Foundation for Ichthyosis & Related Skin Types, Inc.

11/03/2026

💙 HELPING FAMILIES, ONE ACT OF KINDNESS AT A TIME! 💙

Living with ichthyosis comes with daily challenges, and for many families, the financial burden of ongoing skin care, medications, medical supplies, and treatments can be overwhelming.

We are excited to share that applications are NOW OPEN for the Diya & Aliya’s Friends (DAF) Fund!

Made possible through the generosity of the Shahnaz Kraybill family and their friends, this special fund provides financial assistance to families around the world who have children under 18 living with ichthyosis.

Because every child deserves access to the care, supplies, and comfort they need. ❤️

✨ Who can apply? Children under the age of 18 living with ichthyosis, anywhere in the world.

✨ What can it help with? Financial assistance for lotions, medications, and other essential treatment needs.

📅 Application deadline: January 31, 2027

If your family could benefit from this support, or you know someone who might, please share this opportunity!

🔗 Learn more and apply here: https://firstskinfoundation.org/news-articles/diya-aliya-fund-announcement/

Sometimes a little help can make a BIG difference. Let's make sure families know this resource is available!

💙 Together, we are stronger.

10/30/2026

We are pleased to announce our latest eNews, October 30, 2026. This edition is for anyone interested in staying informed about the latest developments in ichthyosis and skin health. Stay updated to better support patients and advance research in this field. https://conta.cc/4slJmwL

10/29/2026

🛁 Bathing and Ichthyosis: Tips from an Expert!

What should you know about bathing when living with ichthyosis? 💙

Dr. Moise Levy, a member of FIRST's Medical and Scientific Advisory Board (MSAB), shares insights on bathing and ichthyosis in this quick video!

Watch now for helpful information from a trusted expert who understands the unique needs of our community.

▶️ Watch here: https://www.youtube.com/shorts/CQDh1nKF-VA

Have questions or tips about bathing with ichthyosis? Share them in the comments below!

10/28/2026

🌟 Ready to make a difference?

FIRST is launching its Emerging Leaders Program for young people ages 16–25! Bring your ideas, build leadership skills and help shape the future of the ichthyosis community through advocacy, fundraising and volunteerism.

📅 Applications are open through October 31, 2026!

Learn more and apply: https://firstskinfoundation.org/first-emerging-leaders/

10/21/2026

Major Research Milestone for ichthyosis and related skin types!

Northwestern University and Yale University will lead a new NIH-funded, $5 million national research consortium dedicated to rare inherited skin disorders. The Consortium for Hereditary Epidermal Differentiation Disorders (CHEDD) will bring together researchers, clinicians, and patient advocates to better understand these conditions, track how they progress, and advance potential treatments. FIRST is proud to contribute to this important effort, helping ensure that the voices and needs of individuals and families affected by ichthyosis are central to the research.

Read more here https://firstskinfoundation.org/news-articles/northwestern-and-yale-to-lead-new-nih-funded-national-consortium-for-rare-inherited-skin-disorders/

10/20/2026

🎓 UFIRST SCHOLARSHIP APPLICATIONS ARE OPEN!

The 2nd UFIRST Scholarship Cycle of 2026 is now accepting applications!

Thanks to the generous support of Beiersdorf, makers of Eucerin and Aquaphor, FIRST will award five $5,000 scholarships to help students affected by ichthyosis or a related skin type pursue their education during the Winter/Spring 2027 school year.

Eligible applicants may be pursuing post-secondary or graduate education at an accredited university, college, junior college, or trade school. And yes, even if you have received a UFIRST/Beiersdorf scholarship in the past, you may apply again!

📚 Five scholarships | $5,000 each
📝 Applications accepted online or by fax
📅 Winners notified by the end of November
🎓 Funds may be used toward tuition and/or fees
Don’t miss this opportunity to invest in your education and your future!

👉 Learn more and complete the application: https://firstskinfoundation.org/news-articles/2nd-ufirst-scholarship-cycle-now-accepting-applications/

10/16/2026

📣 WE’RE HIRING! Join the FIRST Team!

The Foundation for Ichthyosis & Related Skin Types (FIRST) is looking for a Part-Time Administrative Assistant to help support our mission of improving the lives of individuals and families affected by ichthyosis.

💻 Position: Part-Time Administrative Assistant (Remote, U.S.-based)
⏰ Hours: 10–15 hours per week

We’re seeking an organized, detail-oriented, and compassionate professional who enjoys keeping things running smoothly and making a difference behind the scenes.

What you’ll do:
✨ Support daily virtual office operations and communications
✨ Maintain donor records and CRM data
✨ Coordinate meetings, schedules, and logistics
✨ Assist with newsletters, patient resources, and community communications
✨ Help advance FIRST’s advocacy, education, and support initiatives

What we’re looking for: Administrative experience, proficiency in Microsoft 365, familiarity with DonorPerfect or a similar nonprofit CRM, excellent organizational skills and a passion for supporting individuals and families affected by rare skin conditions.

❤️ Want to put your skills to work for a meaningful mission? We’d love to hear from you!

📩 Apply today! Email Chris Boynton [email protected]

Please share this post with someone who might be a great fit!

10/15/2026

FIRST's latest eNews is now available, featuring essential insights on skin health and big announcements too. This edition emphasizes the importance of dermatological knowledge and its impact on patient care. We invite professionals in the field to explore these valuable resources and enhance their practice. https://conta.cc/4rPnEAL
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10/13/2026

FIRST Emerging Leaders is seeking passionate young individuals aged 16–25 to engage in leadership, advocacy and group-building within the ichthyosis community. This program offers hands-on experience, mentorship and networking opportunities to develop essential skills.

Apply by October 31, 2026, to be part of the future of FIRST.

https://conta.cc/3Uowucs

Email from Foundation for Ichthyosis & Related Skin Types (FIRST) Learn more       YOUR VOICE. YOUR IDEAS. YOUR IMPACT. Introducing FIRST Emerging Leaders Are you 16–25 and ready to get more involved

10/12/2026

As a follow-up to The National Conference, insights and connections remain invaluable.

Even if you didn't attend, we encourage you to explore these sessions presented by Sarah Dutton:





https://conta.cc/3UmJHm4https://conta.cc/3UmJHm4

Email from Foundation for Ichthyosis & Related Skin Types (FIRST) Follow-Up Resources from National Conference Hi FIRST Community, The National Conference may be over, but the conversations, connectio