CURE Epilepsy

12/27/2024

In this Seizing Life® episode, we speak with Dr. Elizabeth Gerard about unique concerns specific to women living with epilepsy. From puberty to menopause, we explore managing epilepsy through all stages of a woman’s life. Watch the episode now: https://www.cureepilepsy.org/seizing-life/epilepsy-in-women-challenges-concerns-and-considerations/

12/26/2024

This is Olivia Hoffman and her mentor, Dr. Avtar Roopra. Thanks to investments in innovative technologies, like AI, their research on a potential therapy for acquired epilepsies, although still pre-clinical, shows incredible promise. Next month, Olivia, will be defending her dissertation and starting on her own independent career as an epilepsy researcher. Comment below to show her she has the whole CURE Epilepsy community behind her!

And if you want to make an investment in technology and other research advances, there is still time to give in 2024. Together, we will fuel discovery: https://give.cureepilepsy.org/campaign/648156/donate

12/23/2024

Every individual’s experience with epilepsy is deeply personal and unique, shaped by their own challenges and triumphs. Arrey’s journey is a powerful reminder of this. Read Arrey's story here: https://www.cureepilepsy.org/personal-stories/arreys-story/

12/20/2024

For the Schneider family, epilepsy isn't 1 in 26 — it's 3 in 4. Adam and his two children all have epilepsy. While Adam and his son, Cameron are seizure-free, his daughter, Mila, has had a much harder journey. After years of struggling to control Mila's seizures, they found a combination of diet and medication that has helped her go from weekly seizures to just a handful over the past few years.

You can fuel the kinds of scientific breakthroughs that make it possible for families like the Schneiders to not be defined by epilepsy. Accelerate discovery in 2025 by giving to CURE Epilepsy today: https://give.cureepilepsy.org/campaign/648156/donate

12/19/2024

Congratulations to our newest research grantees! Their innovative ideas and groundbreaking research drives us closer to finding a cure and ensuring a future free from epilepsy.

🔬 Learn more about their exciting projects TODAY! https://www.cureepilepsy.org/our-research/grants-awarded/

Weill Cornell Medicine Massachusetts General Hospital Trinity College Dublin UCLA Boston Children’s Hospital The University of Utah St. Jude Children's Research Hospital University of Wisconsin-Madison

12/18/2024

It's never too early to learn about epilepsy! 🧸 🧠 Kindergartener Stella, who has epilepsy, and her mom hosted a used book sale to benefit CURE Epilepsy, raising almost $850 — but they didn't stop there. Stella and her teacher, Mrs. March, also invited our team to her classroom to answer her friends' questions about the condition.

Stella's friends asked great questions about epilepsy and our organization. Their curiosity and compassion was inspiring to see. We are so grateful to Stella, her mom Elaine, and the folks at Ravinia Elementary School for inviting us into their space and championing epilepsy research. 💜

12/12/2024

Access to enough patient health data remains a barrier for researchers in many rare epilepsies. If you have epilepsy with eyelid myoclonia ( ), check out our partnership with RARE - X and consider participating in this important project.

Jeavons Syndrome - Data Collection Program Jeavons Syndrome patients, families, and communities are excited to participate in data collection to expand and improve medical research. By coming to this site, you can begin the first step in making your patient information available to researchers. By g...

12/11/2024

At just five months old, Aditya was diagnosed with Infantile Spasms. After fighting for him, Aditya's family discovered the ketogenic diet and he has reached many physical and cognitive milestones.

Read Aditya's story: https://www.cureepilepsy.org/personal-stories/adityas-story/

12/10/2024

We had a wonderful time at our annual Reception on Sunday evening in LA. We celebrated the latest CURE Epilepsy grantees, networked with past awardees and young investigators, and heard moving remarks from former Marine Corps Captain Jack Somers about the impact research has had on his life. 🔬

12/08/2024

Thanks to Dr. Daniel Goldenholz for stopping by our booth at !

If you missed Dr. Goldenholz's fascinating Seizing Life episode earlier this year on and you should definitely check it out: https://bit.ly/3Zudbx7

12/07/2024

Early action could save your baby's brain from long-term damage. Know the signs of !

Infantile Spasms (IS) are a medical emergency. Infantile Spasms are a rare, but serious type of seizure, occurring in 1 in 2,000 children, which can cause ca...

12/07/2024

Exciting study out of about the use of to analyze home videos and identify .

The American Epilepsy Society welcomes its members and the broader epilepsy community to the AES Annual Meeting. While the primary purpose of the event is to provide top-quality medical education, share the latest scientific findings, and provide other career-building opportunities for our members,....

12/05/2024

CURE Epilepsy is proud to be a founding partner of PAME: Partners Against Mortality in Epilepsy and a Visionary Sponsor of the Family Day & Conference.

Our team had a wonderful time attending sessions, presenting on , and connecting with partners, friends, and grantees across the space. Thank you to PAME for your continued leadership; we are inspired by the strength of this community and the drive to push prevention of epilepsy-related mortality forward.

12/04/2024

In recognition of Infantile Spasms Awareness Week (December 1st – December 7th), today on Seizing Life® Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms. Watch the full episode on Seizing Life and explore other resources: https://www.cureepilepsy.org/seizing-life/scn8a-and-infantile-spasms-a-mother-and-researcher-pursues-a-new-potential-therapy/

12/04/2024

What a way to close out Epilepsy Awareness Month! Thank you for supporting epilepsy research on Giving Tuesday. We reached our $100,000 goal, including the $50,000 matching gift from our Epilepsy Awareness Month sponsor, SK Life Science. We're so grateful to you for fueling our mission and accelerating discovery. 💜 If you didn't get a chance to give yesterday, there is still time to be part of the movement! https://give.cureepilepsy.org/campaign/epilepsy-awareness-month-2024/c636316

12/04/2024

We’re getting SO close. We have currently raised $76,400 of our $100,000 goal! Give tonight to have your gift matched by SK Life Science, Inc.

My name is Channing, and I refuse to let epilepsy get in the way of pursuing my dreams. With my horse Perla by my side, I've become a champion athlete and epilepsy advocate. Some people have an aura or a warning sign when a seizure is coming on. I don’t, but my service dog, Bishop, can alert me to help keep me safe.

You can help other people with epilepsy achieve their dreams. Advances in science can mean new freedom. Please make your donation here: https://give.cureepilepsy.org/campaign/epilepsy-awareness-month-2024/c636316

12/03/2024

My name is Sasan and I am in 10th grade. My mother lives with epilepsy, so it has been a big part of my life. Even before I was old enough to go to school, my family taught me what to do when my mom has a seizure.

My internship has been focused on Research Development, and earlier this month I had the chance to volunteer at CURE Epilepsy’s NYC benefit. Here is a pic of my beautiful mom and our family there. Please make your donation here: https://give.cureepilepsy.org/campaign/epilepsy-awareness-month-2024/c636316

12/03/2024

Hi! My name is Elizabeth and I’m a CURE Epilepsy intern. Gratitude is something I’m committed to never losing sight of, and I want to share a note of gratitude to all of you. Thank you for making your donation to fuel research at the 🔗 in our bio.