Doylestown Fibromyalgia & ME/CFS Community and Support Group

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Doylestown Fibromyalgia & ME/CFS Community and Support Group We are a peer-led Community & Support Group for those facing the challenges of Fibromyalgia & ME/CFS

While most of our members have Fibromyalgia (FMS) and/or Chronic Fatigue Syndrome (ME/CFS), we also welcomes those with over-lapping, related, and similar conditions that involve chronic pain and/or fatigue. Including:
* Myofacial Pain Syndrome (MPS)
* Chronic Pain Syndrome (CFS)
* Chronic Lyme Disease
* Irritable Bowl Syndrome (IBS)
* Multiple Chemical Sensitivity (MCS)
* Raynaud's Syndrome,
* Ehlers-danlos (ED)
* Hoshimoto's
* Reflex Sympathetic Dystrophy (RSD)
* Gulf-War Syndrome, etc. FAMILY, FRIENDS, & CARE-TAKERS WELCOME
We also encourage the participation of family and friends, care-givers, and those who may not yet be diagnosed, but are still searching for answers to their health issues, as well as medical professionals and those just interested in learning more about these conditions. The DFC Community and Support Group's public page was created as another way for members and the general public to receive DFC news and updates about group meetings and activities, and to help them stay current on the latest news and articles on the net. We welcome you to also join our private Facebook Group where members can privately communicate, share, and support each other between meetings.

10/19/2026

Research suggests that hormones—chemical messengers that help regulate processes throughout the body—may play a role in both ME/CFS and in long COVID.

Therefore a review study has suggested that researchers should take more detailed hormonal measurements, including consideration of biorhythms, and subgroup participants appropriately based on s*x and hormonal status.

Read more: https://tinyurl.com/3e3rb3yy
Link to research paper (behind a paywall): https://tinyurl.com/yckfv7bp

10/19/2026

Did you know that chronic pain is the theme of World Menopause Day 2026? For women living with fibromyalgia, the connection between menopause and chronic pain is an important conversation.

A new White Paper from the International Menopause Society highlights how hormonal changes, sleep disturbances, nervous system changes, and other factors may influence pain during midlife.

It also brings attention to something many women already know firsthand: chronic pain is too often overlooked or inadequately treated.

We are encouraged to see greater attention being given to women's pain and the need for more research and individualized care.

Have you noticed changes in your fibromyalgia symptoms during perimenopause or menopause? We'd love to hear about your experience.

📖 Research: Chronic pain at midlife, Climacteric (2026) - https://pubmed.ncbi.nlm.nih.gov/42714958/

National Menopause Foundation, Inc.

10/19/2026

Symptom Saturday: Orthostatic intolerance, a debilitating and often under-recognised issue for people with ME/CFS, refers to when the body fails to properly compensate for moving to an upright position, resulting in symptoms such as lightheadedness, fatigue, palpitations, and weakness. For many living with ME/CFS, orthostatic intolerance drastically restricts everyday activities. https://tinyurl.com/OIsymptomsat

10/02/2026

💜 👻 Join us TONIGHT for our Virtual Support Meeting! 💀 💜
▪️WHEN: Friday, October 2, 2026
▪️TIME: 7 to 9 PM EST
▪️WHEN: Zoom

HOW TO JOIN:

The Zoom Invite Link was posted this morning in two locations.

🎃 (1) If you're signed up for our Meeting Reminders list, check your inbox! If you missed the 6am deadline, you can still subscribe to start receiving invites in your inbox next month --> https://bit.ly/DFCNewsletter

🎃 (2) Check our Private Facebook Group.
If you're not a member, you can still request to join. We review requests about 10 minutes before the meeting. --> http://bit.ly/DFCFacebookGroup

After you request to join, please check Messenger and answer the security question to avoid delays. We'll approve your request and message you with the link.

🚨 If you still need help, feel free to send us a message on this page or text Rebecca. Her number is available in the private group.
Hope to see you there! 😘

09/22/2026

ME us more than just feeling tired. 1 in 4 patients with ME will be housebound.

09/11/2026

We're live! Join us on Zoom!

09/11/2026

😎💜 Join us TONIGHT for our RESCHEDULED Virtual Support Meeting!💜🏖️🌊

▪️WHEN: Friday, September 11, 2026
▪️TIME: 7 to 9 PM EST
▪️WHEN: Zoom

HOW TO JOIN:
The Zoom Invite Link was posted this morning in two locations.

🔺 (1) If you're signed up for our Meeting Reminders list, check your inbox! If you missed the 6am deadline, you can still subscribe to start receiving invites in your inbox next month --> https://bit.ly/DFCNewsletter

🔺 (2) Check our Private Facebook Group.
If you're not a member, you can still request to join. We review requests about 10 minutes before the meeting. --> http://bit.ly/DFCFacebookGroup

⚠️After asking to join, please check Messenger and answer the security question to avoid any delay. We'll approve your request and send you a message with the link.

🚨If you still need help, feel free to send us a message on this page or text Rebecca. Her number is available in the private group.

Hope to see you there! 😘


I apologize for the late notice but I needs to reschedule the meeting for next Friday, Sept 11th. I woke up with migrain...
09/04/2026

I apologize for the late notice but I needs to reschedule the meeting for next Friday, Sept 11th. I woke up with migraine and can't get it tapped down.

09/04/2026

😎💜 Join us TONIGHT for our Virtual Support Meeting!💜🏖️🌊
▪️WHEN: Friday, September 4, 2026
▪️TIME: 7 to 9 PM EST
▪️WHEN: Zoom

HOW TO JOIN:
The Zoom Invite Link was posted this morning in two locations.

🔺 (1) If you're signed up for our Meeting Reminders list, check your inbox! If you missed the 6am deadline, you can still subscribe to start receiving invites in your inbox next month --> https://bit.ly/DFCNewsletter

🔺 (2) Check our Private Facebook Group.
If you're not a member, you can still request to join. We review requests about 10 minutes before the meeting. --> http://bit.ly/DFCFacebookGroup

⚠️After asking to join, please check Messenger and answer the security question to avoid any delay. We'll approve your request and send you a message with the link.

🚨If you still need help, feel free to send us a message on this page or text Rebecca. Her number is available in the private group.

Hope to see you there! 😘


08/10/2026

"Nobody feels normal, but everyone looks normal on paper." 💬

​Dr. Erin Nance (Little Miss Diagnosis) just released a video proposing a theory—the Cellular Barrier Permeability Theory (CBPT)—to explain the overlap between EDS, POTS, MCAS, and chronic systemic symptoms.

​She suggests that instead of single organ damage, signaling alarms triggered at fragile barrier sites keep the body stuck in chronic stress response.

​Does this "connecting the dots" concept resonate with your experience?

If you don't already follow her on YouTube, you should. She's a real breath of fresh air and a supportive member of the medical community.

​🔗 https://youtu.be/xQAqNL02v2o?is=y5qiUlUR0yCaA8nj

Enjoy the videos and music you love, upload original content, and share it all with friends, family, and the world on YouTube.

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Doylestown, PA
18901

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+12672616504

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