Fight Like OZZY

09/22/2026

There simply aren't words big enough for what this little girl or her family are facing right now.

Destiny is needing some help with her breathing, and I'm asking everyone if you're just finding out, who loves her, knows her story, or has followed her journey to please cover this precious girl and her family in prayer.

If you know Destiny, you know what an incredible little girl she is. She has faced DIPG with a strength and determination that has amazed all of us. And through it all, one of the most beautiful things about Destiny has been her incredible, passionate love for Jesus. Her faith is such a huge part of who she is.

Beyond the cancer and everything this disease has asked of her—she is Destiny. A beautiful, deeply loved little girl who has touched so many hearts simply by being herself.

Please pray for comfort and peace for Destiny. Pray for her Mom, Daddy, brother, sisters, and everyone who loves her. Ask God to give them strength for every moment and to hold this entire family incredibly close.

Sweet Destiny, so many prayers are being lifted for you and your family. You are loved beyond measure.

Faith like Destiny 💜

09/18/2026

There are some people and moments from the two months we spent in Seattle for Ozzy’s treatment that I know I’ll carry forever. Marshall Huff came into our lives early in Ozzy’s DIPG journey, and that sweet boy left an impression on me that will never go away.

I remember walking into the cafeteria one day and seeing Marshall sitting there. I asked if I could sit with him, and we just started talking. I got to spend that time with him and know him a little more, just the two of us, and that moment has always meant so much to me. I’ll never forget it. Marshall had unbelievable charm. He was a true little gentleman — kind, loving, caring, compassionate, and a HUGE sports fan!!!!!

The Seattle Seahawks were Marshall’s favorite team. They’re my home team and my favorite team too, so watching them win the Super Bowl this year felt extra special. I couldn’t help but think of Marshall and how good it felt to have another way to celebrate him.

And then there’s the beanie in this picture.

While Marshall and Ozzy were both in treatment, our families were invited to a special Seattle Kraken Hockey Fights Cancer Night. Ozzy couldn’t attend because he was hospitalized for his third round of CAR-T, which became one of our hardest treatment nights. When we returned to the Ronald McDonald House the next day, Marshall and his dad, David, came back with special Kraken Hockey Fights Cancer beanies for our whole family.

We’ve taken the tags off and worn every single one of them except this one. This one still has its tag, and it always will.

These are more than a beanie to us. It holds a memory of Marshall and a kindness shown to our family during an incredibly difficult time not just for us but for him too!

Go Seahawks our family will never forget!

09/13/2026

⚠️ TRIGGER WARNING ⚠️

This image is uncomfortable. It’s supposed to be.

If six school buses full of children drove off a cliff every single year in the United States, the world would stop and pay attention. Yet approximately that many children are diagnosed with DIPG every year—and somehow, it is still considered rare.

It sucks to make a post like this. It sucks that I even have a reason to make it. But this is my reality, and it is the reality of far too many other families.

Every number you see here represents somebody’s child. Somebody’s baby. Somebody’s entire world.

About 300 children in the United States are diagnosed with DIPG every year. These aren't statistics to the families who love them. They are children with names, personalities, dreams, siblings, birthdays, and futures they deserve to have.

And this doesn't stop at our borders. Worldwide estimates put the number of children diagnosed with DIPG in the thousands every year. Because there is no single worldwide registry tracking every diagnosis, exact numbers vary—but we know far too many families are hearing the words no parent should ever have to hear.

We aren't asking you to look away because this image is painful. We're asking you to LOOK.

These children deserve more awareness, more research, better treatments, more funding, and a CURE.

Please help us make people pay attention. Share this. Talk about DIPG. Say their names.

RARE IS NOT FAIR.
FIGHT LIKE OZZY

09/12/2026

Please take some time today to celebrate a very special young man and one of the bravest heroes our family has ever had the privilege of knowing - Chace Fromwiller.

I tell the story of how we met Chace and his family often because it will forever be one of my favorite stories. The night before Ozzy was beginning apheresis for his CAR-T treatment in Seattle, we randomly decided to go out to eat at Eureka! While we were sitting there, I noticed a mom wearing a DIPG shirt. I remember looking at JJ and saying, “What are the chances?”

Of course I had to ask her about it. That one question started a friendship between our families that has meant more to us than I can explain. We found out we were BOTH staying at the Silver Cloud Hotel, and both boys were going in the very next day—Ozzy for his first day of apheresis and Chace for his first CAR-T injection. They were the first DIPG family we had ever met, and we were the first DIPG family they had ever met.

And then we got to know Chace.

I'm telling you, there was just something about him. He was SO cool. And this boy was an athlete! Every sport he touched, he was good at. But Chace was also incredibly loving and caring. Even while going through so much himself, he was willing to share what he was going through if it could help us. Somewhere along the way, he became almost like a big brother to Ozzy through all of this.

Chace even let me watch through the window as he received his first CAR-T injection, knowing Ozzy would eventually be doing the same thing. He handled it like an absolute champ and even gave me a thumbs up through the window to let me know he was okay.

Chace Fromwiller will forever be a part of our hearts. Knowing him changed us forever. His friendship with Ozzy, his courage, his kindness, and the way he cared for others will always mean so much to our family.

We love you guys forever!!

09/10/2026

09/09/2026

Three years ago today was Ozzy’s last full day on Earth.

From the moment that little boy took his very first breath, I knew he was destined for greatness. There was just something about Ozzy. I didn't know what his life would look like or what God had planned for him, but as his mommy, I knew he was going to leave his mark on this world.

I just never imagined his life would be so short.

When Ozzy was diagnosed with DIPG, a terminal childhood brain cancer, we knew someday this day could come. For 18½ months, we lived with that knowledge while fighting with absolutely everything inside of us to keep our little boy here.

We prayed. We hoped. We researched. We cared for him. We fought beside him. And through it all, we tried to give Ozzy as much LIFE as we possibly could.

Even knowing what DIPG meant, our hearts still hoped for the impossible. We wanted our baby to be the exception.

We knew our time was precious.

We just didn't know September 8th would be his last full day.

And three years later, I still don't think I can fully explain what losing Ozzy has done to me as his mommy.

From the second he entered this world, my instinct was to love him, nurture him, and protect him. When cancer came, that instinct became a fight with everything I had.

And when Ozzy died, that instinct didn't die with him.

I was still his mommy. I just didn't have my little boy here to mother anymore.

There is a pain in that I don't think words will ever fully describe.

I still want to take care of him. I want to hear him call me “Mom.” I want to make him something to eat, give him one of his warm baths, kiss his little face, hear his laugh, or hear him announce, “Guys, I have an idea!” and wonder what that determined little mind had come up with now.

I don't only miss the milestones we never got to have.

I miss mothering him.

I miss the ordinary.

I miss having all of my children here.

Tomorrow marks three years since Ozzy left this Earth, but today I want to remember something different.

Three years ago today, my baby was still here.

He was still our sweet, silly, patient, joyful, determined little boy. Still making us laugh. Still teaching us. Still loving us.

Still Ozzy.

And maybe that feeling I had when he took his first breath was right all along.

Ozzy WAS destined for greatness.

Greatness just didn't look the way I thought it would.

My little boy lived only 4½ years, but the love he gave, the people he touched, the lessons he taught us, and the difference his life continues to make have stretched far beyond those years.

Three years after his last day on Earth, Ozzy is still leaving his mark on this world.

And I couldn't be prouder to be his mommy.

Tomorrow is going to be a really hard day for our family. Three years without our boy is a milestone none of us ever wanted to reach. So if Ozzy or our family crosses your mind tomorrow, please say a prayer for us. Pray for our hearts, for strength, for comfort, and that God holds us especially close as we make it through another September 9th without him here.

DIPG could take his body from my arms, but it could never take away my motherhood. It could never take away our love. And it could never change the fact that I am—and forever will be—Ozzy's mommy.

I love you beyond this life, Ozzy.

Until I get to hold you again my sweet boy.

07/31/2026

Thank you so much to Carol Brickey, Paula Brown, the Yancey School of Nursing, and KCU for believing in this mission and standing beside us every step of the way.

It's hard to put into words how much can come from so much loss, faith, and hard work. It still amazes me how God continues to use Ozzy's life to teach, inspire, and change hearts, even after he went home to be with Jesus. His legacy is living on in ways I never could have imagined.

When I moved to Kentucky years ago, I was only about one or two weeks pregnant with Ozzy. I spent nearly the first half of my pregnancy there before we moved back to Oregon.

Maybe it's just a coincidence, but in my heart, I can't help but wonder. I don't pretend to know why, but I believe that every piece of information shared and every story told has the potential to help another family.

And to the people of Kentucky... thank you for listening. Thank you for hearing us. Thank you for caring about children and families facing DIPG. Your love and support have meant more than you'll ever know.

God still continues to move, and Ozzy's life continues to make a difference in me every single day.

05/18/2026

We started Brain Tumor Awareness Month on May 1st with OZZYFEST.

I flew back home on the 5th.
On the 7th, Hayden turned 20.
Ozzy would have turned 7 on May 9th.
Then Mother’s Day came on the 10th.

It has been an emotional month filled with love, memories, heartbreak, purpose, and moments that remind us God is still moving through all of this.

On May 12th, OZZYFEST / Fight Like Ozzy had the incredible honor of being invited to stand alongside Governor Andy Beshear during the official signing of both Brain Tumor Awareness Month and the proclamation making May 17th DIPG Awareness Day in Kentucky. While I was unable to attend personally, Paula Brown (Ozzy’s Grandma) and Carol Brickey (Dean of the YANCEY SCHOOL of NURSING and a true earth angel) were there representing Ozzy, our mission, and every DIPG superhero family during this meaningful moment.

Seeing these proclamations signed was emotional and powerful. DIPG is a devastating pediatric brain cancer that has affected far too many children and families, and seeing awareness continue to grow gives families hope that their children’s stories are being seen and remembered. God is truly moving all the pieces together in ways we never could have imagined.

We want to sincerely thank Governor Andy Beshear for including us and for helping shine a light on DIPG and pediatric brain cancer families across Kentucky. We also want to give a very special thank you to Rocky Adkins, Senior Advisor to Governor Beshear, for his kindness, support, and for helping make moments like this possible. Moments like this remind families that they are not fighting alone.

Thank you so much to the YANCEY SCHOOL of NURSING and Kentucky Christian University. Without your compassion, support, hard work into OZZYFEST, and heart for these families, none of this would have been possible. We are forever grateful to stand beside people who truly care and help us honor these beautiful children.

05/02/2026

Last night was nothing short of incredible. 💛✨

OZZYFEST was a HUGE success, and our hearts are so full. We had the absolute honor of crowning Density Miniard as our OZZYFEST Superhero — a moment we will never forget. 🦸‍♀️
None of this would have been possible without the amazing students and staff from the Yancey School of Nursing at Kentucky Christian University. Your compassion, dedication, and love made this event truly special.

Thank you, KCU, for standing beside us — for helping us celebrate these beautiful children, support these incredible families, and for honoring my boy in such a meaningful way.
This event was more than just a night… it was love, strength, community, and remembrance all wrapped into one.

💛 FIGHT LIKE OZZY 💛

05/02/2026

Some moments stay with you forever… and last night, Destiny gave us one of those moments. 💛✨

Her strength is something you can feel the second you’re near her. Brave, radiant, and full of life in a way that leaves you in awe. But when she stepped up and sang “Pink Pony Club”… everything changed.

The crowd went wild. Time slowed down.
And for those few minutes, it wasn’t just a song anymore.

It became her story… her strength… her light.
There was something so magical in that moment — something you can’t recreate or explain unless you were there to feel it. That song will never be the same for any of us who witnessed it. It now carries a piece of Destiny with it forever.

What an absolute honor it was to celebrate and honor such a beautiful, strong little girl.

Destiny, you are unforgettable. 💛
You are powerful.
You are pure light.

💛 FAITH LIKE DESTINY 💛