Livin' Through Liver Cancer

Livin' Through Liver Cancer On December 17, 2021, Ariana, our sweet 6-year old was diagnosed with stage four Hepatoblastoma.

Second to last four month scans today for Ariana. She passed all tests with flying colors! One more round of four mon...
03/11/2025

Second to last four month scans today for Ariana. She passed all tests with flying colors! One more round of four months and then she moves to six month visits. Next up, her annual visit to CO in May.

Ariana had her four month checkup today. This time she had a CT and an ultrasound and EKG. This girl loves to make ev...
11/12/2024

Ariana had her four month checkup today. This time she had a CT and an ultrasound and EKG.

This girl loves to make every medical personnel she encounters smile and laugh. She is quick witted and still so curious about every aspect of her appointments.

Ariana has decided when she grows up she wants to be a Childlife Specialist with a service dog. 🐕‍🦺 A perfect profession for her.

So thankful for another report of good health, a happy liver, and a chance to make that dream a reality.

An AMAZING woman, , has created an extraordinary experience for 78 cancer children and their families to attend the Sep...
09/06/2024

An AMAZING woman, , has created an extraordinary experience for 78 cancer children and their families to attend the September 14th Iowa Hawkeye football game.

September is Go Gold for Childhood Cancer Awareness, and we will all get to participate 'The Wave, from the other side,' to the children on the 11th floor.

Our family has never attended a game and we are so excited!

Check out the video she created to be played at the game. 💛💛💛

https://www.facebook.com/share/v/M8ifK5kLx4mBqAym/?mibextid=xfxF2i

Ariana had her 2 year end of treatment scans, blood work, and ultra sound today. Dr. D. reports she is healthy and eve...
06/28/2024

Ariana had her 2 year end of treatment scans, blood work, and ultra sound today.

Dr. D. reports she is healthy and everything looks perfect. Next scans are being pushed out to four months.

Two years down and three to go in the cancer world. The transplant side will be a life time journey and we will take it. She has life and for that we are grateful!

Ariana was able enjoyed softball for the first time this year. As she did with her medical journey, she was a fighter and a determined young lady to play hard. She enjoyed every second.

Ariana had her annual trip to CO for her liver transplant evaluation yesterday. We are so lucky to not only have an a...
05/15/2024

Ariana had her annual trip to CO for her liver transplant evaluation yesterday.

We are so lucky to not only have an amazing team here in Iowa, but in Colorado as well.

Dr. Boster is such a wonderful doctor. We love ways she talks and laughs with Ariana. She answers all my questions about the future with honesty.

Ariana had an excellent visit. Her liver continues to be healthy and growing well with her body.

Two years and many more to come! 🎉We are thinking and sending love to the donor family today. 🫶 We will always be th...
04/22/2024

Two years and many more to come! 🎉

We are thinking and sending love to the donor family today. 🫶 We will always be thankful for your kindness. Ariana is here because of you 💚

It has been a while, and that is a good thing!Ariana's new scans show no signs of cancer in her body and her AFP continu...
03/26/2024

It has been a while, and that is a good thing!

Ariana's new scans show no signs of cancer in her body and her AFP continues to

Two scans and three pokes don't even phase this cancer free girl. Ariana is alive and thriving in all aspects. Her AFP ...
12/19/2023

Two scans and three pokes don't even phase this cancer free girl. Ariana is alive and thriving in all aspects. Her AFP continues to be < 3. Two years post diagnosis we couldn't ask for anything more.

Happy Holidays!

08/18/2023

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Ariana had her three-month scans this week. We are happy to report all are clean, and her AFP continues to be
08/18/2023

Ariana had her three-month scans this week. We are happy to report all are clean, and her AFP continues to be

Physically she has changed 😍, but Ariana continues to be a very bright and strong young lady. Goodbye first grade! On...
05/30/2023

Physically she has changed 😍, but Ariana continues to be a very bright and strong young lady. Goodbye first grade! On to second grade and so much more 😊🎉

Last week Ariana had her U of I scans as well as her annual trip to CO to meet with the transplant team.As luck would ha...
05/26/2023

Last week Ariana had her U of I scans as well as her annual trip to CO to meet with the transplant team.

As luck would have it she started to get sick that Monday during her scans, but was well enough to make the trip to CO.

Due to the sickness she had some findings in her left lungs as well as some larger lymph nodes. Dr. D had warned us that the verbiage for the scans might read as such. I was waiting to see if we would get a call, but I'm happy to say no call. Her AFP (cancer marker) came back at 3, which had been consistent with past checks. 🥳

The CO team said they are very please with all the pictures (113 to be exact, Ariana was sure to count during the ultra sound 😊) that they took during visit. Her labs came back good.

Ariana is on her final days of first grade. She did really well for her first real year in school and is ready to head into second grade.

Coming up, labs in a month and new scans in three.

Have a wonderful summer!

One Year Transplantaversary a.k.a. Cancer Free Day!! 🥳🎉🎂Ariana has been doing so well. Growing hair and losing teeth and...
04/23/2023

One Year Transplantaversary a.k.a. Cancer Free Day!! 🥳🎉🎂

Ariana has been doing so well. Growing hair and losing teeth and making lots of friends. Her labs continue to be great and show no signs of rejection. Coming up, new scans for a continued report of good health. 🤞🍀💪

Thinking of the donor family as they hit there one year of their child passing. Without that liver we might be in a different situation. Every day we think about this family. Every time we hear Ariana's sweet giggles we think of this family that chose to give life at the time of sorrow in their lives. We will be FOREVER grateful to this family. ❤️ We send peace, love and healing to them on this difficult day. Stay strong you saved our little girl's life. 🙏🙏🙏

02/22/2023

Dr. Dickens called to tell us officially,
"She is in remission.'

To hear, 'remission' for the first time, is something amazing!

Ariana had her scans today. The MyChart scan report reads 'fine' and 'none' in each section. I will call that a clean ...
02/22/2023

Ariana had her scans today.

The MyChart scan report reads 'fine' and 'none' in each section. I will call that a clean report for a healthy little seven year old.

Just a few more months and this little lady will be one year cancer free.

This old lady made it 100 days in her first year in school! Ariana has been doing well. She has had illnesses, but her ...
01/27/2023

This old lady made it 100 days in her first year in school!

Ariana has been doing well. She has had illnesses, but her body has done well at fighting them off, and her blood levels have stayed in the normal range. 🥳 New scans coming up in February.

Today marks one year ago, diagnosis day. Although we are still awaiting official word from the doctor. I think it is sa...
12/17/2022

Today marks one year ago, diagnosis day.

Although we are still awaiting official word from the doctor. I think it is safe for Ariana to share some special news.

Happy Holidays! 🎄⛄

12/04/2022

We some unofficial news to share.

First the great news. The lessions (IA team and CT report) show that they are no longer visible! 🥳 Such great news. Only catch is CO said they never saw lessions just lymph nodes. IA doctor says those lymph nodes are necrotic meaning basically dead. If there was cancer there then they would look more fluid filled. We take this as a win and can breath a sigh of relief. As long as CO agrees.

Second news is about her lungs. When we did six month scans they had concerns but we're hoping it was infectious disease related (viruses/colds). They wanted to wait until early December (to get new scans) to see how they looked at that time. Well just from the doctor looking he said they look worse than before. We are still waiting on the MRI results to know more. Ariana has continued to have colds and coughs since the six month scans. I am cautiously optimistic for it to be infectious disease related .

Dr. Dickens said he wants to review everything with his team and the CO team and will let us know more in a week or so. I imagine that time will be a little longer since CO will have to have their people review the scans and have a meeting.

More waiting and more patience. Check got it.

I am so thankful that we are lucky enough to have two hospitals and a bunch of very smart humans in our corner.

Time will tell. Who knows maybe Santa will get to tell us. 🎅🤶

Have a wonderful week friends!

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Happy Thanksgiving from all of us to you! We will be forever grateful for all the kindness and love we received this last year. We hope you all have a day filled with laughter and love. Here is a sweet message from Ariana 🥰 💛💚❤️🌈🦃🥧

Ariana owns the runway! She is my Wonder Woman!! 🌟🦸‍♀️🫶

So fun! Ariana did great!! She said her heart was pounding so fast. ☺️⚾💪🫶

So good!

All smiles watching the tree fall 😁

Beautiful! ❤️❤️❤️

Ariana won third place in the tractor pull today! She was sad about that and then I reminded her that none of the other kiddos just had a liver transplant two months ago. In my book she got first 🥇😁💪 She has been doing well and is excited that next week is her final five days of chemo. Happy 4th y'all! 🇺🇲🎆🎇

The journey is not over but we hope that most of it is....

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