar TODAY | Mixed Connective Tissue Disease (MCTD)

Don’t miss our webinar TODAY at 16 CET:
“Red flags in Mixed Connective Tissue Disease (MCTD): key points at first presentation and follow-up”

Event Details:
• Date: TODAY, 30th September 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Mixed Connective Tissue Disease (MCTD)
• ✍️ Registration: rb.gy/rimvo6

🎤 Speaker: Dr. Paola Triggianese and Dr. Jeska de Vries-Bouwstra
🎙 Moderator: Mrs. Magdalena Ciupera

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on MCTD are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-mctd/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

28/09/2026

🇺🇦 🤝 🇪🇺 ERN ReCONNET Exchange Programme 2026–2027: Call for Ukrainian professionals
👉 5 opportunities for Ukrainian healthcare professionals!

Are you a healthcare professional working in a hospital or healthcare centre in Ukraine and caring for patients with rare and complex connective tissue and musculoskeletal diseases (rCTDs)?
This is your chance to visit an ERN ReCONNET centre in Europe, exchange knowledge and learn from colleagues! 🏥

Within the 2026–2027 edition of the ERN ReCONNET Exchange Programme, 5 places are reserved for Ukrainian healthcare professionals.

✅ Who can apply?
Healthcare professionals working in Ukraine and actively involved in caring for patients with APS, EDS, IIM, IgG4-RD, MCTD, RP, Sjögren's Disease, SLE, SSc, or UCTD.

💡 What does the exchange offer?
• Sharing clinical and organisational knowledge to improve care
• Education and training on rCTDs
• Exchange of good practices
• Insights into patient empowerment and education

✈️ Travel expenses and a daily allowance for accommodation and meals are covered, in line with European Commission rules.

🌍 Discover the host centres in 8 European countries: https://docs.google.com/spreadsheets/d/19-3XsDKqp8Ijhkj9DNf4CdO4Az0mTl4l/edit?usp=sharing

📝 Apply here: https://forms.gle/F75Ur7MFATE3jt218
📅 Deadline to apply: 10 December 2026. Exchanges must take place before 30 June 2027.

ℹ️ More information:
• Call for Ukrainian professionals: https://reconnet.ern-net.eu/exchange-ukraine/
• About the ERN ReCONNET Exchange Programme: https://reconnet.ern-net.eu/exchange-programme/
• ERN ReCONNET website: https://reconnet.ern-net.eu/

24/09/2026

🎓 ERN ReCONNET Webinar | Mixed Connective Tissue Disease (MCTD)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Red flags in Mixed Connective Tissue Disease (MCTD): key points at first presentation and follow-up”

Arthralgias, fatigue, Raynaud's phenomenon: are we recognizing Mixed Connective Tissue Disease (MCTD) early enough, or mistaking it for something else?
Join our webinar to explore the diagnostic challenges of MCTD, a defined rheumatic disease that often hides behind nonspecific early symptoms and is frequently misdiagnosed as another connective tissue disease, including UCTD. The webinar will highlight how timely recognition can shorten diagnostic delay and help detect potentially severe clinical phenotypes earlier, improving patient management and outcomes.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 30th September 2026
• Time: 16:00 CET
• Target Audience: healthcare professionals
• Dedicated to: Mixed Connective Tissue Disease (MCTD)
• ✍️ Registration: rb.gy/rimvo6

🎤 Speaker: Dr. Paola Triggianese and Dr. Jeska de Vries-Bouwstra
🎙 Moderator: Mrs. Magdalena Ciupera

⚙️ ERN ReCONNET MCTD Resources: https://reconnet.ern-net.eu/disease-mctd/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

23/09/2026

🎓 ERN ReCONNET Webinar TODAY
Undifferentiated Connective Tissue Disease (UCTD)

Don’t miss our webinar TODAY at 16 CET:
“Long-term outcomes of Undifferentiated Connective Tissue Disease (UCTD)”

Event Details:
• Date: TODAY, 23rd September 2026
• Time: 16:00 CET
• Target Audience: patients and caregivers
• Dedicated to: Undifferentiated Connective Tissue Disease (UCTD)
• ✍️ Registration: rb.gy/mua2u1

🎤 Speaker: Prof. Chiara Tani
🎙 Moderator: Prof. Cristina Pamfil

👉 Please note that the webinar is available with subtitles in 36 different languages.

⚙️ ERN ReCONNET resources on UCTD are freely available and can be consulted here: https://reconnet.ern-net.eu/disease-uctd/
🗞 Newsletter subscription: https://bit.ly/48dO86Q
💻 All webinars can be seen here: https://reconnet.ern-net.eu/webinar/

21/09/2026

🧡 World Myositis Day – September 21, 2026 💪

ERN ReCONNET proudly renews its commitment to marking this important awareness day, dedicated to Idiopathic Inflammatory Myopathies (IIM).

What is it?
It is a large and heterogeneous group of rare autoimmune diseases, part of the rare Connective Tissue Diseases (rCTD) covered by ERN ReCONNET, characterized by:
💪 Muscle weakness and atrophy
🫁 Possible lung involvement
❤️ Possible heart involvement
🔴 Possible skin involvement

🌍 The ERN ReCONNET IIM Disease Group continues to develop and share dedicated resources for healthcare professionals, patients, and caregivers, and is led by:
• Prof. Ingrid Lundberg (Karolinska Institute, Stockholm, SE)
• Prof. Alain Meyer (University Hospital Strasbourg, FR)
• Mrs. Olga Drapalova (Czech League Against Rheumatism, ePAG representative)
• Mrs. Silke Schlüter (German Society for Muscular Disorders, ePAG representative)

Explore our IIM resources:
🔎 Discover all dedicated content: https://reconnet.ern-net.eu/disease-iim/
🎥 Watch our informative webinars on IIM: bit.ly/4hzqPch
💡 Stay updated: subscribe to our newsletter at bit.ly/44wk7La

17/09/2026

🎓 ERN ReCONNET Webinar
Undifferentiated Connective Tissue Disease (UCTD)

We are pleased to announce the upcoming ERN ReCONNET webinar:
“Long-term outcomes of Undifferentiated Connective Tissue Disease (UCTD)”

Is Undifferentiated Connective Tissue Disease (UCTD) really a stable, low-risk diagnosis, or merely a precursor to a more specific condition?
Join our webinar to explore the long-term outcomes of UCTD. We will examine rates of progression to defined Connective Tissue Diseases (CTDs), how organ damage accrues over time, and its impact on patients' quality of life. The webinar will highlight the importance of early diagnosis and long-term monitoring in improving prognosis and informing clinical decision-making.

👉 Please note that the webinar is available with subtitles in 36 different languages.

Event Details:
• Date: 23rd September 2026
• Time: 16:00 CET
• Target Audience: patients and caregivers
• Dedicated to: Undifferentiated Connective Tissue Disease (UCTD)
• ✍️ Registration: rb.gy/mua2u1

🎤 Speaker: Prof. Chiara Tani
🎙 Moderator: Prof. Cristina Pamfil

⚙️ ERN ReCONNET UCTD Resources: https://reconnet.ern-net.eu/disease-uctd/
🗞 Newsletter subscription: bit.ly/44wk7La
💻 Webinar Archive: https://reconnet.ern-net.eu/webinar/

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