All the love for Amelia

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All the love for Amelia We wanted to create a space where friends and family could get updated information about Amelia.

This tough girl got to bust out of the hospital today! She still has to take it really easy so no trick or treat, no sch...
10/29/2026

This tough girl got to bust out of the hospital today! She still has to take it really easy so no trick or treat, no school or large gatherings and no exertion. She gets her stitches out in 2 weeks and then come up with a plan to slowly get back to normal!

Thank you for everyone who sent cards! They definitely brightened Amelia’s day🩷 After a rough night she was feeling up t...
10/29/2026

Thank you for everyone who sent cards! They definitely brightened Amelia’s day🩷 After a rough night she was feeling up to assembling some legos, putting on some cozy clothes and going on a little stroll down the hallway!

We just met with Dr. Mangano. He removed 3 screws that were loose and one small plate. With leaving the other hardware i...
10/28/2026

We just met with Dr. Mangano. He removed 3 screws that were loose and one small plate. With leaving the other hardware in he was able to keep her incision to about half of what it was last time🙌🏻 We asked how often he has had to go back in and remove hardware and he said “about once every 2 years and I do a lot of craniotomies” Our girl is extra special 😂 She has to be on antibiotics for 24 hours but could come home tomorrow depending on how she is doing! If you want to send her an e card I will share the link again!

Brighten a patient's day with a free personalized Ecard: birthdays, holidays, get well soon, jokes, activities, and more. Choose hand-delivered or emailed.

They just took her back! She is scheduled in the OR for 50 minutes. Amelia was in really good spirits and feeling extra ...
10/28/2026

They just took her back! She is scheduled in the OR for 50 minutes. Amelia was in really good spirits and feeling extra sassy this morning🩷 When she was going down the hallway to the OR she was listening to her favorite song, Your Name is God by Elevation Worship. Her favorite line is “El Shaddai, if you don’t worry, why should I?” She is the bravest girl I know!

Tomorrow is surgery day! Thank you so much to everyone who has sent cards, candy, gifts or showered us with other goodie...
10/27/2026

Tomorrow is surgery day! Thank you so much to everyone who has sent cards, candy, gifts or showered us with other goodies! We appreciate all of the love and support🩷 please keep our sweet girl in your prayers that she would have a peaceful night of sleep. She has really been struggling with her anxiety knowing what is coming tomorrow! I will be updating everyone on here throughout the day. If you would like to send an ecard to her while she is in the hospital I will share the link in the comments. I’m sure she would also love to see some pictures of “Amelia” shirts tomorrow!

Amelia is all set for surgery Wednesday morning at 9am🩷 We are excited to squeeze in some more fall festivities this wee...
10/23/2026

Amelia is all set for surgery Wednesday morning at 9am🩷 We are excited to squeeze in some more fall festivities this weekend before we start packing our bags!

We came home from vacation and headed straight to Children’s for pre-surgical blood work. Amelia was so brave especially...
10/11/2026

We came home from vacation and headed straight to Children’s for pre-surgical blood work. Amelia was so brave especially after having to be stuck 3 times to get a successful draw😅 This week she has an appointment with oncology, psychiatry and her pre-op physical.

Amelia’s surgery date is officially set for October 28! She is pretty bummed about having surgery again and also missing...
10/05/2026

Amelia’s surgery date is officially set for October 28! She is pretty bummed about having surgery again and also missing trick or treat 😩 They said to plan on a couple nights inpatient.

We met with the surgeon today and Amelia will be having surgery at the end of October or beginning of November. Although...
09/24/2026

We met with the surgeon today and Amelia will be having surgery at the end of October or beginning of November. Although surgery is what we were expecting it’s still tough to hear. Amelia has some pretty big feelings about shaving part of her head again and having to stay at the hospital for a few days. She has really struggled being back at school full time so I’m a little anxious what that will look like when she is off and has to go back😬 We should have a definitive surgery date in the next 2 weeks.

Today was MRI day! Dr. Mangano wanted a full picture of what was going on before we meet with him next week. Amelia’s br...
09/19/2026

Today was MRI day! Dr. Mangano wanted a full picture of what was going on before we meet with him next week. Amelia’s brain is still looking good so the only thing that needs to be addressed are her loose screws🙌🏻 She woke up to a beautiful bouquet of flowers from a sweet neighbor and then got to pick a special prize for being so brave today! These hard days are so much easier knowing we are surrounded with so much love🩷

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