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Anther week fighting with our boy💛Baker just finished a full long week of chemo and while this has become our normal, it...
10/25/2026

Anther week fighting with our boy💛

Baker just finished a full long week of chemo and while this has become our normal, it doesn’t make it any easier. These long weeks take so much out of him not just physically but mentally. By day 3 he is asking “how many more days this week he has”
“are we done yet”
“Do we get my access out today”
“How much longer do we have to go”
“Is the cancer gone”
We hear these everyday which means he’s thinking about it everyday.

Symptoms remain the same:
Nausea
Refuse meds
Vomit
Get meds at hospital
Receive treatment
Eat
Not eat the remainder of the day
Repeat

By Friday morning he’s wired because he knows “the needle comes out of my chest today”
And he’s HYPED. Basketball started Friday night and he kicked butt literally. So much energy, making baskets and keeping up just as good as everyone else. Honestly….hes better than last season, which makes me wonder how bad he felt December and January. I’m so proud of him🥺

We are back Tuesday for VinCRISine and Pentamidine.

Everything in his scans from 2 weeks ago show that treatment is still working and all other findings will need to be monitored and watched closely with next scan.

And I hate having to type that out because it sounds so vague and unclear but it’s really all we have. Continue shrinkage. Comparing things that weren’t visible or clearly seen to next scan in hopes that it might be next time is annoying. I want to know.

Which is a big realization for me of just how much I need to continue to rely on Jesus when times are uncertain. And it’s a lot easier to say those words than DO those words.

Some of you have been here since day one, some have been here since the summer. Some of you are new.
It’s been 9 months.

261 days.

We have scans in 10 weeks.

Please continue to pray for our boy and our family. Pray for healing, for strength, and for peace in the moments when this journey feels heavier than we know how to carry. We have no idea what the next 10 weeks will hold, but we know we don’t have to walk through them alone. Thank you for continuing to love Baker, pray over him, and show up for our family in ways you may never realize. We will never stop being grateful for the people who continue to stand beside us,pray over us, and fight like hell with him. 💛

We all want to be Brave like Baker 🎗️💛

🎗️ Baker’s Scan Update 🎗️First, we want to thank everyone who has prayed for our boy, checked on our family, and continu...
10/08/2026

🎗️ Baker’s Scan Update 🎗️

First, we want to thank everyone who has prayed for our boy, checked on our family, and continued to stand beside us through this journey. We know so many of you have been waiting for this update, and we are so grateful we don’t have to walk through this alone. ❤️‍🩹

Baker’s tumor is still responding to treatment! 🙏🏼
His scans show that the main mass in his pelvis has continued to decrease in size, and there has been some improvement in its previous involvement with the surface of his bladder. After everything he’s gone through the last 6 months, we are so thankful to see that his treatment is still making a difference🥺

As always, we want to be transparent with you. We don’t have all the answers just yet. There are still findings on his scans that need to be reviewed, and his medical team will be discussing his case at tumor board next week to determine the best plan moving forward. We are holding onto the encouraging news we have while waiting for more clarity on the rest. 💛

Another concern right now is his lungs. His scans showed areas that may be related to infection or inflammation, and his team believes he may be getting sick. With everything his little body is already fighting, the last thing we want is for him to get sick on top of it all. We are praying his temperatures continue to come down and that his body fights this off before it turns into anything more. Please pray that he stays well, his temperatures continue to decrease, and his little body gets the rest and healing it needs🥺❤️‍🩹

This journey is full of moments where we are thankful for progress while still facing uncertainty.
We may not have every answer today, but we will continue to take things one day at a time, celebrate every bit of progress, and trust God with what comes next.

Thank you for continuing to love our boy, pray for him, and fight alongside us. Please keep those prayers coming as we head into next week’s tumor board and wait to see what the next step looks like🥺💛

One day closer. One step at a time. And through every single step, God is with our boy. 💛🎗️

Isaiah 41:10
Fear not, for I am with you; be not dismayed, for I am your God. I will strengthen you, yes, I will help you.


We are almost half way through treatment now since Baker made count. We finished impatient chemo yesterday and he had re...
09/30/2026

We are almost half way through treatment now since Baker made count. We finished impatient chemo yesterday and he had really the best time. We are going to have to put xpo markers on his next wishlist because that’s allll he did. We didn’t get home till around midnight and everyone was wiped!🥺🥺

So far other then nausea and being tired ,everything is going good. I will give him a shot here around 5pm.
This helps his bone marrow make more neutrophils and recover his counts.
Praying he starts having appetite, no nausea and starts feeling more like himself. 🥺💛

We are about a week from our next scan!!!!!
We have MRI and CT scans and we are starting NOW asking you to stand with us in prayer over our son. 🎗️🥺
If we are being honest this is one of the hardest parts.

We believe in the power of prayer, and we know Baker has an entire army of people standing behind him.
So if you see this post, please pray over him. Tell your church. Add Baker to your prayer list. Share his name with someone who will pray😭🥺

We’re asking God for good news. Really good news.😌🥺🙏🏼

We’ve watched him fight through so much already, and we’re going to keep believing, keep praying, and keep fighting right alongside him🎗️💛

Lord, please let these scans bring us the news we’ve been praying for. Let treatment be working. Let his little body be healing. Let there be no new disease. And please, God, keep our boy here with us and give him the chance to grow up and live this life we know he deserves. 🙏🏼💛

Isaiah 41:10

Do not fear, for I am with you. Do not be afraid, for I am your God. I will make you strong and help you. I will hold you up with My right hand that is right and good. 💛

Today was suppose to be impatient Chemo. He didn’t make count. Again. We left thinking his scans were getting pushed bac...
09/22/2026

Today was suppose to be impatient Chemo.
He didn’t make count. Again.

We left thinking his scans were getting pushed back AGAIN. They called and let us know they will be staying the same right now, with possibility of it moving if he keeps missing count.

We haven’t had a scan since April.
I NEED THIS SCAN.
I do not want it pushed back anymore then it has been.
I need some reassurance that his treatment is working, radiation did its job, and that there’s less cancer then what was there in previous scans.

He’s severely neutropenic again. He won’t be going to school at all this week. 😞

Hemoglobin has gone up slightly on its own.
Still lower.
Platelets were great.

He’s moods are everywhere. We’ve had several rough days last week, of not being able to regulate moods like normal. This stems off high steroids he’s on. He literally cannot help it. 😭
I’m sure that’s so frustrating for him as well

He had so much energy yesterday with the amazing weather. It helped his mood so so much.
He’s in good spirits . So much laughter and hugs and silliness from him which is the best thing🥺
So many compliments on his jams today which are from our fav place

🎗️PRAYER REQUESTS🎗️
•He makes count Tuesday.
•His numbers go up
•Hemoglobin continues to go up on its own.
•His moods
•Fatigue
•Peace and patience
•Scan date stays

I have to continue to think positive or my throat feels like it’s closing in from holding back tears. I feel so frustrated and sad. Not so much for the set back of chemo, I can handle that. But we are so close to this scan date. 😭 I need to know my baby is doing better 💔

Romans 12:12
Be joyful in hope, patient in affliction, faithful in prayer 💛🎗️

Please please continue to pray over our Baker 🖤

It’s been a rough week😣🎗️5 days of straight chemo has wiped him out. We went into this round knowing his numbers had dro...
09/06/2026

It’s been a rough week😣🎗️
5 days of straight chemo has wiped him out.
We went into this round knowing his numbers had dropped significantly, they took a good amount of blood Monday, for research, gene testing etc, so we knew he’d be extra tired Monday.
He’s not been able to keep much down, but he has eaten the most in the evening. We’ve used more throw up bags this week then we have in several weeks😭He’s napped everyday after for several hours and then will have a burst of energy after eating for about 20ish minutes and tells us “he needs to rest now”

He went several days without a💩 which I believe was causing some discomfort. Then he finally was able to go and couldn’t stop going. He’s having lots of gas, tummy pain, and I think mixed with nausea he just doesn’t feel good. He’s very good at telling us HOW he hurts and the difference between gas pain, p**p pain, nausea, and the pain he felt before diagnosis. 💛

It’s hurt him more to walk this week. He was complaining the end of last week off and on, but other then simple walks to fridge( to look at food), bathroom, bed, I’ve carried him everywhere, or used the wagon. He just says it hurts.
Now this is a common side effect from chemo and it’s unfortunate but there’s not a whole lot we can do. Harsh chemo weeks his walking seems to be effected more 🥺
But he loves to be carried around so he doesn’t mind at all😂💛

That scrape on his knee? Yah that’s from over a week ago. This was taken Friday. It keeps getting ripped open because his skin is so fragile. A wound like this is a GATEWAY to infection. Literally. 
We’ve not gone anywhere but the hospital and home. He’s not played outside at all but in the wagon. It is so so important that this scab stays on so it can heal. 💛

He has chemo Tuesday🎗️💛

💛Please pray 💛
•we make counts Tuesday
•he’s knee continues to heal
•he can hold more food down
•his appetite
•no more pain while walking

But look at that cutie boy 🥺🥺he’s so sweeeettt. You know he loves his spaghetti 🍝 he only took 2 bites but he said they were the best EVER

Isaiah 40:29
He gives power to the weak and strength to the powerless 💛

We are on cycle 8 | day 2/5 this week🎗️💛Baker DID make count this week 🙌🏼 PRAISE All weekend we have been struggling wit...
09/01/2026

We are on cycle 8 | day 2/5 this week🎗️💛

Baker DID make count this week 🙌🏼 PRAISE

All weekend we have been struggling with stuffy nose and “allergy” symptoms. So while he did make count Monday, his numbers dropped significantly from 7 days ago. I’m talking several thousand. Platelets and blood have also lowered. This doesn’t particularly mean anything major, but there’s a possibility of needing blood and platelets this week. 🩸

🥺We knew this was going to be a rougher week because of allergies and immune system going down. But truly he is so tired. He’s nauseous. Throwing up. Nothing sounds good to eat. So he’s not eating. He’s just not feeling great. 😔 we haven’t made it to the hospital or back home without a puke bag being used 😞

His blood is officially being sent off for research, with Februarys sample, up to now. 🎗️
They took 30 mils of blood monday for genetic testing, gene testing, his research teams ect. We won’t know these results for several more weeks.
Baker’s cancer is rare, and the truth is, there is still so much that we don’t know.
We are learning as we go. His doctors are learning. Researchers are learning. There are still so many unanswered questions.💛🎗️

🎗️ PRAYER REQUESTS 🎗️
•We can keep food down
•Nausea
•Fatigue
•Energy
•His number at least stay the same or go up
•Peace

Today is September 1st💛
Childhood cancer awareness month🎗️
Roughly 14,000 children in the US get diagnosed with cancer every year.

By sharing Bakers story, you are helping bring awareness not only for cancer, but Embryonal Rhabdomyosarcoma 💛🎗️

Honestly this month feels heavy. I didn’t think it would like it is. I’m so proud of my boy, but I’m just so sad, scared, and angry that this is even our lives. 😭❤️‍🩹

It’s truly so unfair 😞

Thank you for praying with us, for us, over us. Keep praying. Please if it’s the one thing you do for our family it’s pray💛🎗️


HELP US FIGHT CHILDHOOD CANCER! 🎗️We are raising money to support childhood cancer research and help fund the search for...
08/26/2026

HELP US FIGHT CHILDHOOD CANCER! 🎗️

We are raising money to support childhood cancer research and help fund the search for better treatments and, ultimately, a cure. 💛

Every purchase helps us make a difference for children and families affected by childhood cancer.

👕 T-SHIRTS — $20
• Infant sizes — $20
• Youth sizes — $20
• Adult Small–XL — $20
• 2XL — $22
• 3XL — $23
• 4XL — $24
• 5XL — $25

🧥 HOODIES — $40
• Infant, Youth & Adult Small–XL — $40
• 2XL — $42
• 3XL — $43
• 4XL — $44
• 5XL — $45

🤍 SWEATERS — $30
• Infant, Youth & Adult Small–XL — $30
• 2XL — $32
• 3XL — $33
• 4XL — $34
• 5XL — $35

Local pickup available
$5 shipping FLAT

🎗️ 100% OF THE PROCEEDS WILL BE DONATED TO SUPPORT CHILDHOOD CANCER RESEARCH.

No child should have to fight cancer. 💔 Every shirt, hoodie, sweater, purchase, share, and donation helps us support the fight for better treatments and a cure.

💛 FIGHT. HOPE. CURE. 💛

Thank you for supporting our fundraiser and helping us make a difference for children and families fighting childhood cancer. Your support truly means the world to us! 🎗️❤️

💛 Leandra Henry is doing the shirts donating time, supplies, and resources to make this work for us! Im so thankful for what she’s doing and helping us make a difference 🥺😭💛

HOW THIS WORKS: COMMENT

Size:
What type: (tshirt,sweatshirt,hoodie)
What number: (1-8) BAKER blue | BAKER yellow
Payment method: Facebook pay, cashapp, venmo, chime.

❌Please wait for request for payment❌

•This will be open for 3 weeks!!

•You should receive your shirt within 2 weeks of payment💛 (she’s fast. Closer to a week but 2 to be safe)

If you can not purchase a shirt that’s okay too!! You can still help by sharing this post for someone else to see💛🎗️

Be BOLD. Be BRAVE. Let’s find a cure for childhood cancer 🎗️💛

Cycle 8 day 15 | 194 days fighting childhood cancer🎗️Baker received vincristine today and had great labs🙌🏼He had so mu...
08/25/2026

Cycle 8 day 15 | 194 days fighting childhood cancer🎗️

Baker received vincristine today and had great labs🙌🏼
He had so much fun finding all the mini creatures that anther little boy, also fighting (his last treatment is today💛🎗️)puts out for the littles to find. He hasn’t been there for a while but Baker looks every week for them🥺 something so small makes his day and honestly I have just as much fun finding them with him🥺💛 we will have to show our collection 🤭

His labs are the highest they have been ever, which truly shocked me with starting school so I’m SO happy to know his body is doing what it needs to and fighting to stay strong💪🏼

Side effects are very minimal on quick chemo weeks. He’s tired but other then that he’s doing well🫶🏻

We did find a tick on him this morning so we have that bagged and saved and also keeping an eye on it, they are not to concerned but obviously it’s something to keep an eye on.

This next week we will be there everyday for chemo so he will not be going to school at all that week.

🎗️💛Prayer requests
•Stays healthy
•He makes count next week
•Appetite
•Fatigue
•Tick bite heals
•Pray for cooler weather. He’s over it 😂

Hebrews 10:23
Let us hold unwaveringly to the hope we confess, for the one who made the promise is trustworthy. 🎗️💛

His promises are true. We hold on to them everyday. Thank you for standing with us in prayer. 💛

Pic of his little treasures and picture frame he made with Mrs.Kay💛
And no..that’s not his coffee😅

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Oklahoma City, OK
73109

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