Team Kaidynce

10/28/2026

An insightful doc about Cystic Fibrosis.

Once a death sentence, cystic fibrosis now has a life-saving treatment. Follow the decades-long scientific quest, fueled by desperate parents, that led to this revolutionary breakthrough.

06/01/2026

05/29/2026

Today is 65 roses day. We encourage you to help us continue to spread awareness about cystic fibrosis! Please feel free to participate in sharing your relation with CF.. what memories and words of encouragement can you share with our community?

Day 29 – 65 Roses Day: For Those We Love

Today, on 65 Roses Day, we come together to recognise and honour the people we love who are living with cystic fibrosis, as well as those who remain forever in our hearts.

We invite our community to share a message in the comments about someone special in their life affected by CF. Whether they are living with cystic fibrosis today or remembered with love, every story and every memory matters.

You may wish to share:
- a memory you cherish
- what they mean to you
- words of love or gratitude
- or simply take a moment to acknowledge them and the impact they have had on your life

65 Roses Day is a reminder of the strength, resilience, and connection that exists throughout the CF community. It is also an opportunity to reflect, remember, and stand together in support of one another.

There is no right or wrong way to participate. What matters most is coming together as a community.

Every story matters. Every person matters. Every life leaves an impact.

05/26/2026

05/18/2026

💜 The CF body burns enormous energy fighting chronic infection and inflammation. Add in the calories lost due to digestive dysfunction, and many people with CF — especially children — require 110–200% of the recommended daily caloric intake just to maintain healthy weight. Malnutrition is a constant threat for many. For people with CF, a meal is not just nourishment — it is medicine, it is strategy, and it is work.

💜Eating twice the recommended daily calories sounds like a dream — until you understand what it actually feels like to do that when you are exhausted, in pain, or your GI system is working against you.

05/12/2026

5 years ago the wait was over. Her chance to have a bit of normalcy arrived in that little box.

5 years ago she had been in and out of the hospital more times than we can remember.

5 years of trials, iv’s, surgeries, shots, tests..

5 years ago her body gave out on her while playing, she was out of breathe, always tired but always pushing on.

5 years later and she is going into her senior year, has competed in track, made it to state twice in wrestling and even works her first job.

Cystic Fibrosis has made her resilient and we’re thankful for the opportunities that have been given to her in the past 5 years thanks to all her hard work and dedication.. and that little box that shows up every month with Trikafta

05/01/2026

Warning: following CFRI this May may result in learning things that make you want to immediately tell everyone you know. 💜

It is CF Awareness Month and our Purple Power campaign is live — 31 days of daily CF facts, community stories & content so good you will not be able to scroll past it.

Here is your three step plan:
📘 Follow us and show up daily for CF facts that will educate, move & motivate you

💬 Like, share, and comment — or download our free Purple Power graphics and make your own content https://curecf.cfri.org/PurplePower2026

💜 Tag .cureCF and use — every action enters you to win sticker packs and t-shirts. Yes really.

Side effects may include: increased CF knowledge, spontaneous purple wardrobe choices, and an uncontrollable urge to share. You have been warned. 💜

👉 Follow today. Check in daily. Tell your people.

Sponsored by Vertex Pharmaceuticals, Viatris and Sionna Therapeutics.