Lupus LA Lupus LA promotes lupus research, awareness, and education, and serves the needs of people with lupus and their families in Los Angeles County.

This page provides a forum for individuals to view materials, share information and engage in conversations about health, treatment, and support. It’s also a destination to learn about Lupus LA, our programs, services, conferences, and events. Safety Information
RULES OF USE:
Thank you for taking the time to visit our page. This is a place for people with lupus to become better informed,

actively participate in combating this condition, and find support through connections with others who have similar experiences. With your help and support, we hope to help bring about the next miracle treatment for those living with lupus. Since this is a public forum, there are a few rules for visitors to be aware of – and comply with. First, the basics:
• Comments and opinions that are posted by visitors don’t necessarily reflect the opinions of the Lupus LA page, or our employees and affiliates. This means that we assume no responsibility or liability arising from any content posted by visitors on our page.
• Lupus LA may post articles, commentary and opinions from other sources, that we believe may be of interest to our followers. These articles are not fact checked and do not necessarily reflect the opinions of the Lupus LA page, or our employees and affiliates. This means that we assume no responsibility or liability arising from any links posted on our page.
• We don’t verify or endorse any posts or content posted by visitors and don’t warrant their accuracy. Similarly, we don’t endorse any third-party websites or pages that may be linked from our page, and we aren’t responsible or liable for the content or accuracy of any other websites or third party pages. Visitors should read the terms and conditions and privacy policy of each third party website they visit.
• All comments posted here are subject to moderation, and may be edited or removed at any time to maintain community standards, to comply with these Rules of Use or for any other lawful reasons.
• We may use any comments posted and any other information shared on or through this page or other public pages for market research purposes, to further the goal of improving our outreach. Your privacy will always be protected.
• All posts must be courteous and respectful. We also would like for posts to be on-topic (that’s why we’re all here).
• Posts may not contain anything that is unlawful, threatening, libelous, accusatory, defamatory, obscene, offensive, inflammatory, pornographic or profane, or anything that we deem inappropriate.
• Posts may not contain anything that identifies or could be used to identify a specific person or company – we don’t want to hear about Dr. XYZ or Company 123.
• All visitors must be eighteen (18) years or older to post on this page.
• Everything on this page is intended only for people in the United States. And the not-so-basics:
• Our page may not be used to promote any products or services and we will remove any posts that we deem to be misleading or thinly disguised sales pitches.
• No medical or professional advice or diagnoses may be given – not by users of the site and not by us. Keep in mind that the contents of this page are for information purposes only and should never be relied on as the basis for making a decision or taking an action. Any health or medical information that’s posted here is not intended as a substitute for specific medical advice, and is not meant to replace the judgment of a healthcare professional. So if you do choose to rely on content that you see here, you are doing so at your own risk. Be smart: take your specific medical questions to a medical expert. Plus a very important additional point:
• If you have any questions or concerns about any medications you’re taking, or have an adverse reaction, contact your healthcare provider right away. Changes to these Rules of Use:
As new situations arise, we may need to change or add to these Rules of Use at any time. If we do make changes, we'll post a revision date to the bottom of this page. Updated: June 5, 2013

01/22/2025

Welcome to today's Live Panel: "Meet Lupus LA’s Support Group Facilitators"! This is your chance to hear directly from the amazing individuals who lead Lupus LA’s support groups and learn more about how we’re here to support YOU.

💬 Today you'll see:

▫️ A panel discussion with our facilitators, sharing their stories and expertise
▫️ Insights into the support groups we offer and how they can help you
▫️ An opportunity to ask questions and connect with the Lupus LA community

This session is a perfect way to get to know our facilitators, explore our resources, and find out how our support groups can make a real difference.

Have questions about lupus support groups? Share your questions in the comments below, or send us a DM!

Meet the Faces Behind Lupus LA’s Support Groups! Join us on Wednesday, Jan. 22nd at 3:00pm PST for a special live panel....
01/21/2025

Meet the Faces Behind Lupus LA’s Support Groups! Join us on Wednesday, Jan. 22nd at 3:00pm PST for a special live panel. This is your chance to hear directly from the amazing individuals who lead Lupus LA’s support groups and learn more about how we’re here to support YOU.

💬 What to Expect:

▫️ A panel discussion with our facilitators, sharing their stories and expertise

▫️ Insights into the support groups we offer and how they can help you

▫️ An opportunity to ask questions and connect with the Lupus LA community

To join us, tap the live video on our page at 3:00pm PST/6:00pm EST on Wednesday, Jan. 22nd and share your questions in the comments!

This is a perfect way to get to know our facilitators, explore our resources, and find out how our support groups can make a real difference.

As we observe  , we have much to honor and celebrate. But there is also much to recognize - Lupus affects 1 in 250 Afric...
01/21/2025

As we observe , we have much to honor and celebrate. But there is also much to recognize - Lupus affects 1 in 250 African American women, and African Americans are THREE times more likely to develop lupus.

Additionally, their symptoms are often more severe.

People of color are adversely affected by , and healthcare inequity is a reality for so many in our community.

Help us to bring support and awareness to a global cause affecting this community. Visit LupusLA.org to learn more, and to discover the variety of ways that you can help. 💻

_____


Join Lupus LA and UCI for our next in-person   Patient Conference: "New Insights in   & Kidney Health" on Saturday, Feb....
01/19/2025

Join Lupus LA and UCI for our next in-person Patient Conference: "New Insights in & Kidney Health" on Saturday, Feb. 8th (9:00am-3:00pm PST) at Hotel Fera in Irvine, CA! This conference is FREE to attend but all guests must register.

This free educational event is designed to provide the latest insights on lupus, featuring panels and talks by leading experts. Join us to gain valuable knowledge while connecting with the lupus community!

📅 Event Details:

📍 Location: Hotel Fera Anaheim, 100 The City Drive South, Orange, CA

🕘 Time: 9:00 AM - 3:00 PM

Reserve your spot today at: bit.ly/latestonlupus-uci


Join us at Lupus LA's educational conference on Saturday, February 8th from 9am-3:00pm. The event is free to attend!

Living with lupus as a man comes with unique challenges, and you’re not alone in facing them. Join our Men’s Virtual Sup...
01/14/2025

Living with lupus as a man comes with unique challenges, and you’re not alone in facing them. Join our Men’s Virtual Support Group this Thursday, January 16th at 4pm PST | 7pm EST.

This is a space just for men, led by Emmitt Henderson and Dion Langley, two incredible lupus warriors who understand what you’re going through.

💬 What to Expect:

▪️ Honest conversations about the unique challenges men face with lupus

▪️ A space to share experiences, ask questions, and learn from each other

▪️ Support from a community of men who truly get it

📲 Sign up for free: https://us02web.zoom.us/meeting/register/tZYudO2opjsvEtC3n6jhJsUvaRdT9yY0Rlb3

It’s time to connect, share, and build strength together. Navigate your lupus journey with a team. 💪

01/14/2025

NOW LIVE! Watch Season 4, Episode 8 of the ® Podcast featuring owner of Regan MOVES, Regan Birr, below! 🎙️

After battling severe pain from lupus and arthritis, she turned her background in mechanical engineering into a transformative low-torque, joint-friendly exercise program for people with chronic challenges. Now, she helps others move past their limitations and find empowerment through her online classes and inspiring talks across the U.S.

In this episode, Regan shares her journey, her insights into living with chronic illness, and how she’s dedicated her life to promoting health, happiness, and lupus research.

Stream this episode at lupusla.org/podcast, on Lupus LA’s social channels or on your favorite podcast streaming platforms. 🎧

🎙️ SUBSCRIBE: yourstoryourfight.buzzsprout.com

01/14/2025

Join us Tuesday, Jan. 14th at 7:00pm PST! Whether you’re newly diagnosed, in the midst of managing your lupus, or you’re in remission - your presence matters. Join us for an uplifting support session led by Lupus LA moderator, Jazmin Zinnerman! Even if you have your lupus under control, your encouragement can make a world of difference to someone looking for hope and encouragement.

Attend a Virtual Lupus Support Group to:

🔹 Support Others: Your experience and strength can inspire those who are struggling.

🔹 Build Community: Connect with others who truly understand what you’re going through.

Don’t miss this chance to make a difference – for yourself and for others in the lupus community. 🧡

🕕 Date: Tuesday, Jan. 14, 2025
🕒 Time: 7:00pm PST
💻 Register to Attend: us02web.zoom.us/meeting/register/tZEqcuuprDssGNFtlXaNQEwLQt8aw2vY3raz

🔗 View Additional Support Group Dates: lupusla.org/supportgroups

Join Lupus LA and UCI for our next in-person   Patient Conference: "New Insights in   & Kidney Health" on Saturday, Feb....
01/13/2025

Join Lupus LA and UCI for our next in-person Patient Conference: "New Insights in & Kidney Health" on Saturday, Feb. 8th (9:00am-3:00pm PST) at Hotel Fera in Irvine, CA! This conference is FREE to attend but all guests must register.

This free educational event is designed to provide the latest insights on lupus, featuring panels and talks by leading experts. Whether you’re attending in person or streaming online, you’ll gain valuable knowledge and connect with the lupus community!

📅 Event Details:

📍 Location: Hotel Fera Anaheim, 100 The City Drive South, Orange, CA

🕘 Time: 9:00 AM - 3:00 PM

Can’t join in person? No problem! Register as a Virtual attendee. Reserve your spot today at: bit.ly/latestonlupus-uci


🎙️Tune in Tuesday, Jan. 14th at 11am PST for Season 4, Episode 8 of the  ® Podcast featuring Regan Birr, lupus patient a...
01/13/2025

🎙️Tune in Tuesday, Jan. 14th at 11am PST for Season 4, Episode 8 of the ® Podcast featuring Regan Birr, lupus patient and owner of Regan MOVES!

After battling severe pain from lupus and arthritis, she turned her background in mechanical engineering into a transformative low-torque, joint-friendly exercise program for people with chronic challenges. Now, she helps others move past their limitations and find empowerment through her online classes and inspiring talks across the U.S.

In this episode, Regan shares her journey, her insights into living with chronic illness, and how she’s dedicated her life to promoting health, happiness, and lupus research.

Stream this episode at lupusla.org/podcast, on Lupus LA’s social channels or on your favorite podcast streaming platforms. 🎧

👉 SUBSCRIBE: https://lnkd.in/gg5FRXM

01/12/2025

The fires in LA are affecting so many, and we know this is an especially challenging time for those living with lupus. We want to address important concerns about air quality, medical care, prescription access and safety for those in our community. We're here with rheumatologist, Dr. Brittany Panico, to provide insights and share actionable advice for staying safe during this time.

Visit LupusLA.org/WildfireResources for information about how to access:

✔️ Lupus LA Emergency Grants
✔️ Emergency Assistance & Shelter
✔️ Medical Care & Prescription Fulfillment
✔️ Lupus LA 1:1 Support for Navigating Resources
✔️ Lupus LA Virtual Support Groups
✔️ Transportation and more

Watch below as Dr. Panico shares:

▪️ Tips for managing air quality and protecting your health 🌫️
▪️ Guidance on whether it’s safe to spend time outdoors 🏞️
▪️ Advice on mask usage for lupus patients 😷
▪️ Steps to take if you need access to medications 💊

Have questions? We are here to support you. Please reach out to our team at [email protected] or call 310-657-5667 if you need help navigating available resources for lupus patients.

01/11/2025

SoCal Patient Resources: Our hearts go out to everyone in our community affected by the devastating fires unfolding across Los Angeles. We stand with all of Los Angeles during this heartbreaking time. For all impacted in our community, we’re sharing resources for emergency assistance, shelter, transportation, medical care, prescription fulfillment, and more at: lupusla.org/wildfireresources

To our lupus patients, please prioritize your health. Smoke and poor air quality can exacerbate autoimmune symptoms, so please stay indoors whenever possible, use air purifiers if available, and wear masks to protect yourselves outside.

Together, we’ll get through this. Our thoughts are with all of our cherished families here in LA, and we are so grateful for the first responders working tirelessly to bring the fires under control.

🧡 Resources for SoCal Lupus Patients: lupusla.org/wildfireresources

01/01/2025

2024 has been a year of incredible growth, advocacy, and connection for Lupus LA! From groundbreaking Live Expert Sessions to impactful community events and inspiring podcast episodes - we’ve worked tirelessly to empower and uplift our lupus community.

From expert Q&As to in-person conferences, we tackled key topics like CAR-T Therapy and lupus nephritis, launched new initiatives like our Teen Support Group and raised critical funds through unforgettable events like Light Up The Lanes and Cuisine For A Cause. ✨

Through it all, we celebrated the resilience of . Whether sharing stories on our award-winning podcast or propelling our new Patient Advocacy Panel, 2024 has been a year of inspiration.

This year, we hosted over 27 Live Expert Sessions and celebrated the voices of lupus warriors in 18 podcast episodes. We were honored with awards for our work and expanded access to life-changing resources for lupus patients.

We are honored to continue to be a place of support for patients worldwide, but none of this would have been possible without our incredible community. Together, we’ve raised awareness, connected countless patients to vital resources, and made a real difference.

Watch some of our 2024 Year in Review highlights below! 🧡

12/30/2024

Make an Impact in Just a Few Minutes 🧡

Want to help Lupus LA provide life-saving resources to patients in need? It’s easier than you think. By starting your own social media fundraiser, you’ll raise both awareness and funds for critical programs like our Emergency Grant Program, which helps lupus patients with medical costs, treatments, and essential living expenses.

Starting is simple:

✔️ On Instagram: Tap the + to create a post or story, select “Add Fundraiser,” and choose Lupus LA.

✔️ On Facebook: Go to Fundraisers in the menu, click “Raise Money,” and select Lupus LA.

Share why this cause matters to you, set your goal, and spread the word. Together, we can ensure no one fights lupus alone.

Ready to get started?💻


12/29/2024

What if your New Year’s vision wasn’t about doing more, but about becoming more of who you want to be?

For those living with like lupus, the pressure of New Year’s resolutions can feel overwhelming. The unpredictability of symptoms and medical appointments makes traditional goals challenging, but what if this year wasn’t about doing more?

dr.blied - licensed psychologist, lupus patient, and Lupus LA Medical Advisory Board Member - led a powerful New Year’s Vision Planning Workshop designed to help those living with a chronic illness embrace this mindset. 🧡

It’s not about piling on more expectations; it’s about self-compassion and intentionality as you step into the year ahead.

💡 Watch the full workshop: https://youtu.be/P9vLEhtgvjQ

12/27/2024

Are you looking for a space to connect, share, and grow with others who understand life with lupus? Join one of Lupus LA’s January Virtual Support Groups to find encouragement, resources, and community!

Our support groups are here for everyone - whether you’re facing a flare or feeling great. Even if you’re thriving, attending to offer your story and support could make a huge impact on someone else’s journey.

📲 Register today and join us virtually or in person for select groups. Visit lupusla.org/supportgroups for details.


12/25/2024

Happy Holidays from your Lupus LA family! On behalf of the staff and board of Lupus LA, we’re wishing our community a safe holiday week filled with moments of joy, peace, love and self care. ❄️

12/25/2024

Sending love to all in the community. If you're in need of support during this season, we are here for you:

🧡 Attend one of our Virtual Lupus Support Groups: lupusla.org/supportgroups

🧡 Connect with our 1:1 Virtual Care Coordinator at [email protected]. 📧

12/23/2024

“I finally have insurance approval to start the next phase of IV treatments for this flare in January 2025.🫠 My poor kidneys are doing their best, this is my third acute nephritis flare over the span of ten years, and I have to remind myself daily what a resilient miracle this body of mine is. In the meantime, I’m just staying wired on high dose corticosteroids and barely sleeping, BUT at least every part of my life has been sorted and organized, all Christmas gifts are wrapped underneath the tree, my is giving me glowy tight skin, and my leisure wear game has grown exponentially with random purchases made at 4am. A holding pattern during an acute flare can be the toughest part, but you have to trust the process and believe you’ll be on the other side soon enough. Trudging ahead is still progress! To all my fellow warriors, let’s honor the fight we live every moment of every day and celebrate our and raise . Get your “It’s Not Filler, It’s Prednisone” merch (designed by me and ) at the link in my bio. All proceeds go to Lupus LA and help us support our community!” - Maurissa Tancharoen (Mo T Weeds)

Maurissa Tancharoen Whedon— writer, producer, lupus warrior and showrunner of ABC’s Agents of Shield —is turning the challenges of a lupus flare into an opportunity for awareness! After experiencing “moon face,” a common side effect of steroid treatments that changes facial appearance, Maurissa is leaning into the experience with humor, creativity, and advocacy. 🧡

Join Maurissa in making a difference for the lupus community! Shop the “It’s Not Filler, It’s Prednisone” collection and help raise funds to support Lupus LA’s mission to end lupus and provide critical resources for patients. 👉 Shop: bonfire.com/lupusla

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