Consumer Directed Personal Assistance Association of New York State

Consumer Directed Personal Assistance Association of New York State A grassroots campaign of New Yorkers who love Consumer Directed Personal Assistance (CDPA), a life-saving program that allows disabled citizens to live with dignity, autonomy & more.

We fight for #FairPay4HomeCare. Visit our website to learn more. CDPAANYS began as a forceful grassroots effort. Many advocates, people with disabilities and individuals supportive of this burgeoning model began meeting in 1997. Fresh from the victory of securing legislative passage of the Consumer Directed Personal Assistance Program (CDPAP), this dedicated group met regularly, sharing informatio

We fight for #FairPay4HomeCare. Visit our website to learn more. CDPAANYS began as a forceful grassroots effort. Many advocates, people with disabilities and individuals supportive of this burgeoning model began meeting in 1997. Fresh from the victory of securing legislative passage of the Consumer Directed Personal Assistance Program (CDPAP), this dedicated group met regularly, sharing informatio

Operating as usual

09/28/2021

FOR IMMEDIATE RELEASE

For more information:

Bryan O’Malley:
518-813-9537
[email protected] (email)

Statement from Consumer Directed Personal Assistance Association of NYS Executive Director Bryan O'Malley on the increase in the "Upstate" minimum wage

"New York State is the epicenter of a national home care workforce crisis. According to national experts, the state has a shortage of almost 50,000 home care workers, which means tens of thousands of seniors and people with disabilities are going without critically needed healthcare services or are being unnecessarily forced into nursing homes. While an increase in the minimum wage is necessary, the Consumer Directed Personal Assistance Association of New York State (CDPAANYS) highlights that businesses in the Upstate region who are not reliant on the state for funding, such as Stewart's Shops, Amazon warehouses, and McDonald's, are already paying their workers $15 - $17/hour. At this point, increasing the minimum wage will not do anything to address the home care workforce crisis. For meaningful action, we must enact #FairPay4HomeCare, legislation sponsored by Senator Rachel May (Onondaga, Madison) and Assembly Member Richard Gottfried (New York County), which would set wages for home care workers at 150% of the highest minimum wage in a region, or $22.50/hour. This would solve the home care workforce crisis once and for all."

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If you haven't already, please take a moment to complete our Impressions Survey and let us know how we're doing! This su...
09/23/2021
CDPAANYS Impressions Survey

If you haven't already, please take a moment to complete our Impressions Survey and let us know how we're doing!

This survey should take only a few minutes, but every response helps move us toward becoming the best advocacy and education resource we can possibly be.

https://docs.google.com/forms/d/e/1FAIpQLScOTxrY4ppTQU7yUl6ehi-Ddt_HQvTgPPXX3omjqx5-b1Jp-Q/viewform

The purpose of this survey is to ask a broad and diverse audience to share their impressions and thoughts on the Consumer Directed Personal Assistance Association of New York State (CDPAANYS). Your responses will be completely anonymous, and we encourage you to answer as candidly and honestly as you...

CDPAANYS remembers and misses Constance Laymon, who proudly served years as President and was one of New York's foremost...
09/22/2021

CDPAANYS remembers and misses Constance Laymon, who proudly served years as President and was one of New York's foremost champions of Consumer Directed Personal Assistance.

On this day in 2012, Consumer Directed Choices' founder Constance Laymon passed away at 46 years old. Today, we remember her legacy as a fearless advocate for people with disabilities.

"Home care is literally keeping me alive. But across the country, almost a million children, adults and seniors with dis...
09/13/2021
Opinion | Home Care Keeps Me Alive. It Should Be Fully Funded.

"Home care is literally keeping me alive. But across the country, almost a million children, adults and seniors with disabilities sit on waiting lists for Medicaid’s home- and community-based care, in danger of being removed from their homes and sent to live in institutions."

#FairPay4HomeCare

Most Americans want to stay at home when they’re sick or aging. The U.S. should make it possible.

“New Yorkers, seniors, disabled New Yorkers are struggling. They cannot find home care workers, because people will not ...
09/10/2021
Higgins, home care workers push bill aimed at improving conditions for home care workers and those they serve

“New Yorkers, seniors, disabled New Yorkers are struggling. They cannot find home care workers, because people will not work for poverty level wages, which is where this workforce is after a decade of disinvestment,” said Bryan O’Malley, executive director of the Consumer Directed Personal Assistance Association of New York State.

“We need the Better Care, Better Jobs Act, because we need to invest in a home care workforce, to make sure that the folks who are out there doing this extremely labor-intensive, difficult and rewarding work. To keep folks out of nursing homes, living at home with their family, with their friends, so they can do that, and not starve or lose their apartment in the process.”

#FairPay4HomeCare

Rep. Brian Higgins (D-Buffalo) is co-sponsoring legislation that aims to provide a significant annual investment in the home and community-based care economy. He appeared Tuesday in Buffalo, joined by union leaders, workers and advocates, pushing for inclusion of the Better Care, Better Jobs Act in....

For those who are celebrating the New Year: L'Shanah Tovah!
09/07/2021

For those who are celebrating the New Year: L'Shanah Tovah!

For those who are celebrating the New Year: L'Shanah Tovah!

"Higher pay for these workers is about fairness, access and creating an employment model that will attract people to the...
08/13/2021
Guest column: Bill would boost pay for home care workers

"Higher pay for these workers is about fairness, access and creating an employment model that will attract people to the important endeavor of home care and retain those workers over the long term."

#FairPay4HomeCare

https://www.dailyfreeman.com/2021/08/12/guest-column-bill-would-boost-pay-for-home-care-workers/

There is one group of New Yorkers without whom thousands of people would be forced into nursing homes or other assisted living facilities. They are home care workers, and despite the importance of …

" 'We’ve been at a crisis level for staffing in home care for almost a decade now,' O’Malley said in an interview. 'I’m ...
08/04/2021
NY Home Care Agencies Face Worsening Labor Shortage

" 'We’ve been at a crisis level for staffing in home care for almost a decade now,' O’Malley said in an interview. 'I’m hoping we can get a real resolution of the issue now.'

The worker shortage has led to hundreds of people who qualify for home care not getting the services when they are needed, O’Malley pointed out."

#FairPay4HomeCare

https://www.post-journal.com/news/local-news/2021/08/ny-home-care-agencies-face-worsening-labor-shortage/

ALBANY — Low wages for home care workers are fueling a growing shortage of staffers for the agencies that coordinate services for frail persons who are well enough to stay in their own residences, according to industry advocates. The situation has been aggravated by the July 1 increase in the mini...

"The maximum annual benefit is $9,528, three-quarters of the federal poverty level. Payments decrease if recipients have...
08/03/2021
How Disabled Americans Are Pushing to Overhaul a Key Benefits Program

"The maximum annual benefit is $9,528, three-quarters of the federal poverty level. Payments decrease if recipients have more than $85 a month in outside income, and are revoked if they exceed $2,000 in savings. There are penalties for accepting groceries or even shelter from loved ones. The result is that it is structurally difficult to be on S.S.I. and not live in poverty."

https://www.nytimes.com/2021/07/30/us/politics/disability-benefits-ssi-congress.html

Many older, blind and disabled Americans receive benefits from the Supplemental Security Income program. But it has been essentially unchanged since 1972, and its rules mean that many recipients must remain in poverty.

We are posting this message in support of our friends at Downstate New York ADAPT and ADAPT Capital Region (private).WHA...
07/22/2021
SAVE NYS HOME CARE TODAY

We are posting this message in support of our friends at Downstate New York ADAPT and ADAPT Capital Region (private).

WHAT: Rally in front of the Governor's Mansion (Albany) and Governor's Office (NYC)

WHEN: Today, July 22 at 12 PM

WHERE: Link to join virtually OR in person at 138 Eagle Street, Albany NY 12202 OR 633 Third Ave, New York NY 10017

For Immediate Release

Contact: ADAPT, Downstate NY and Capital Region chapters

Phone/Email: Nina at 646-709-2510 or [email protected]

July 22nd 12PM Repeal & Restore RALLY: Save Home Care Eligibility

New York, NY, July 22nd, 2021 -- Disabled activists across New York are furious with the State’s refusal to pass bills A.5367 and S.5028 to repeal deadly restrictions to home care access amidst the COVID-19 pandemic. At 12PM TODAY, July 22, Downstate New York ADAPT will be gathered outside of the Governors Manhattan office at 633 3rd Ave, and ADAPT Capital Region will be gathered at the Governor’s Mansion in Albany on 138 Eagle St.

Governor Cuomo is moving forward with restricting access to life-saving home care programs that will result in an influx of forced placements in institutions after thousands have already died due to our Governor’s negligence. He has continued to show little remorse for his actions. After responding with “who cares” to the Attorney General’s investigative report into his office’s handling of the undercounted Nursing Home deaths, he has since not responded to ongoing demands from his constituents to bolster home care options.

Restricting eligibility for home care will violate the Supreme Court's Olmstead decision,1 a legal mandate that the State must provide services in the least restrictive setting. The new home care eligibility criteria is antithetical to the values of Olmstead because it relies on an algorithm and assessment tool that excludes many vital tasks of community living (like cooking, shopping, laundry, etc), making it actually stricter than the criteria for Nursing Homes. If this does not get repealed, disabled people across the State will be forced into institutionalized care.

This continued attitude of apathy and neglect is also in conflict with President Biden's plan to invest in home and community based services. According to Philip Bennett, long-time health care professional, Governor Cuomo’s policies have consistently proven to the disability community that the Governor favors institutions special interests over community integration.

Institutions lead to an increase in healthcare spending for a lesser quality of care. Bennett says, “A few years ago my aunt was in a nursing home… the cost to tax-payers was $550 per day just for her. I got her home and set her up with home care, and the cost decreased to $148. Not only is the slant to nursing homes morally devoid, but fiscally irresponsible.”

Please view our website for more information about the campaign: bit.ly/SaveHomeCare

ADAPT chapters across New York State will soon release the date and locations of the upcoming actions to fight for the right for ALL New Yorkers to exist in the community with equity, access, and respect. We continue to ask for the immediate enactment of A.5367 and S.5028 to repeal the stricter eligibility criteria for home care, which will pave the way for a full investment in the health and well-being of ALL New Yorkers. We encourage the Press to cover our action. ###

View accessible transcript Sign onto our letter today: Bit.ly/SaveHomeCareLetter Here are the facts: The proposed changes to Medicaid home care eligibility will DENY THOUSANDS, leaving them in the …

Are you going without home care services, either because the agency cannot meet your needs or because you use CDPA and y...
07/06/2021
Incident Report — NY Caring Majority

Are you going without home care services, either because the agency cannot meet your needs or because you use CDPA and you cannot hire enough staff? Your Legislators, Governor Cuomo, and the Department of Health need to hear about it, because you are not alone.

#FairPay4HomeCare

http://icantfindhomecare.com/

Are you going without home care services, either because the agency cannot meet your needs or because you use CDPA and you cannot hire enough staff? Your Legislators, Governor Cuomo, and the Department of Health need to hear about it, because you are not alone.

"For at least 20 years, national experts have warned about the dire consequences of a shortage of nursing assistants and...
07/02/2021
With Workers In Short Supply, Seniors Often Wait Months For Home Health Care

"For at least 20 years, national experts have warned about the dire consequences of a shortage of nursing assistants and home aides as tens of millions of baby boomers hit their senior years."

https://www.npr.org/sections/health-shots/2021/06/30/1010328071/with-workers-in-short-supply-seniors-often-wait-months-for-home-health-care

Seniors, their families and states are eager to keep older Americans in their homes and out of nursing homes, but those efforts are often thwarted by worker shortages and low pay.

Today, the minimum wage for fast food workers increases to $15/hr across New York, bringing the rest of the state up to ...
07/01/2021
Issue Brief: In NYS, Fast Food Wages Will Surpass Home Healthcare Wages on July 1, 2021. | CDPAANYS

Today, the minimum wage for fast food workers increases to $15/hr across New York, bringing the rest of the state up to pay with New York City. Home care workers, including CDPA personal assistants, still overwhelmingly make $12.50/hr, $5,200 less per year.

CDPAANYS has put out this issue brief to highlight some of the many problems being caused by this discrepancy and how it is making New York's 'Worst in the Nation' home care crisis even worse.

https://cdpaanys.org/advocacy-news/issue-brief-in-nys-fast-food-wages-will-surpass-home-healthcare-wages-on-july-1-2021/

Issue Brief: In NYS, Fast Food Wages Will Surpass Home Healthcare Wages on July 1, 2021. View the brief in its entirety here. Background On July 1, 2021, the fast-food minimum wage will increase to $15 per hour statewide, catching up with New York City where this rate had been in place since Decembe...

Emily Ladau, a disability rights activist, on re-entry: "Why were we able to make the world virtually accessible only wh...
06/30/2021
Opinion | Are You Dreading a Return to ‘Normal’? You’re Not Alone.

Emily Ladau, a disability rights activist, on re-entry:

"Why were we able to make the world virtually accessible only when it mattered for non-disabled people? Why can't we do that all the time?...

...I don't want to see us return to normal. I want to see us return to better."

“I don’t want to see us return to normal. I want to see us return to better.”

FOR IMMEDIATE RELEASEJune 22, 2021June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by ZimringLandmark Supreme Cour...
06/22/2021
June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring | CDPAANYS

FOR IMMEDIATE RELEASE
June 22, 2021

June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring

Landmark Supreme Court Case determined disabled individuals have a right to services within the community over institutionalization

The Consumer Directed Personal Assistance Association of New York State (CDPAANYS), along with disability advocates across the country, is celebrating the twenty-second anniversary of the Supreme Court’s historic civil rights decision in the case of Olmstead v L.C. (by Zimring). In the intervening years, the decision has begun to fundamentally shift the landscape of how services are provided to physically, mentally, and developmentally disabled individuals. Without it, the horrors of COVID-19 in nursing homes and other institutions would have been even worse.

Lois Curtis, a Black, disabled woman involuntarily committed to institutions from childhood, will remain in the pantheon of civil rights heroes such as Rosa Parks or Harriet Tubman. Despite being told by medical professionals and State officials that she must be in an institution, she successfully challenged the State of Georgia who had enforced this arrangement. The Court found that Medicaid-funded services for individuals with disabilities must be provided within the community over institutionalization if desired by the recipient. Today, Lois Curtis lives independently and is a successful artist who received the Harriet Tubman Act of Courage Award in 2007 for her efforts in fighting injustice.

“While this anniversary is a day of celebration, it is also an important time to reflect on where we go next”, said CDPAANYS Executive Director Bryan O'Malley. “It has been more than two decades since this decision was handed down and here in New York, thousands are being forced into nursing homes despite their desire to be active members of their community.”

Consumer directed personal assistance (CDPA) is an increasingly popular option for those seeking to stay at home. Because those who need services hire and supervise their workers, the program provides the maximum amount of flexibility and participation in community activities. However, repeated cuts to Medicaid reimbursement rates over the last decade have artificially suppressed worker wages while other sectors, such as fast food and retail, pay more hourly. This has led to New York being home to the largest workforce shortage in the nation, according to Mercer workforce consulting.

Nikki Reese, a disabled woman from the Bushwick neighborhood in Brooklyn, has been using CDPA for years to allow her to live independently. However, she notes that when she recently had to fill an open spot, it took almost three months to do so, and she counts herself lucky. "My workers are very professional. They work odd shifts and overtime to do what is needed to keep me safe and at home." When she was finally able to hire new staff, Nikki notes that she was forced to do so without taking steps that she, like most employers, typically would. "I was desperate. I had to skim over what I usually do. I couldn't check references or take the time to see who might work best with me. I just needed help."

Geri Mariano, a disabled woman living in Westchester, said, “Starting in September 2020, while still in the throes of the COVID-19 pandemic, I began having PAs leaving for other jobs. This forced me to put my health at further risk as I interviewed potential workers contrary to medical recommendations and the Governor's own guidance regarding COVID-19. Several applicants who went as far as taking forms to fill out would cancel appointments to finalize, telling me they were offered other employment for higher pay. Many would instantly turn me down based on the low pay wage. Since September I have not had full coverage – even though I was approved for twenty-four hour shifts just a few months ago. As of today, I have to go as long as twelve hours alone at times. Because of surgeries gone awry over past 11 years I am mostly bed-bound and definitely stuck in bed when alone since need full assistance to get up into WC. In 1969, progressive thinking social workers helped make sure I could grow up with a family and not in an institution after being abandoned by biological parents. Today, if New York is to meet the promise of the Olmstead v. L.C. decision, we must do better and pay home care workers enough so they will want to stay in these jobs and so I can continue to live the life I want to and deserve to live in the community.”

Advocates also point to recent policy shifts apart from funding that have jeopardized New York’s compliance with the mandate established in Olmstead v L.C. Policies that encourage institutional placement for those who receive a high level of services would mandate nursing home placement despite a lack of clinical evidence indicating that hours of care can provide a basis for decision-making on one’s ability to live independently. Additionally, changes in how assessments are conducted and the legal appeal rights of seniors and disabled folks in need of services also pose a significant risk

T.K. Small, an attorney in Brooklyn who uses CDPA today, spent 9 1/2 years in a rehabilitation hospital for kids, summed it up this way, “I had to fight to get out and build a life for myself. I won’t go back to living in an institution. I will give everything I have to make sure New York lives up to the mandate of Olmstead v L.C., because my independence, and the independence of all disabled New Yorkers, demands it.”

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June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring FOR IMMEDIATE RELEASE June 22, 2021 Contact: Bryan O’Malley CDPAANYS Executive Director 518-813-9537, [email protected] June 22 Marks the 22nd Anniversary of Olmstead v. L.C. by Zimring Landmark Supreme Court Case determined disabl...

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Comments

I want to thank you for your tireless work to advocate for the CDPAP program. Last Friday my husband and I were able to get the vaccine, another step in protecting my parents. They will be getting theirs this week. Thank you so much for making sure we were included in the vaccine schedule. It is most appreciated.
My son is due for his annual recertification next month. Does anybody know if the county nurses are doing them in person or virtual?
https://www.youtube.com/watch?v=CF4NESNvWqU Welcome to the Lake Ontario Event and Conference Center; a beautiful venue located on the waterfront CNY. No matter what time of the year your conference or event is of you will be treated with the top of the line professionalism, courtesy, and given an experience that will remember for all of the right reasons. It begins before you even walk through our doors and lasts well beyond the time your event ends. We serve with pride CNY, Hudson Valley, Northern NY, the Southern Tier, Upstate NY, and Western NY...easily accessible from all compass points in NYS!!! Contact us today, Schedule a visit for a day or two, tour our beautiful venues and facilities, and break bread with us. Let us help you put on the event of your dreams! [email protected] & [email protected] Ph 315-343-5121 / 315-806-1332 See you soon!!!
I have a question as a PCA regarding the annual Health Assessment and PPD assessment. I have verbally heard about a possible 90 day extension to get these renewed, but have seen nothing in writing. My HA and PPD expire Mid-May and my doctor is not doing theses in his office right now due to the Corona virus restrictions. When they do open it up, it will be a nightmare to try and get an appointment for a few weeks.. Is there anything in writing about an extension?
Are NY CDPAP considered essential workers?
There is a man looking for help in Schenectady, can anyone help him? He had a stroke and needs an aide 8 hrs a week.
Medicaid waste recommendations: Due to stupid Medicaid regulations, they will only send me one box of gloves every month for my PAs, instead of sending me in one shipment several boxes to last several months. As such the distribution company has said they lose substantial money to send a truck for a single box and that shipping a single box is also a loss. #RealMedicaidWaste
I shared the cdpa albany new york court event with jessica layton from wnyt and a new york city nescaster and benita zahn