MDA ALS Center of Hope

10/20/2026

Team Gleason Foundation today announced a five-year strategic partnership with Tolt Technologies LLC to improve access to advanced equipment and technology for people and families living with ALS (Amyotrophic Lateral Sclerosis). As part of the agreement, Tolt Technologies will donate Ability Drive® for iPad kits to Team Gleason, giving people living with ALS a system that lets them control their seating and drive their wheelchair using only their eyes.

Ability Drive® for iPad currently supports three devices, the Tolt Technologies A13i, the Forbes ProSlate 13™ with Enable Eyes®, and the Apple Vision Pro, with Vision Pro support newly available in visionOS 27. The integration represents a significant step forward for the ALS community: individuals who rely on eye-tracking technology to communicate can now use that same eye control to navigate the world around them, bridging Apple’s spatial computing platform with real-world mobility in a way that wasn’t possible before.

Read more about the partnership here: https://teamgleason.org/team-gleason-partners-with-tolt-technologies/

10/16/2026

10/09/2026

October is

10/02/2026

😢

09/23/2026

Encouraging news for the FUS-ALS community. Otsuka and Ionis Pharmaceuticals have announced positive topline results from the Phase 3 FUSION trial of ulefnersen, an investigational RNA-targeted medicine for FUS-ALS, a rare, often rapidly progressive genetic form of ALS.

The study met its primary endpoint, showing a statistically significant improvement over placebo on a combined measure of function and survival. Secondary endpoints were also supportive, and the treatment was generally well tolerated. FUSION is the first placebo-controlled trial targeting the underlying genetic cause of FUS-ALS.

Ulefnersen is still investigational and not yet approved. The companies plan to discuss the results with the FDA and other health authorities. Thank you to the participants, families, investigators, and advocates who made this possible. 💙 Learn more at otsuka.com/news

09/23/2026

It was a rainy day, but that didn’t stop us! 💛💙💚

09/18/2026

We would love to see you this Sunday at Hope Walks for ALS! 👩‍🦼‍➡️If you don’t want to chance the rain, ☔️ feel free to donate to Team Center of Hope!!🥰

07/20/2026

Traveling with ALS comes with unique questions—but you don't have to navigate them alone.

Join our panel of clinicians and community members for an honest conversation about preparing for travel, overcoming challenges, and making meaningful experiences possible.

Bring your questions for the live Q&A.

Register here: https://buff.ly/jRZip7T