Steffens Scleroderma Foundation

Steffens Scleroderma Foundation www.steffens-scleroderma.org The Steffens Scleroderma Foundation was formed in memory of Ann Steffens who was diagnosed with scleroderma in 1984 and passed away in 1997.
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Ann's nature was to help others, and she participated in several research studies throughout her life. Her mother Helen Polenz donated the funds to create the research center in the hope of sparing others the pain of losing a loved one to this disease.

Operating as usual

NYSDOH - New York State Health Department
03/30/2021

NYSDOH - New York State Health Department

#BREAKING: Starting Tuesday, April 6 at 8am, all New Yorkers age 16+ will be eligible to schedule and receive the COVID-19 vaccines. And beginning tomorrow at 8am, all New Yorkers age 30+ will be eligible to schedule and receive the vaccines. #VaccinateNY
https://am-i-eligible.covid19vaccine.health.ny.gov/

02/28/2021
A&E

#sclerodermaawareness
#RareDiseaseDay2021

This #RareDiseaseDay, catch a special presentation of #BeyondBreathless, a documentary brought to you by Boehringer Ingelheim featuring Queen Latifah & New York Yankees legend Bernie Williams today starting at 12PM ET on A&E.

It is Rare Disease Day!! Help the Rare by donating to Steffens Scleroderma Foundation.  https://www.steffens-scleroderma...
02/28/2021

It is Rare Disease Day!!
Help the Rare by donating to Steffens Scleroderma Foundation. https://www.steffens-scleroderma.org/
#rarediseaseday #sclerodermaawareness #degosdisease

We care for Rare!!  Rare Disease Day February 28, 2021.Help the Rare by donating to Steffens Scleroderma Foundation.  ht...
02/13/2021

We care for Rare!! Rare Disease Day February 28, 2021.
Help the Rare by donating to Steffens Scleroderma Foundation. https://www.steffens-scleroderma.org/
#rarediseaseday #sclerodermaawareness #degosdisease

Our January Newsletter page 2.If you would like to subscribe to our Newsletter and other communications, please email cm...
02/04/2021

Our January Newsletter page 2.
If you would like to subscribe to our Newsletter and other communications, please email [email protected]

Our January Newsletter page 1.If you would like to subscribe to our Newsletter and other communications, please email cm...
02/04/2021

Our January Newsletter page 1.
If you would like to subscribe to our Newsletter and other communications, please email [email protected]

Stay warm!!!
02/02/2021

Stay warm!!!

02/02/2021

Like us on Instagram. @SteffensFoundation

Congratulations to Donna Clark and Lewis Sperber.  You have won the items you bid on in our Artwork Silent Auction.  You...
02/01/2021

Congratulations to Donna Clark and Lewis Sperber. You have won the items you bid on in our Artwork Silent Auction. You will be contacted via email.
#sclerodermaawareness

01/30/2021
Only 3 days left!!!  Get your bids in!!https://ssf.betterworld.org/auctions/artwork-by-scleroderma-patients?fbclid=IwAR3...
01/28/2021
Artwork by Scleroderma Patients by Steffens Scleroderma Foundation

Only 3 days left!!! Get your bids in!!
https://ssf.betterworld.org/auctions/artwork-by-scleroderma-patients?fbclid=IwAR3KMWivsvsZINqV4jGSQXN_d8LjUsteo7B3E3Ny8aSTV484nC877YUB4to

Jeanne Okpu (nee Curtis) is a life-long resident of Schenectady, NY. She graduated from the Paier College of Art, Hamden, CT in 1973 with a four-year degree in advertising and illustration. Although always a lover of art, it was at Paier where she found her love of watercolors. It’s been her passi...

Steffens Scleroderma Foundation's cover photo
01/24/2021

Steffens Scleroderma Foundation's cover photo

7 more days to get your bids in.  Support Steffens Scleroderma Foundation by bidding on some amazing artwork created by ...
01/24/2021
Artwork by Scleroderma Patients by Steffens Scleroderma Foundation

7 more days to get your bids in. Support Steffens Scleroderma Foundation by bidding on some amazing artwork created by Scleroderma patients.
https://ssf.betterworld.org/auctions/artwork-by-scleroderma-patients

Jeanne Okpu (nee Curtis) is a life-long resident of Schenectady, NY. She graduated from the Paier College of Art, Hamden, CT in 1973 with a four-year degree in advertising and illustration. Although always a lover of art, it was at Paier where she found her love of watercolors. It’s been her passi...

01/24/2021

Steffens is looking for a volunteer to help us with administrative assistant duties. It would very helpful if you have Microsoft Office Skills.

Please contact us at 518-573-0259.

Thanks for considering this post!

Have a blessed day!

01/24/2021

Happy cold January 23rd! While some of you love the cold, there are many of us who dislike or fear the cold.

One of our symptoms of Scleroderma is Raynaud’s phenomenon. When we are exposed to the cold or stress, our hands and toes and sometimes our noses turn blue. This is because we have circulation problems. Smaller arteries that supply blood to our skin, narrow, limiting blood flow. This is called a vasospasm.

Our hands or toes become white, then maybe red, then very blue. So we avoid going outside for longer periods of time. Electric/battery operated gloves and hand warmers help, but we have our limitations.

So when your friends ask you to go snowmobiling or skiing, make sure your have everything you need to avoid a Raynauds event. IT IS OK TO SAY NO, IF YOU DONT WANT TO GO. Manage your disease and the challenges that come with it.

Happy January to everyone!  Stay warm, safe and healthy!!Visit our website www.Steffens-scleroderma.org
01/19/2021
Home :: Web Instinct C58 Installer

Happy January to everyone! Stay warm, safe and healthy!!

Visit our website www.Steffens-scleroderma.org

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HAPPY HOLIDAYS and OUR WISHES FOR A BLESSED AND PEACEFUL 2021!Until January 31st, Steffens Foundation will be featuring ...
01/03/2021
Artwork by Scleroderma Patients by Steffens Scleroderma Foundation

HAPPY HOLIDAYS and OUR WISHES FOR A BLESSED AND PEACEFUL 2021!

Until January 31st, Steffens Foundation will be featuring the artwork of two scleroderma patients in our area.

To view their artwork, and participate in our silent auction, please click on this link
https://ssf.betterworld.org/auctions/artwork-by-scleroderma-patients

Thank you for viewing the auction and for everything you do to help us achieve our mission of educating health professionals about scleroderma and Degos disease.

You could also help support our work by visiting our website and clicking on the DONATE button. https://www.steffens-scleroderma.org/

Jeanne Okpu (nee Curtis) is a life-long resident of Schenectady, NY. She graduated from the Paier College of Art, Hamden, CT in 1973 with a four-year degree in advertising and illustration. Although always a lover of art, it was at Paier where she found her love of watercolors. It’s been her passi...

HAPPY HOLIDAYS and OUR WISHES FOR A BLESSED AND PEACEFUL 2021!For the next month, Steffens Foundation will be featuring ...
12/22/2020
Home :: Web Instinct C58 Installer

HAPPY HOLIDAYS and OUR WISHES FOR A BLESSED AND PEACEFUL 2021!
For the next month, Steffens Foundation will be featuring the artwork of two scleroderma patients in our area. The auction closes on January 31st at 8pm.
To view their artwork, and participate in our silent auction, please click on this link https://ssf.betterworld.org/auctions/artwork-by-scleroderma-patients
Thank you for viewing the auction and for everything you do to help us achieve our mission of educating health professionals about scleroderma and Degos disease.

You could also help support our work by visiting our website and clicking on the DONATE button. https://www.steffens-scleroderma.org/

This is Photoshop's version of Lorem Ipsum. Proin gravida nibh vel velit auctor aliquet. Aenean sollicitudin, lorem quis bibendum auctor, nisi elit consequat ipsum, nec sagittis sem nibh id elit. Duis sed odio sit amet nibh vulputate cursus a sit amet mauris. Morbi accumsan ipsum velit. Nam nec tell...

12/20/2020

Steffens is building our team of volunteers. The pay is low (none) but the satisfaction is high. It is an opportunity to pay it forward by helping others.

We are looking for someone with administrative, clerical and Microsoft Office skills i.e. Word, and Excel.

We are also looking for people to help on our Communication and Marketing committee. This is where it is happening! Fun with social media and all forms of communication.

If you can help us, please private message us!! Please share our posts with your friends and family.

May the Peace of the Season be with you now and in 2021!

Don’t forget to select us at Amazon Smile!
12/18/2020

Don’t forget to select us at Amazon Smile!

Take a seat and do your shopping online with https://smile.amazon.com/ and designate Ann Steffens Scleroderma Research Foundation Inc as your charity.

12/18/2020

The Steffens Foundation would like to wish all of our supporters a wonderful Holiday Season and a Blessed New Year!

An IPE Model for Optimizing Patient-Provider DiscussionEach year, hundreds of graduate-level health sciences students be...
12/03/2020
Interprofessional Education :: Web Instinct C58 Installer

An IPE Model for Optimizing Patient-Provider Discussion

Each year, hundreds of graduate-level health sciences students benefit from attending an innovative interprofessional education (IPE) forum focused on scleroderma in Albany, New York. The patient-centered IPE has become a model for provider education and is made possible by a partnership among the Steffens Scleroderma Foundation, Sage Colleges Health Sciences, Albany College of Pharmacy and Health Sciences, and Dr. Lee Shapiro’s Scleroderma Center at Albany Medical College.
The goals of the IPE are to reduce the time to diagnosis and improve the quality of care for scleroderma patients. Since scleroderma is a rare disease with variable symptoms that can potentially impact several different parts of the body (skin, lungs, vascular, gastrointestinal, kidney, and heart), it’s difficult to diagnoses and treat. The IPE provides an introduction to the disease with the hope that no patients are greeted with a blank stare when mentioning their diagnosis to a healthcare professional.
Read more...

https://www.steffens-scleroderma.org/education/interprofessional-education

Interprofessional Education

Take a seat and do your shopping online with https://smile.amazon.com/ and designate Ann Steffens Scleroderma Research F...
11/30/2020

Take a seat and do your shopping online with https://smile.amazon.com/ and designate Ann Steffens Scleroderma Research Foundation Inc as your charity.

While you are doing your Holiday Shopping, remember Steffens Scleroderma Foundation on Amazon Smile.smile.amazon.com
11/26/2020

While you are doing your Holiday Shopping, remember Steffens Scleroderma Foundation on Amazon Smile.
smile.amazon.com

HAPPY THANKSGIVING TO ALL OF YOU FROM ALL OF US at Steffens Scleroderma Foundation!
11/26/2020

HAPPY THANKSGIVING TO ALL OF YOU FROM ALL OF US at Steffens Scleroderma Foundation!

Address

P.O. Box 38037
Albany, NY
12203

General information

Foundation in support of Scleroderma and Degos Disease Research and Education

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