Amazing Avery - Our journey with PFFD

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Amazing Avery - Our journey with PFFD Updating everyone as we embark on the task of correcting Avery's leg length discrepancy

That little smirk and that wrap on her leg can only mean one thing.... time for a new AFO! πŸ‘πŸΌ Our girl is growing and mo...
10/07/2026

That little smirk and that wrap on her leg can only mean one thing.... time for a new AFO! πŸ‘πŸΌ Our girl is growing and moving on up 🦿 Avery was a champ today letting her new friends at ForMotion Clinic cast her leg so they can start making her new prosthesis. After 3 years of butterflies, she's requested something different this time around... πŸ©·πŸ˜‰πŸ©· Stay tuned!

A little late with Avery's annual update, but here we are. May 30th we went for her annual x-rays and checkup at Nationw...
07/22/2026

A little late with Avery's annual update, but here we are. May 30th we went for her annual x-rays and checkup at Nationwide Children's Hospital in Ohio. We were hopeful that her femur had grown enough to start the lengthening discussion, it has to be at least 19cm for the internal lengthening procedure, but unfortunately it only measured 15.67cm. So we are still just waiting for her to keep growing some more. We will go back for another checkup and x-ray in another year. πŸ¦‹

In the meantime, she has started to grow out of her current foot-on-foot prosthesis so it's time for a new one with a few upgrades. Avery's lifelong prosthetist, Doug, passed away in November which was hard for everyone, including Avery πŸ˜” She gets sad when we mention him and didn't want to even entertain the idea of seeing someone else... she would just say "I don't want someone else I want Doug" 😒 But today we had an appointment at ForMotion Clinic, the company that took over Doug's business, and it went well! Avery was comfortable and we liked the prosthetist we saw. So we're now in the process of getting her a "new leg" πŸ™‚ I'll post again when she gets her new hardware 🦿🩷

Happy 250th America β€οΈπŸ€πŸ’™πŸ‡ΊπŸ‡Έ
07/05/2026

Happy 250th America β€οΈπŸ€πŸ’™πŸ‡ΊπŸ‡Έ

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