You ready? #letsZOOthis #DystoniaZooDay
Our buddy pal Lolly Lardpop is ready for the 3rd Virtual Dystonia Zoo Day this Saturday, October 8th—join us! Sign up is free and you can support the event by making a donation. A limited number of t-shirts are still available. Get all the details here: https://letszoothis.swell.gives/ #letszoothis #dystoniazooday
Thank you Allergan, an AbbVie Company for returning as a Dystonia Zoo Day National Sponsor! Many thanks to Glen Curran, Vice President of US Therapeutics at AbbVie for this message of support for the dystonia community. Dystonia Zoo Day Season is August 18 – October 8, 2022 and includes both in-person and virtual events. To learn more and sign up, visit https://dystonia-foundation.org/events #letsZOOthis #dystoniazooday
Thank you Ipsen Biopharmaceuticals for returning as a Dystonia Zoo Day National Sponsor! Many thanks to Chris Watters, Vice President, Franchise Head, Neuroscience Business Unit at Ipsen North America for this message of support for the dystonia community. Dystonia Zoo Day Season is August 18 – October 8, 2022 and includes both in-person and virtual events. To learn more and sign up, visit https://dystonia-foundation.org/events #letsZOOthis #dystoniazooday
The confidence is contagious! Erinn Stimson is leading the E-Team at this Saturday’s Portland Dystonia Zoo Day. Join the fun and sign up for virtual and in-person Dystonia Zoo Day events at: https://dystonia-foundation.org/events
The Virtual Kick-Off Celebration is tomorrow, August 18 at 7pm ET/6pm CT/4pm CT.
DMRF extends our gratitude to National Sponsors: Allergan, an AbbVie Company; Ipsen Biopharmaceuticals; and Merz Therapeutics.
#letsZOOthis #dystoniazooday
Thank you Merz Therapeutics for returning as a Dystonia Zoo Day National Sponsor! Many thanks to patient advocate Jan Neutz for this message of support for the dystonia community. Dystonia Zoo Day Season is August 18 – October 8, 2022 and includes both in-person and virtual events. To learn more and sign up, visit https://dystonia-foundation.org/events
It’s World Elephant Day! A great day to register for the Virtual Dystonia Zoo Day Kick Off Celebration on Thursday, August 18 at 4pm Pacific/6pm Central/7pm Eastern (US). Sign up is free and the program will fill you in on all the ways you can participate in this year’s Zoo Day Season. We're so pleased our friend Lolly Lardpop is joining us once again for this year's festivities. Sign up here: https://letszoothis.swell.gives/ #letsZOOthis #dystoniazooday
Our BFF Lolly Lardpop made a very special zoo shirt to celebrate Dystonia Zoo Days! You can get your own (slightly less sparkly) Dystonia Zoo Day t-shirt by registering for an in-person event or purchasing one for Virtual Dystonia Zoo Day. Dystonia Zoo Day season is August 18 - October 8! Find your event and sign up at: https://dystonia-foundation.org/events #letsZOOthis #dystoniazooday --with Leslie Carrara-Rudolph
Special invitation from DMRF President Mark Rudolph to join us at an in-person or virtual Dystonia Zoo Day! New registrations for any in-person or virtual event between now and Sunday, August 14 will be entered into a random drawing for a bonus DMRF water bottle! Find events and register today: https://dystonia-foundation.org/events #LetsZooThis #dystoniazooday
DMRF extends our gratitude to National Sponsors: Allergan, an AbbVie Company; Ipsen Biopharmaceuticals; and Merz Therapeutics
🐶🐔🐱 All species welcome! Throughout the month of February you and your pet can join DMRF's Dystonia Pet Palooza. Once you register and send in a photo, your pet will be added to our Dystonia Pet Palooza Team page. Then, your friends and family can show their support by making a donation, sending comments, and taking action to help raise awareness. For a $10 registration fee all virtual Pet Palooza participants receive a "Thank You" package with items to help you raise awareness of dystonia. For $25, you will receive a t-shirt (includes shipping). More info here: https://dystonia-foundation.org/pet-palooza/registration/
Back by popular demand, "The Singing Chef" Andy LoRusso is hosting a LIVE online cooking demonstration on Friday, January 28, 2022 at 7:00 PM Central Time. Participants will cook and sing along with Chef Andy as they prepare a delicious meal of Lemon Spaghetti and Pumpkin Ricotta Cheesecake. Tickets are $20 and registration is limited. After you register, you will receive an email with instructions for how to watch, cook, and sing along. Download the ingredients list and recipe from the registration page. Proceeds support Dystonia Medical Research Foundation (DMRF). The Singing Chef Andy LoRusso is ALSO donating a portion of proceeds from his Signature Sauces to support DMRF. Use promo code DMRF to save $5 on your order. Register today to save your spot for Cooking for a Cure and find links to order The Singing Chef Signature Sauces at: https://dystonia-foundation.org/get-involved/events/dystonia-cooking-for-a-cure-registration/
The DMRF was able to accomplish so much in 2021! We were able to pursue promising research breakthroughs while working to keep the community connected and people safe. We feel strongly that no one should have to face dystonia alone—keeping our community connected is an effort we are incredibly proud to lead, because we know how important staying informed and maintaining social relationships are to health and well-being. DMRF Executive Director Janet Hieshetter offers a special message of gratitude to our supporters and shares highlights from the year.
Join us for dinner! Back by popular demand, Andy LoRusso "The Singing Chef" is hosting a LIVE online cooking demonstration on Friday, January 28, 2022 at 7:00 PM Central Time. Participants will cook and sing along with Chef Andy as they prepare a delicious meal of Lemon Spaghetti and Pumpkin Ricotta Cheesecake. Tickets are $20 and registration is limited. After you register, you will receive an email with instructions for how to watch, cook, and sing along. Download the ingredients list and recipe from the registration page. Proceeds support Dystonia Medical Research Foundation (DMRF). The Singing Chef Andy LoRusso is ALSO donating a portion of proceeds from his Signature Sauces to support DMRF. Use promo code DMRF to save $5 on your order. Register today to save your spot for Cooking for a Cure and find links to order The Singing Chef Signature Sauces at: https://dystonia-foundation.org/get-involved/events/dystonia-cooking-for-a-cure-registration/
Why is the DMRF important to you? Board Member Jon Davis supports DMRF because deep brain stimulation gave him the freedom to continue doing what he loves to do. You too can support DMRF's mission to find a cure at: https://dystonia-foundation.org
🔥🔥🔥 On the final day of our countdown to Virtual Dystonia Zoo Day, we’re in Indiana with the Fox family of “Team Aidan.” Mom Sunshine Fox is a DMRF Support Leader, legislative advocate, and co-organizer of the Indy Hunt for a Cure scavenger hunt. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch has traveled across the country, arriving in a new city every day until tomorrow Saturday, September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Join us tomorrow for Virtual Dystonia Zoo Day beginning at 11AM Central time. A complete schedule is available on the event website. There is still time to sign up! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 We are in the final days of the countdown to Virtual Dystonia Zoo Day. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until this Saturday, September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Today we’re in Missouri with DMRF supporter Cynthia Hernandez of team “Sophia’s Squad.” Check in tomorrow to see where the torch ends up next – and get to know more of the wonderful people in the DMRF community. There is still time to sign up! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
We are grateful to the Virtual Dystonia Zoo Day National Organizing Committee for investing their time, energy, and creativity into this very special event on Saturday, September 25 to raise dystonia awareness and collect funds for urgently-needed medical research toward a cure. Committee member Ed Cwalinski leads team “Twist of Ed.” He is a Support Leaders, co-organizer of the Pittsburgh Zoo Walk, and member of the Dystonia Dialogue Editorial Board. Sign up to join us, and remember all team donations are eligible to be matched. Sign up for Virtual Dystonia Zoo Day for free and/or donate here: https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 We are 3 days away from Virtual Dystonia Zoo Day! Today’s torch hand off goes to DMRF Support Leaders Shanna and Brad Schmitt of team “Movers & Shakers 2021.” Shanna is a member of the National Organizing team, and the couple are also legislative advocates and co-organizers of the Twin Cities Dystonia Zoo Walk. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until this Saturday, September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Check in tomorrow to see where the torch ends up next – and get to know more of the wonderful people in the DMRF community. There is still time to register to join us for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 Are you planning to join us for Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation? There is still time to sign up. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until it will ultimately reach DMRF President Art Kessler to kick-off the festivities on Saturday, September 25. Today, day 21 of the countdown, the torch has landed in Colorado with DMRF Support Leader and Editorial Board Member Paul Kavanaugh. Check in tomorrow to see where the torch ends up next – and get to know yet another wonderful member of the DMRF community. Please join us for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. See link in bio to sign up and/or donate. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 We are in the final week of the countdown to Virtual Dystonia Zoo Day. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Today we’re in Spokane, Washington with longtime DMRF supporters and legislative advocates Denise and Bill Gibson. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is still time to sign up for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥🔥 Have you been following the Virtual Dystonia Zoo Day torch? Today we are in Alaska with longtime DMRF supporters Aidan Grasmick and his sister Mai. It’s day 19 of the countdown to Virtual Dystonia Zoo Day. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is still time to sign up for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 It’s day 18 of the countdown to Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation (DMRF). Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day between now and September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. The torch has landed in Oregon with DMRF Support Leader Dee Linde. In addition to leading her local support group and moderating the Dystonia & Deep Brain Stimulation Facebook group, Dee is organizer of the Portland Dystonia Zoo Walk, a legislative advocate, and member of the Editorial Board for the Dystonia Dialogue newsletter. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is still time to sign up for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 Today’s torch hand off goes to DMRF Support Leader Carol Flynn! It’s day 17 of the Virtual Dystonia Zoo Day countdown. Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is still time to sign up for Virtual Dystonia Zoo Day! Remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥🔥 The Virtual Dystonia Zoo Day torch has made it all the way to the west coast! Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day between now and September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. Today, on day 16, the torch has landed in San Diego with DMRF Support Leader and Brain Bank Liaison Martha Murphy. Martha founded the Dystonia Support & Advocacy Group of San Diego in 1987, and it is a tremendous resource to the local community and beyond. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is plenty of time to register to join us for Virtual Dystonia Zoo Day! Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 It’s day 15 of the countdown to Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation (DMRF). Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day between now and September 25, when it will ultimately reach DMRF President Art Kessler to kick-off the festivities. The torch has landed in Las Vegas with DMRF Support Leader Gina Saucedo. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is plenty of time to register to join us for Virtual Dystonia Zoo Day! Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
Thank you to our Virtual Dystonia Zoo Day National Organizing Committee for planning a terrific event on Saturday, September 25 to raise dystonia awareness and collect funds for urgently-needed medical research toward a cure. Committee Member Beth Farber has been a dystonia awareness advocate since before the DMRF was even founded! In honor of her late sister Shari Farber Tritt, Beth and her family have organized countless events including in recent years the annual Chicago Basket Bash. Beth is also a member of the DMRF’s Community Leadership Council. Please plan to join us for Virtual Dystonia Zoo Day, and remember all team donations are eligible to be matched! Sign up and/or donate here: https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 X-treme Apparel is a generous sponsor of Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation (DMRF). And! Mark Daus and his team do a phenomenal job producing t-shirts for this event as well as for local events held pre-Covid. Today, he and his crew in Arizona are the latest stop for the Virtual Dystonia Zoo Day torch as it makes its way across the country, arriving in a new city every day, until it reaches DMRF President Art Kessler to kick-off the festivities on Saturday, September 25. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is plenty of time to register to join us for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 Dr. William Dauer is a longtime trailblazer and influential mentor in dystonia research—just months ago he published his team’s latest groundbreaking discoveries about new therapeutic approaches to DYT1 dystonia. He is a past recipient of the DMRF’s prestigious Stanley Fahn Award and member of the Medical & Scientific Advisory Council. Today, he is carrying the Virtual Dystonia Zoo Day torch as it travels across the country, arriving in a new city every day until it reaches DMRF President Art Kessler to kick-off festivities on Saturday, September 25. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is plenty of time to register to join us for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
🔥 Are you planning to join us for Virtual Dystonia Zoo Day to benefit the Dystonia Medical Research Foundation? Throughout Dystonia Awareness Month, the Virtual Dystonia Zoo Day torch is traveling across the country, arriving in a new city every day until it will ultimately reach DMRF President Art Kessler to kick-off the festivities on Saturday, September 25. Today, day 12 of the countdown, the torch has landed in New Orleans with longtime DMRF supporter and Support Leader Don LeBlanc. Check in every day to see where the torch ends up next – and get to know some of the wonderful people in the DMRF community. There is plenty of time to register to join us for Virtual Dystonia Zoo Day! And remember all team donations are eligible to be matched by a generous anonymous donor. Visit https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
We are so grateful to the Virtual Dystonia Zoo Day National Organizing Committee for planning a fun and inspiring event on Saturday, September 25 to raise dystonia awareness and collect funds for urgently-needed medical research toward a cure. Committee Member Brian Smuda ( @thehaircutbook ) leads Team Summit View Scents, which is also a generous event sponsor. Please plan to join us for Virtual Dystonia Zoo Day, and remember all team donations are eligible to be matched! Sign up and/or donate here: https://letszoothis.swell.gives/ #letszoothis #dystoniaawarenessmonth
#}