GBS-CIDP Foundation International

10/16/2026

What does it mean to move forward with confidence? 💙

Join Rare in Motion on October 18 in New York City or via livestream for a one-day exercise and wellness experience created for people living with—or facing—mobility loss from rare neuromuscular diseases.

The event will bring together patients, caregivers, families, clinicians, and advocates for:
-Adaptive exercise and practical mobility strategies
-Honest conversations about emotional wellbeing
-Expert insights on symptoms, diagnosis, treatment, and the latest research
-Community connection and shared experiences

Featuring voices from across the rare disease community, including MMN patient and Health Haven founder Edward Gent and CIDP advocate Amanda Coronado.

📅 October 18, 2026
📍 New York City + Livestream
⏰ 5–8 PM EST

Learn more: https://meet.knowrare.com/rare-motion

10/16/2026

Research is helping us learn more about CIDP—and patients play an important role in moving that research forward.

Join us for CIDP Research & Clinical Trials: What Patients Should Know to learn what clinical trials are, what participation looks like, and what to consider before saying yes.

October 20th | 12PM ET

👉 Learn more & register: https://www.gbs-cidp.org/event/cidp-research-and-clinical-trials-what-patients-should-know/

https://www.gbs-cidp.org/event/cidp-research-and-clinical-trials-what-patients-should-know/

10/13/2026

A story worth seeing.

No One Rides Alone follows Clive Phillips, who lives with MMN, and four fellow veterans as they take on the Tour de MMN—tackling mountains, challenges, and the realities of Clive’s journey with MMN. 🚲

A story of resilience, friendship, and community.

📍 Boston • New York • Philadelphia • San Francisco • Los Angeles
🎟️ Screenings + tickets: https://makingthemostofnow.co.nz/no-one-rides-alone/

A portion of proceeds supports MMN research.

10/12/2026

¡Una Conferencia, Una Comunidad, Estés Donde Estés! 💙💚

¡Acompáñanos en la Conferencia Regional de GBS, CIDP y MMN en Ciudad de México el sábado 14 de noviembre!

📍 Participa de manera presencial o virtual desde cualquier parte del mundo. La conferencia será en español, brindándote la oportunidad de aprender, conectar y encontrar apoyo sin importar dónde te encuentres.

📅 14 de noviembre de 2026, a las 9:00 a. m.

🔗 Más información e inscripciones:

Explore trusted tools and resources to help patients, caregivers, and medical professionals better understand and manage GBS, CIDP, and MMN.

10/10/2026

Amazing day with our European members & healthcare experts!  Physical therapy, mental health experts and a panel discussion regarding plasma awareness all filled the afternoon!  Along with a good dose of compassion and, of course, our mission front and center - no one walks alone!

10/10/2026

EU Patient Conference Milan

10/10/2026

Here we go… kicking off our European Patient Regional Conference in Milan, Italy 🇮🇹

10/10/2026

Rare disease progress moves faster when we share what we know and look beyond one condition at a time. Join Lisa Butler, CEO and President of the Foundation, at the 2026 for three days of learning and collaboration across the rare disease community, Oct. 25–27 in Washington, DC.

Register:https://nordsummit.org/

10/09/2026

The film No One Rides Alone is coming to the United States on the East Coast! Find the closest city to you!