Live Panel: Meet Our Support Group Facilitators
Welcome to today's Live Panel: "Meet Lupus LA’s Support Group Facilitators"! This is your chance to hear directly from the amazing individuals who lead Lupus LA’s support groups and learn more about how we’re here to support YOU.
💬 Today you'll see:
▫️ A panel discussion with our facilitators, sharing their stories and expertise
▫️ Insights into the support groups we offer and how they can help you
▫️ An opportunity to ask questions and connect with the Lupus LA community
This session is a perfect way to get to know our facilitators, explore our resources, and find out how our support groups can make a real difference.
Have questions about lupus support groups? Share your questions in the comments below, or send us a DM!
#YourStoryOurFight S4 Ep8 with with owner of Regan MOVES, Regan Birr!
NOW LIVE! Watch Season 4, Episode 8 of the #YourStoryOurFight® Podcast featuring owner of Regan MOVES, Regan Birr, below! 🎙️
After battling severe pain from lupus and arthritis, she turned her background in mechanical engineering into a transformative low-torque, joint-friendly exercise program for people with chronic challenges. Now, she helps others move past their limitations and find empowerment through her online classes and inspiring talks across the U.S.
In this episode, Regan shares her journey, her insights into living with chronic illness, and how she’s dedicated her life to promoting health, happiness, and lupus research.
Stream this episode at lupusla.org/podcast, on Lupus LA’s social channels or on your favorite podcast streaming platforms. 🎧
🎙️ SUBSCRIBE: yourstoryourfight.buzzsprout.com
#LupusLA #lupusawareness
Next Lupus Support Group: Jan. 14th at 7pm PST
Join us Tuesday, Jan. 14th at 7:00pm PST! Whether you’re newly diagnosed, in the midst of managing your lupus, or you’re in remission - your presence matters. Join us for an uplifting support session led by Lupus LA moderator, Jazmin Zinnerman! Even if you have your lupus under control, your encouragement can make a world of difference to someone looking for hope and encouragement.
Attend a Virtual Lupus Support Group to:
🔹 Support Others: Your experience and strength can inspire those who are struggling.
🔹 Build Community: Connect with others who truly understand what you’re going through.
Don’t miss this chance to make a difference – for yourself and for others in the lupus community. 🧡
🕕 Date: Tuesday, Jan. 14, 2025
🕒 Time: 7:00pm PST
💻 Register to Attend: us02web.zoom.us/meeting/register/tZEqcuuprDssGNFtlXaNQEwLQt8aw2vY3raz
🔗 View Additional Support Group Dates: lupusla.org/supportgroups
Q&A with Dr. Brittany Panico and Lupus LA | SoCal Lupus Patient Resources
The fires in LA are affecting so many, and we know this is an especially challenging time for those living with lupus. We want to address important concerns about air quality, medical care, prescription access and safety for those in our community. We're here with rheumatologist, Dr. Brittany Panico, to provide insights and share actionable advice for staying safe during this time.
Visit LupusLA.org/WildfireResources for information about how to access:
✔️ Lupus LA Emergency Grants
✔️ Emergency Assistance & Shelter
✔️ Medical Care & Prescription Fulfillment
✔️ Lupus LA 1:1 Support for Navigating Resources
✔️ Lupus LA Virtual Support Groups
✔️ Transportation and more
Watch below as Dr. Panico shares:
▪️ Tips for managing air quality and protecting your health 🌫️
▪️ Guidance on whether it’s safe to spend time outdoors 🏞️
▪️ Advice on mask usage for lupus patients 😷
▪️ Steps to take if you need access to medications 💊
Have questions? We are here to support you. Please reach out to our team at [email protected] or call 310-657-5667 if you need help navigating available resources for lupus patients.
SoCal Patient Resources: Our hearts go out to everyone in our community affected by the devastating fires unfolding across Los Angeles. We stand with all of Los Angeles during this heartbreaking time. For all impacted in our community, we’re sharing resources for emergency assistance, shelter, transportation, medical care, prescription fulfillment, and more at: lupusla.org/wildfireresources
To our lupus patients, please prioritize your health. Smoke and poor air quality can exacerbate autoimmune symptoms, so please stay indoors whenever possible, use air purifiers if available, and wear masks to protect yourselves outside.
Together, we’ll get through this. Our thoughts are with all of our cherished families here in LA, and we are so grateful for the first responders working tirelessly to bring the fires under control.
🧡 Resources for SoCal Lupus Patients: lupusla.org/wildfireresources
Lupus LA's 2024 Year in Reivew
2024 has been a year of incredible growth, advocacy, and connection for Lupus LA! From groundbreaking Live Expert Sessions to impactful community events and inspiring podcast episodes - we’ve worked tirelessly to empower and uplift our lupus community.
From expert Q&As to in-person conferences, we tackled key topics like CAR-T Therapy and lupus nephritis, launched new initiatives like our Teen Support Group and raised critical funds through unforgettable events like Light Up The Lanes and Cuisine For A Cause. ✨
Through it all, we celebrated the resilience of #lupuswarriors. Whether sharing stories on our award-winning podcast or propelling our new Patient Advocacy Panel, 2024 has been a year of inspiration.
This year, we hosted over 27 Live Expert Sessions and celebrated the voices of lupus warriors in 18 podcast episodes. We were honored with awards for our work and expanded access to life-changing resources for lupus patients.
We are honored to continue to be a place of support for patients worldwide, but none of this would have been possible without our incredible community. Together, we’ve raised awareness, connected countless patients to vital resources, and made a real difference.
Watch some of our 2024 Year in Review highlights below! 🧡
#LupusLA #YourStoryOurFight
Make an Impact in Just a Few Minutes 🧡
Want to help Lupus LA provide life-saving resources to patients in need? It’s easier than you think. By starting your own social media fundraiser, you’ll raise both awareness and funds for critical programs like our Emergency Grant Program, which helps lupus patients with medical costs, treatments, and essential living expenses.
Starting is simple:
✔️ On Instagram: Tap the + to create a post or story, select “Add Fundraiser,” and choose Lupus LA.
✔️ On Facebook: Go to Fundraisers in the menu, click “Raise Money,” and select Lupus LA.
Share why this cause matters to you, set your goal, and spread the word. Together, we can ensure no one fights lupus alone.
Ready to get started?💻
#LupusLA #YourStoryOurFight
#LupusAwareness
New Year's Vision Planning with a Chronic Illness
What if your New Year’s vision wasn’t about doing more, but about becoming more of who you want to be?
For those living with #chronicillness like lupus, the pressure of New Year’s resolutions can feel overwhelming. The unpredictability of symptoms and medical appointments makes traditional goals challenging, but what if this year wasn’t about doing more?
dr.blied - licensed psychologist, lupus patient, and Lupus LA Medical Advisory Board Member - led a powerful New Year’s Vision Planning Workshop designed to help those living with a chronic illness embrace this mindset. 🧡
It’s not about piling on more expectations; it’s about self-compassion and intentionality as you step into the year ahead.
💡 Watch the full workshop: https://youtu.be/P9vLEhtgvjQ
January 2025 Lupus Support Groups
Are you looking for a space to connect, share, and grow with others who understand life with lupus? Join one of Lupus LA’s January Virtual Support Groups to find encouragement, resources, and community!
Our support groups are here for everyone - whether you’re facing a flare or feeling great. Even if you’re thriving, attending to offer your story and support could make a huge impact on someone else’s journey.
📲 Register today and join us virtually or in person for select groups. Visit lupusla.org/supportgroups for details.
#LupusLA #YourStoryOurFight
#LupusSupport #Lupus
Happy Holidays from your Lupus LA family! On behalf of the staff and board of Lupus LA, we’re wishing our #lupus community a safe holiday week filled with moments of joy, peace, love and self care. ❄️
Sending love to all in the #lupus community. If you're in need of support during this season, we are here for you:
🧡 Attend one of our Virtual Lupus Support Groups: lupusla.org/supportgroups
🧡 Connect with our 1:1 Virtual Care Coordinator at [email protected]. 📧
#LupusLA #YourStoryOurFight
Shop to Support Lupus LA!
“I finally have insurance approval to start the next phase of IV treatments for this #lupusnephritis flare in January 2025.🫠 My poor kidneys are doing their best, this is my third acute nephritis flare over the span of ten years, and I have to remind myself daily what a resilient miracle this body of mine is. In the meantime, I’m just staying wired on high dose corticosteroids and barely sleeping, BUT at least every part of my life has been sorted and organized, all Christmas gifts are wrapped underneath the tree, my #moonface is giving me glowy tight skin, and my leisure wear game has grown exponentially with random purchases made at 4am. A holding pattern during an acute flare can be the toughest part, but you have to trust the process and believe you’ll be on the other side soon enough. Trudging ahead is still progress! To all my fellow warriors, let’s honor the fight we live every moment of every day and celebrate our #moonfaces and raise #lupusawareness. Get your “It’s Not Filler, It’s Prednisone” merch (designed by me and @misterkarate) at the link in my bio. All proceeds go to Lupus LA and help us support our #lupuswarrior community!” - Maurissa Tancharoen (Mo T Weeds)
Maurissa Tancharoen Whedon— writer, producer, lupus warrior and showrunner of ABC’s Agents of Shield —is turning the challenges of a lupus flare into an opportunity for awareness! After experiencing “moon face,” a common side effect of steroid treatments that changes facial appearance, Maurissa is leaning into the experience with humor, creativity, and advocacy. 🧡
Join Maurissa in making a difference for the lupus community! Shop the “It’s Not Filler, It’s Prednisone” collection and help raise funds to support Lupus LA’s mission to end lupus and provide critical resources for patients. 👉 Shop: bonfire.com/lupusla