Bennett’s Story

10/26/2026

💙BENNETT’S UPDATE 💙

Bennett is back home! They had such a good trip all the way around! 🥹💙 We’ve been SUPER busy since getting home, so we’re finally getting a chance to sit down and share an update on everything going on with our boy!

First things first, his new KAFOs are PERFECT, and he is absolutely ROCKING them! 🥹💙 His doctors were so pleased with how he is doing, and we are so happy to have equipment that fits him just right and helps him continue working toward his goals!

While in South Carolina, his doctors also noticed that his right leg is slightly longer than his left. Because of this, we’ve added lifts to his shoes to help accommodate the difference. We’ve also been instructed to really focus on stretching him every day, especially before therapy, to help stretch and lengthen his left side and get his legs as close to even as possible.

We also have an appointment here in Louisiana to get him fitted for a Benik brace for his back, which will provide additional support while he is standing and working on his mobility. 💙

As of right now, Bennett will be heading back to South Carolina again in February to see his doctors and discuss surgery. We are currently talking about a left thumb release and, more than likely, foot surgery to release his toes during that trip. 🏥💙

There are more surgeries that may be needed down the road, including a right thumb release and a bone rotation surgery on his upper right arm, similar to what he has already had done on his other arm. His doctors are also keeping an eye on his hip, so we’ll continue doing everything we can at home to help with his positioning, stretching, standing, and overall progress.

And because no Bennett trip would be complete without a little unexpected adventure… 😂🤦🏻‍♀️

While they were in South Carolina, his mawmaws had to make a trip to the ER because his G-tube accidentally got pulled out! Of course, Momma (me 🙋🏻‍♀️) forgot to pack the extra G-tube supplies, so they didn’t have what they needed to put it back in. 🤦🏻‍♀️😂 Needless to say, an ER trip got added to their South Carolina adventure!

BUT WAIT, THERE’S MORE! 🤣 They ALSO got locked out of their hotel room and had to sit and wait! Between the G-tube mishap, the ER visit, and getting locked out of the hotel, those mawmaws definitely earned themselves a vacation after this trip! 😂💀

SO. MUCH. FUN. 🤣🤣 Always an adventure with Bennett! You truly never know what’s going to happen next with this boy! 💙😂

💙 NOW, ON TO A LITTLE UPDATE ON THE NEUROLOGICAL SIDE OF THINGS. 💙

Last week, Bennett had a one-hour EEG, and we recently received the results from his doctor during a Zoom appointment. His doctor told us that some activity showed up on the EEG again. However, because Bennett was moving around quite a bit throughout the test, they aren’t 100% sure exactly what the activity was.

For now, she wants to continue him on his daily seizure medication since he hasn’t had any more episodes since his very first one. We are so thankful that he hasn’t had another major episode, but this is still something we’re trying to understand as we navigate this new part of his journey.

As of right now, Bennett officially has a new diagnosis of “seizures” added to his growing list of diagnoses. Since we don’t yet know exactly what type of seizures he may be having, that is the diagnosis we are working with for now.

One thing we’ve been a little concerned about is the possibility of absence seizures. Bennett will sometimes stare off into space for a few seconds, and he tends to do this pretty often. We don’t know for sure if these moments are seizures or simply him zoning out, so we’re keeping an eye on them and will continue discussing our concerns with his doctor. Of course, knowing Bennett, he could also just be ignoring us because he doesn’t feel like listening! 😂💙 That boy definitely has a mind of his own!

The good news is that we do not have to do the 48-hour EEG for now. We will follow up with his doctor in about a month to discuss everything and determine what the next steps will be.

It’s a lot to take in between his orthopedic needs, possible surgeries, equipment, therapy, and now navigating this new seizure diagnosis. Some days, it feels like we are constantly juggling appointments, waiting on answers, and trying to figure out what comes next. But we keep taking it one day at a time and trusting the amazing team of doctors who continue to help us navigate it all. 💙

Through it all, Bennett continues to amaze us. He works so hard, faces so many challenges, and still manages to bring so much happiness and light into the lives of everyone around him. We are beyond proud of this boy and will continue to fight for him, advocate for him, and give him every opportunity possible. 🥹💙!

One appointment at a time. One challenge at a time. One milestone at a time. One adventure at a time. We’ve got this, sweet boy. 💙

10/15/2026

BENNETT’S LATEST UPDATE 💙

We’ve had quite a busy week with our sweet boy, so here’s a little update on everything going on with Bennett!

🧠 NEUROLOGY UPDATE:
Last week, Bennett saw a new neurologist for a second opinion regarding his seizure activity. She wants to be very thorough and make sure we aren’t missing any possible activity, so the plan is to start with another 2-hour EEG to see if they pick up on anything.

If the 2-hour EEG comes back without any abnormalities, we’ll move forward with a 48-hour outpatient EEG. We’re praying this will give us some more answers and a better understanding of what is going on with his little brain. Depending on the results, this will also help determine whether Bennett needs to continue taking his daily medication. 🙏🏼💙

🦿 SOUTH CAROLINA UPDATE:
Bennett traveled to South Carolina again with his two Grandmaws Tuesday night, and they had a FULL day yesterday! He had his POPS appointment where he got his new KAFOs and AFOs — and I have to say, they are pretty dang cool! 😍🦿

He also had several therapy sessions yesterday and worked hard like the little fighter he is! During one of his sessions, they adjusted and fixed his arm and wrist splints so they fit him better and, most importantly, so he can’t keep getting out of them by himself like the little stinker butt he is! 😂🤦🏼‍♀️This boy is ALWAYS trying to figure out a way around his equipment!

And speaking of therapy, we have some BIG changes coming for our big boy! 🥹💙

For his therapy at home, we extended our trial with his power chair, so he is still getting to work with it during therapy and learning how to use it. We are also currently doing a trial with a gait trainer, and we will be getting a gait trainer of his own here soon too! 🥹🦿

Watching him work toward more independence and seeing all of these new possibilities opening up for him is absolutely incredible. Big changes are coming for our big boy! 💙

💪🏼 TODAY’S UPDATE:
Today, Bennett saw his lower extremities doctor, and she said Bennett looks AMAZING! 🥹💙 Hearing those words makes this mama’s heart so happy after everything he has been through.

He will also be getting a new Benik brace vest in the near future to give him some extra support while standing. And, of course, he has some more therapy sessions today because this boy never stops working! 💪🏼

🦿 THE WALKING TALK:
Bennett’s upper extremities doctor is still VERY determined that Bennett will be walking in the future! 🥹💙 She is pretty determined that she wants to see him walking in a gait trainer by the time he reaches kindergarten!

Now, Bennett will be in Pre-K 3 for a few more years, so thankfully, we still have some time! And while we are incredibly hopeful, we also don’t want to get our hopes too high. At the end of the day, a lot of this is going to come down to Bennett, how hard he works, and how hard we can push him. 💙

We’ll continue encouraging him, pushing him, celebrating every tiny accomplishment, and letting him show us what he is capable of. We know better than anyone that Bennett has a way of surprising us! 🥹💙

Tomorrow, Bennett will see his upper extremities doctor, and they will work together to come up with a game plan for his future visits and surgery plan moving forward. We’ll hopefully have a better idea of what the next steps will look like for him.

After that, he’ll have a couple more therapy sessions before wrapping up his week in South Carolina and getting ready to travel back home! 🏡💙

And while all of this is going on in South Carolina, Mama is back home with THREE sick siblings! 😅🤧 We are over here doing everything we can to get everybody better and back on their feet before our Bennett comes home! We’ve got to get this house healthy and ready for our big boy! 💙😂

So many appointments. So many therapies. So much equipment. So many decisions. And SO many unknowns.

But also… SO many possibilities. 🥹💙

We are SO proud of you, Bennett! You continue to amaze us with your strength, determination, and that sweet smile of yours. 💙

Please continue to keep our boy in your prayers — especially that these upcoming EEGs will give us the answers we’ve been praying for, that his doctors will have wisdom as they make decisions for his future, and that Bennett will continue to work hard and show everyone just how capable he truly is. 🙏🏼💙

Keep fighting, buddy. We believe in you! 💙🦿✨

💙

09/12/2026

Bennett is absolutely LOVING school! 🥹💙 It has been so sweet watching him enjoy his time there, learn new things, and spend time with his friends and teachers. We are so proud of him!

We’ve also been spending lots of time with family lately, making memories and enjoying some extra family time. And, of course, we’ve been loving our time at church. 🙏🏼💙

As for Shriners, we’re having to push our next trip back a few weeks because one of the pieces needed for Bennett’s KAFOs was on back order. Rather than making separate trips, we’ll be combining our September and November trips into one trip in October! 🥰

We’re a little disappointed about the change in plans, but we’re thankful everything is working out and that we’ll be able to get everything taken care of during our October trip.

For now, we’re soaking up all these sweet moments with our boy and celebrating every bit of progress along the way. 💙✨

Keep cheering for Bennett! 🥹💙

08/20/2026

🍎 ✏️ 📚 🚌 🖍️ 🎒 📓 ✨ 💙

Year ✌🏼 of Pre-K for our big boy! 💙📚

Bennett is officially back for his second year of Pre-K, and we’re so excited to see what this year has in store for him! 🥹

Another year to learn, grow, make memories, build friendships, and continue gaining more independence. He has grown SO much over the last year, and his little personality just keeps getting bigger and bigger. 😂💙

We’re praying for a year full of growth, new accomplishments, lots of fun, and people who continue to love and encourage him every step of the way.

Go shine, Ben Ben! We are so proud of you and can’t wait to watch you crush another year of Pre-K! 💙✏️

08/14/2026

BIG Bennett update! 💙

We have some exciting things happening in Bennett’s world lately, and we are SO proud of him!

The biggest update—we are officially in a month-long trial with a POWER CHAIR! 🥹♿️ Bennett works with it twice a week during therapy, and he is doing AMAZING! He is catching on so fast, and his therapists are very excited about how well he’s doing with it.

Of course, our biggest hope is still to see Bennett walk one day. We will continue to push him, encourage him, and give him every opportunity to work toward that goal—and he will continue working SO hard to accomplish it. But we also don’t want to hold him back from the independence he can have right now while we work toward that goal. If a power chair gives Bennett the freedom to move around, explore, keep up with other kids, and be more independent, then we are going to give him what he needs. 💙 Walking will always be a goal, but so will giving him the fullest, most independent life possible along the way.

Another HUGE win has been his AAC device! Bennett is doing amazing with it and communicating with us more and more. We would love for him to be verbal one day and will continue working toward that, but for now, we will take communication however Bennett can give it to us!

And let me tell you… he has quickly learned that his AAC device can also be used to give everyone a piece of his mind. 😂 He can be a little sassy sometimes! He has told his therapists that he is “disappointed” in them for making him do things he doesn’t want to do. And after getting to play with six ducks during therapy, he made it VERY clear that next session he wants “11 ducks.” Not six. ELEVEN. 😂🦆 Apparently he has standards!

His personality has grown SO much over these last couple of months, and it has been one of the sweetest and funniest things to watch. Right now, one of our favorite things he does at therapy is when he sees one of his therapists coming toward him or talking to him. He’ll scrunch up his little nose, turn his head and try to hide—like if he can’t see them, then obviously they can’t see him either. 😂

He is definitely building such an amazing relationship with his therapists and has been enjoying his sessions so much lately. Seeing him comfortable enough to joke around, be sassy, show his personality and communicate what he does—and definitely DOES NOT—want makes my heart so happy. 💙

He also had the sweetest therapy day yesterday! He got to play with the most adorable miniature horse and the sweetest dog, and Bennett was giving them ALL the love. 🐴🐶💙

Even though he felt some type of way after the horse nudged him in the face trying to give him kisses. 😂 It hurt his little feelings, and after that he still wanted to play with her… he just wasn’t making contact with her anymore. 😂 He was basically like, we can still be friends, but from over here. He is SO funny and has such a big personality!

He’ll be starting school next week, too! 📚 He loved school so much last year, and we’re excited to get him back into his routine and see what this year brings for him.

Then, in just a few weeks, we’ll be heading back to South Carolina to pick up Bennett’s new KAFOs and AFOs, with a couple days of therapy squeezed in while we’re there!

It really feels like we’re entering such an exciting new chapter for Bennett—more communication, more mobility, more personality, and more independence. 🥹💙

There are still so many goals we’re working toward, and we’ll never stop pushing him to reach his fullest potential. But we’re also going to embrace every tool that gives him the ability to experience more of the world right now.

Keep going, Ben Ben. Keep working hard, keep showing everyone what you can do, keep being sassy…and hopefully somebody has 11 ducks ready for your next session. 😂🦆💙♿️

07/21/2026

Our hearts are so full! 💙

Every year, we are reminded just how incredible our community truly is. Because of your generosity, love, and support, families like ours are able to receive help that makes a real difference in the lives of children with special medical needs.

We are beyond grateful to the Tangipahoa Parish Fair Association, our amazing committee, every sponsor, volunteer, vendor, donor, and every single person who showed up to support Bennett’s Story. None of this would be possible without you.

Watching our community come together for these sweet babies is something we’ll never take for granted. Thank you for believing in our mission and for helping us bring hope to so many families.

💙 Save the date: May 1, 2027! We can’t wait to do it all again and make an even bigger impact together.

From the bottom of our hearts… thank you for being part of Bennett’s Story. 🩵📚⛰️

07/21/2026

07/21/2026

ISO: Size 2 tomato seat ! We are located in Holden La, willing to travel close!

07/18/2026

Bennett’s Story will be there tomorrow, and we’d love to see y’all! 💜

Come out and support sweet Brynn and her family as they continue their journey. There will be a car show, jambalaya/pastalaya cook-off, live music, auctions, raffles, and so much more—all for an incredible cause!

Stop by our tent, say hello, and help make a difference. Hope to see y’all there! 🩵

07/17/2026

Our boy had a great last day before heading home! We’ll see you soon, South Carolina!

We’ll be back in 6 weeks for Bennett to get his new KAFOs and to squeeze in a couple more therapy sessions while we’re there. We’re so thankful for the amazing team that continues to pour into our sweet boy. Every trip brings more progress, and we can’t wait to see what the next visit has in store! 💙