02/02/2025
Have a little photo dump of our Warrior Princess ❤️
She has gotten to meet her new baby cousin Faye, earned pizza with her principal at school, had a great Halloween, voted with mommy, got more fun cards from Cards for Hospitalized Kids, lost her first and second tooth, celebrated Thanksgiving with Girl Scouts and family, went to Disney on Ice with her Girl Scout troop and had her Christmas concert, celebrated Christmas with family and was invited to mommy's school, Illinois State University Athletics Men's basketball Pediatric Cancer night! She had a busy end of 2024 and beginning of 2025.
Her counts have remained amazing and right where they should be the whole time! We have one more appointment this month before our trip to Memphis in April for her yearly appointment.
She did see neurology in December and she has been released from any further appointments with them. This is good news, but it did come with a little bad news. She has lower leg weakness and her reflexes are almost nonexistent from her knees down especially on her right side. Unfortunately, there is nothing that they can do to reverse this. The doctor said that we can talk with our team in the clinic and her P*P and see if they want to try PT, but it is possible it won't help much. This is her first long-term side effect from chemo. It will be something she lives with for the rest of her life. She tries her hardest to keep up with the other kids, but it is possible she may never be able to. The Vincristine wrecked her nervous system. We will focus on the fact that she is still here, she is able to walk and run and play with her sisters and friends and that on October 10th, 2025 she will be considered cancer free!!!
