iCAN Research

iCAN Research International Children's Advisory Network (iCAN) iCAN is a worldwide consortium of KIDS Teams, Young Person's Advisory Groups (YPAGs), and similar organizations working together to provide a voice for children and families in pediatric medicine through synergy, communication, and collaboration.
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Theresa Shalaby from Synchrogenix and Amy Ohmer from iCAN will be presenting at the DIA2021.  The session number is 409 ...
06/22/2021
DIA 2021

Theresa Shalaby from Synchrogenix and Amy Ohmer from iCAN will be presenting at the DIA2021. The session number is 409 SL and the presentation will be held on 7/1/2021 10:00:00 AM. The title of the session is "Recent Developments and Strategies in Pediatric Drug Development Documentation." We hope to see you there!

In case you haven't already registered, be sure to visit the DIA to register in advance at https://www.diaglobal.org/Flagship/DIA-2021

#synchrogenix #DIA2021 #pediatrics #iCAN #iCANMakeADifference

For more than 50 years, DIA has provided the world’s largest global, neutral stage for life science professionals to come together and address healthcare challenges. Driven by purpose and focused on the future of health, the stakeholders who gather at our Global Annual Meeting advance science and ...

It's Day 2!  Come and shop until you drop at Amazon Prime Day through the charitable program of Amazon Smile for the Int...
06/22/2021

It's Day 2! Come and shop until you drop at Amazon Prime Day through the charitable program of Amazon Smile for the International Children's Advisory Network. We appreciate your support! https://smile.amazon.com/gp/chpf/homepage/ref=smi_chpf_redirect?ie=UTF8&ein=84-3456678&ref_=smi_ext_ch_84-3456678_cl

#iCANMakeADifference #ican

It's Day 2! Come and shop until you drop at Amazon Prime Day through the charitable program of Amazon Smile for the International Children's Advisory Network. We appreciate your support! https://smile.amazon.com/gp/chpf/homepage/ref=smi_chpf_redirect?ie=UTF8&ein=84-3456678&ref_=smi_ext_ch_84-3456678_cl

#iCANMakeADifference #ican

We hope you can join this live session which will highlight the need for kids to be at the core of their own research, w...
06/22/2021
Patient Engagement Synapse - Event - Taking action to engage paediatric and young patients in medicines R&D

We hope you can join this live session which will highlight the need for kids to be at the core of their own research, what the existing gaps are & how to support the goal to engage youth in #medicines R&D. Our very own KIDS Barcelona and many others will be sharing their support of kiddos in clinical research around the world.

#RegisterNow: https://bit.ly/2TkfrZ9

· iCAN video: take a look at this short video from the International Children’s Advisory Network (iCAN) where their community sponsors Multi-Regional Clinical Clinical Trials (MRCT Center) of Brigham and Women’s Hospital and Harvard, discuss the importance of paediatric involvement in clinical research. https://drive.google.com/file/d/1YgkqwczMANKxjje6BlL21ikx8-aVQHxw/view?ts=60d07e1d

· EPF video: check out this informative video from the European Patients’ Forum (EPF) Youth Group. This group is made up of young patient representatives from various EU countries between 15 – 29 years of age and who have chronic conditions. They work together to defend the rights of young patients with chronic diseases. https://www.youtube.com/watch?v=cL9wKgqdMf0&t=10s&ab_channel=EuropeanPatients%27Forum

· YEAH video: watch this video presentation about the Youngster Engagement in Health (YEAH) project in 2020, a European initiative run by the Sant Joan de Déu (SJD). The goal of this project was to educate young people so they can participate in health research and be actively involved in projects. Children and young people have the right to receive the best possible medical care and have a free say in matters that affect them. https://www.youtube.com/watch?v=l62thV066DI&ab_channel=YEAH2020

#YoungPatientsRights #PEOF #iCAN #iCANMakeADifference Eupati UK iCAN Research

The patient’s voice is key in medicines research & development. Children and young people have the right to have a say and contribute to any activity…

Today is the day!  Shop for a cause while enjoying Amazon Prime Day Savings... Shop at  smile.amazon.com/ch/84-3456678 a...
06/21/2021

Today is the day! Shop for a cause while enjoying Amazon Prime Day Savings... Shop at smile.amazon.com/ch/84-3456678 and Amazon will donate to the International Children's Advisory Network, Inc. - thank you for helping our youth members!

#iCAN #iCANMakeADifference #PrimeDay2021 #PrimedDayCharity
#AmazonSmile

Today is the day! Shop for a cause while enjoying Amazon Prime Day Savings... Shop at smile.amazon.com/ch/84-3456678 and Amazon will donate to the International Children's Advisory Network, Inc. - thank you for helping our youth members!

#iCAN #iCANMakeADifference #PrimeDay2021 #PrimedDayCharity
#AmazonSmile

Calling all kids ages 8-18 - TODAY JUNE 1st - is the last day to register to get a free tshirt and conference materials ...
06/01/2021
International Children's Advisory Network | ICAN Research

Calling all kids ages 8-18 - TODAY JUNE 1st - is the last day to register to get a free tshirt and conference materials mailed to your home for the "Jumo Health Presents the 2021 Virtual iCAN Summit" !!! Register today at www.icanresearch.org #iCAN2021Summit #iCAN #ICANMakeADifference

International Children's Advisory Network | ICAN Research

Happy birthday to Dr. Charlie Thompson, our iCAN Founder!  We hope you have a wonderful day!  #iCANMakeADifference #iCAN
05/05/2021

Happy birthday to Dr. Charlie Thompson, our iCAN Founder! We hope you have a wonderful day!

#iCANMakeADifference #iCAN

Happy birthday to Dr. Charlie Thompson, our iCAN Founder! We hope you have a wonderful day!

#iCANMakeADifference #iCAN

KIDS register by June 1 to receive conference materials with activities for the week of the iCAN Summit. www.icanresearc...
05/03/2021

KIDS register by June 1 to receive conference materials with activities for the week of the iCAN Summit.

www.icanresearch.org

KIDS register by June 1 to receive conference materials with activities for the week of the iCAN Summit.

www.icanresearch.org

iCAN Parents - with a big heart of gratitude, I want to say thank you to Kirsten Sherman Cervati for serving as the iCAN...
03/15/2021

iCAN Parents - with a big heart of gratitude, I want to say thank you to Kirsten Sherman Cervati for serving as the iCAN Parent Council Chair for the past two year cycle. With the conclusion of the term, it is now time to open the role up to another parent!
This volunteer opportunity requires only 1-2 hours per month and we work around your schedule as parents. The role provides an inside look at iCAN and your voice as a parent helps to direct many of the projects and events that we support. Read on to learn more and let us know if you would like to help! https://www.icanresearch.org/post/ican-seeks-new-parent-council-lead-for-2021-2023
Thank you!
Amy, iCAN Director

iCAN Parents - with a big heart of gratitude, I want to say thank you to Kirsten Sherman Cervati for serving as the iCAN Parent Council Chair for the past two year cycle. With the conclusion of the term, it is now time to open the role up to another parent!
This volunteer opportunity requires only 1-2 hours per month and we work around your schedule as parents. The role provides an inside look at iCAN and your voice as a parent helps to direct many of the projects and events that we support. Read on to learn more and let us know if you would like to help! https://www.icanresearch.org/post/ican-seeks-new-parent-council-lead-for-2021-2023
Thank you!
Amy, iCAN Director

iCAN is working on a very important project in which we are capturing youth expertise and experiences on clinical resear...
03/08/2021

iCAN is working on a very important project in which we are capturing youth expertise and experiences on clinical research through recorded videos. The goal of this project is to provide a curriculum for other kids (and adults) that want to better understand clinical research and what that means to kids.

We would like to record their own individual responses. Kids can choose to answer one question, or all of the questions. The responses can be recorded at home or sent to Claire Destrampe at [email protected]

If you have interested kids that would like to participate, please us know. Claire is recording this week and can capture as many kids as want to participate. Just reach out and let us know!! Thank you!!!

iCAN is working on a very important project in which we are capturing youth expertise and experiences on clinical research through recorded videos. The goal of this project is to provide a curriculum for other kids (and adults) that want to better understand clinical research and what that means to kids.

We would like to record their own individual responses. Kids can choose to answer one question, or all of the questions. The responses can be recorded at home or sent to Claire Destrampe at [email protected]

If you have interested kids that would like to participate, please us know. Claire is recording this week and can capture as many kids as want to participate. Just reach out and let us know!! Thank you!!!

CHOC's MI3 is currently accepting applications for their summer internship through the end of the month. This is an amaz...
02/16/2021

CHOC's MI3 is currently accepting applications for their summer internship through the end of the month. This is an amazing opportunity for college students interested in healthcare, data science and biomedical engineering fields.

https://www.choc.org/medical-intelligence-and-innovation-institute/mi3-summer-internship-program/

#mi3 #icanmakeadifference #ican #internship

CHOC's MI3 is currently accepting applications for their summer internship through the end of the month. This is an amazing opportunity for college students interested in healthcare, data science and biomedical engineering fields.

https://www.choc.org/medical-intelligence-and-innovation-institute/mi3-summer-internship-program/

#mi3 #icanmakeadifference #ican #internship

In case you missed Saturday, 2/5 Ask the Experts hosted by Dr. Anthony Chang, AIMed, iSPI, CHOC, we invite you to watch ...
02/09/2021
Events | Ican

In case you missed Saturday, 2/5 Ask the Experts hosted by Dr. Anthony Chang, AIMed, iSPI, CHOC, we invite you to watch our recently created recording of the session on Ethics. It is a terrific look at what caring doctors view as they help patients and families. https://youtu.be/9YnxijoZEp0

To view all of our iCAN videos - visit: https://www.icanresearch.org/videos

Don't forget to sign up for both March and April Ask the Experts sessions by March 1st. April is an interactive event in which iCAN will be mailing kids science kits to use during the April session. In order for mail delivery time, all registrants must be signed up to participate by 3/1/2021. No late orders can be processed. To learn more and to register, visit www.icanresearch.org/events

The International Children's Advisory Network Inc., (iCAN) is a tax exempt organization as described in Section 501(c)3 of the Internal Revenue Code

Way to go to our KIDS Michigan and KIDS North Carolina youth for sharing their voices.  Terrific job! Check out this ama...
02/07/2021
The Elixir Factor Podcast | Science | Eli Lilly and Company

Way to go to our KIDS Michigan and KIDS North Carolina youth for sharing their voices. Terrific job!

Check out this amazing podcast created by Eli Lilly with a discussion with ICAN KIDS Olivia and Kyan about their experience with T1d. Eli Lilly’s Research Scientist Courtney Tate and our Director of iCAN, Amy Ohmer, both share insight into the ‘why’ of what we do. To listen (no video), click on season 3, episode 1.

To get involved with @ican, sign up at iCANResearch.org or send an email to us at [email protected] https://www.lilly.com/discovery/research-and-scientific-discovery/elixir-factor-podcast #elixirfactor #elililly #iCANMakeADifference #iCAN

The Elixir Factor, Lilly’s R&D podcast hosted by Joe Kim, explores all that inspires bold advances in science, innovation and the resilience required to change history.

Check out our January Newsletter!  https://shoutout.wix.com/so/04NTUJsEa?languageTag=en  #iCANMakeADifference #iCAN
02/01/2021
JANUARY NEWSLETTER iCAN Set Goals

Check out our January Newsletter! https://shoutout.wix.com/so/04NTUJsEa?languageTag=en #iCANMakeADifference #iCAN

Greetings from the iCAN Director- Starting 2021 with a full roster of activities and events, iCAN has something for everyone. Our goal is to provide as many opportunities as possible for kids to share their voices. With the updated website (icanresearch.org), youth, parents, and community members ca...

Hello iCAN members - we need your voices.  Please take our survey and share your thoughts.  Kids 13 and up, can take all...
01/31/2021
Assent Template Review Ages 13 -17

Hello iCAN members - we need your voices. Please take our survey and share your thoughts. Kids 13 and up, can take all three surveys! Anyone younger should take the age appropriate survey. Parents can help their kiddos at any age.

This questionnaire will be used by iCAN to better understand kid thoughts on the following Assent Templates.

The goal for gathering this information is to ensure that all kids in the age ranges are able to understand the Assent Templates!

Check the links below to access your corresponding Assent Survey!

Ages 3-6: Click here https://www.surveymonkey.com/r/WG295MP

Ages 7-12: Click here https://www.surveymonkey.com/r/WGHFB35

Ages 13-18: Click here https://www.surveymonkey.com/r/5MG92N9

Take this survey powered by surveymonkey.com. Create your own surveys for free.

Hey students!!!   Have you registered yet for the "Ask the Experts" program?  This is a GREAT series for all kids and yo...
01/05/2021

Hey students!!! Have you registered yet for the "Ask the Experts" program? This is a GREAT series for all kids and young adults that are interested in learning more about medicine and innovation.

This month, on Saturday, January 9th, 2021, at 10:00 a.m. eastern, Dr. Anthony Chang will have guest interns from the Medical Intelligence and Innovation Institute at CHOC. Details are on the iCAN website at www.icanresearch.org/events. Preregistration is required. This is a FREE event and open to kids, families and the greater pediatric healthcare community.
#iCANMakeADifference #iCAN #asktheexperts

Calling all Youth Members and Parents!  We have a very fun event in January to share your thoughts about DigiKnowIt News...
12/21/2020
iCAN Partnering with DigiKnowIt News to bring NEW 2021 Opportunity for Kids and Parents

Calling all Youth Members and Parents! We have a very fun event in January to share your thoughts about DigiKnowIt News! Sign up today! https://www.icanresearch.org/post/ican-partnering-with-digiknowit-news-to-bring-new-2021-opportunity-for-kids-and-parents

@iCANResearch #iCANResearch #ICAN #iCANMakeADifference

ATLANTA, GA - Kicking off the new year with added fun and excitement, iCAN has been invited to share our voices in two focus group sessions held in partnership with DigiKnowIt News. The two interactive sessions include a teen panel and a separate parent panel. iCAN will host both DigiKnowIt News Adv...

Thank you for supporting iCAN Research for #GivingTuesday.  Your kindness matters to our kids around the world.  Because...
12/02/2020

Thank you for supporting iCAN Research for #GivingTuesday.
Your kindness matters to our kids around the world. Because of you, #iCANMakeADifference

iCAN Research's cover photo
12/02/2020

iCAN Research's cover photo

Have you registered yet for the "Ask the Experts" program?  This month, on Saturday, December 5th, 2020, at 10:00 a.m. e...
12/02/2020

Have you registered yet for the "Ask the Experts" program? This month, on Saturday, December 5th, 2020, at 10:00 a.m. eastern, Dr. Anthony Chang will have guest interns from the Medical Intelligence and Innovation Institute at CHOC. Details are on the iCAN website at www.icanresearch.org/events. Preregistration is required. This is a FREE event and open to kids, families and the greater pediatric healthcare community.

#iCANMakeADifference #iCAN #asktheexperts

Come join iCAN and iSPI to learn more about what kids can do within pediatric medicine, science, research, and innovatio...
12/02/2020

Come join iCAN and iSPI to learn more about what kids can do within pediatric medicine, science, research, and innovation. Registration is free and open to all. Session will be held on December 10th, 2021 at 4:00 p.m. eastern.

Register in advance for this meeting:
https://chocchildrens.zoom.us/meeting/register/u5wqf-uprjwqHtQD9S5ClzsHMY-Pw2ogljmT

After registering, you will receive a confirmation email containing information about joining the meeting.

Today is #GivingTuesday and it is a day where we open our hearts to give to those that make the world a better place.  A...
12/01/2020

Today is #GivingTuesday and it is a day where we open our hearts to give to those that make the world a better place. At the International Children's Advisory Network, Inc. (iCAN), our goal is to provide opportunities to get kids to where they need to be to share their voices to improve pediatric healthcare, research, science and medicine. At iCAN, we believe that everyone of us has the ability to impact the world through #iCANMakeADifference

To donate: www.icanresearch.org and select our secure donation button. Thank you for your kindness today and always.

#iCAN #PatientVoice #pediatrics

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