Jamiebug: Life After Transplant

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Jamiebug: Life After Transplant Life breathing with someone else's lungs since 2007. Cystic Fibrosis, Cepacia, Double Lung Transpla

This Christmas will officially be my 20th Christmas I’ll celebrate with my Donor Angels Lungs. I would like to do someth...
10/12/2026

This Christmas will officially be my 20th Christmas I’ll celebrate with my Donor Angels Lungs. I would like to do something to make this Christmas Special….

So I’ve looked into setting up a booth to raise awareness of Organ Donation and Transplants- would anyone want to help me cover cost of the booth fee (which will need like $60) and/or printing posters, banners and I’ll need to buy some swag to hand out. Or if you want to just come hang out, help set up, and clean up. Please comment. I’m not selling anything, just raising awareness and hopefully I sign up some new donors. Thanks! I’m hoping I can set up next year at a few more events.

10/08/2026

Living my best life at almost 19 years post transplant

Fall is approaching and I’m always sad to see summer coming to an end but this year has been a good year for me. I was a...
10/08/2026

Fall is approaching and I’m always sad to see summer coming to an end but this year has been a good year for me. I was able to go to a Clinton Anderson “Downunder Horsemanship” clinic in Vegas with my sister. Then my sweet husband took me to Maui. I have felt incredible. I’m so blessed to still be so active and healthy with my donor Angel lungs. With Winter not far off I will start my “hibernating” from germs. Lol.

For almost 19 years Lung Transplantation has changed my life and gave me so much time to be with my loved ones and chase dreams I never thought would be possible. If you are not yet, please consider being an Organ Donor.

I can’t believe 2026 is coming to and end so quickly…which means in December this year I will cross the milestone of 19 ...
09/04/2026

I can’t believe 2026 is coming to and end so quickly…which means in December this year I will cross the milestone of 19 years double lung transplant- which will put me at 20 years post transplant December 2027.

When I had my surgery the reality of living and being healthy at 20 years post db lung transplant was so unrealistic that I told Bryan that if I live 20 years out, that I would get a Porsche…. Both dreams were so outrageously unreachable.

My surgeon said I would get about 5 yrs and that would be a success…with my complicated case and the Cenocepacia burkholdia my survival statistics were EXTREMELY less than other cf patients who did not have the bacteria.

But here I am just a little over a year away from 20 years…now I don’t honestly want a Porsche… but instead I wish I could have this instead. lol.

*anyone know of an amazing barn/equestrian center builder haha 😂 Well a girl can dream. And yes I do want it pink 🥰 “Jamiebug Barn”

05/28/2026

Transplant Check up and a family church history experience. Four Generational Family trip. Grandma, Mom and dad, Nikki and me ) our spouses and great grandchildren Bodi & MJ. What a blessing and miracle to be together still. God is good. :5 UPMC Joseph Pilewski

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results an...
05/19/2026

Just one day before we go see my Dr Pilewski! I'm lucky I have such a brilliant doctor. I'm praying good test results and no signs of rejection.

Also a lip cancer updates photo…i can't believe believe how great it's healing…👄 can you even see it.

Warning ⚠️ Before and after pic is tough to look at. Progression of my lip.

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune sup...
04/21/2026

Quick cancer in my lip update: surgery day! This picture Is a little graphic but it’s the reality of what our immune suppression can do to our bodies. I’m grateful my meds are working to keep my lungs happy and cancer process their doing this job as well. . I’m waiting on a plastic surgeon to fix it all up. I’ll post another update as it heals.

04/01/2026

UPMC

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times. * my lip cancer is...
04/01/2026

We are having a beautiful early spring. I’ve been able to go out and play with my horses a few times.

* my lip cancer is scheduled for MOHS surgery on April 21st and the plastic surgeon will get it closed up (and looking beautiful) that same day.

*We will be in Pittsburgh in May for my annual follow up. I will be 18 years 6 months post transplant. Hopefully my lip will be healed up by the time we have to travel.

Enjoy some pics of my little pug and my fat horse Stardust 😊 I can’t believe she’s 4 this year. She is taller than me and is standing at 15hh and could still grow 😭 anyone know how to train her to lay down so I can get on her? 🤪

My PFT’s are steady and I’ve been feeling great.

I hate it when I’m right…. But biopsy results are in and it Is CANCER. I’ll need MOHS surgery and then a plastic surgeon...
03/11/2026

I hate it when I’m right…. But biopsy results are in and it Is CANCER. I’ll need MOHS surgery and then a plastic surgeon will hopefully fix it up nicely. At least I know my immune suppressants are working- skin cancer is better than dealing with rejection 🤪 maybe I can request the plastic surgeon to give me Angelina Jolene lips 👄

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Idaho Falls, ID

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