ATTR-Amyloidosis.net

10/15/2026

Do I take the extra medication now?

Do I have somewhere I need to go?

How long will I be gone?

Will there be easy access to a bathroom?

Can I wait until I get home?

Meanwhile, the fluid doesn't particularly care what I have planned... Read the newest article from Faye Adams here: https://attr-amyloidosis.net/?p=494

10/14/2026

Calling on you for help! Visit the discussion forums and find out what the community needs today... https://attr-amyloidosis.net/forums/welcome-please-introduce-yourself

10/13/2026

ATTR-CM has entered the comment section - what do you think? Share your ideas, experiences, questions, and support with the community!

Hereditary ATTR-CM doesn’t care about your age or gender. I’m a 48-year-old woman living with hATTR - and it’s time we rethink this rare disease.

10/09/2026

What small win are you celebrating this week?

10/08/2026

Faye Adams dropped her son off, walked back to her car, put the seat back, and fell asleep in the parking lot.

That's fatigue. It isn't the kind of tired that a good night's sleep or another cup of coffee fixes.

"Even my tired is tired," she says.

Read Faye's story ➡️ https://attr-amyloidosis.net/?p=460

What do you wish people understood about your fatigue?

When ATTR fatigue hits, others don't always understand the toll exhaustion takes on socializing, parenting, and our emotions. One mom shares how she copes.

10/07/2026

In 1998, Greg watched his 80-year-old mother take a hammer to a childproof pill bottle. She refused his help: "When you're not here, I need to be able to do it."

He thought it was ridiculous. Now he's 73, living with the same hereditary ATTR, and the neuropathy in his hands makes that bottle a fight of its own.

The hammer is still in his junk drawer. But Greg's story isn't really about the bottle. It's about the week he finally asked his wife to open the milk carton, 51 years into their marriage.

"It felt good," he writes.

Read Greg's story ➡️ https://attr-amyloidosis.net/?p=429

What's one thing you've had to learn to ask for help with?

With neuropathy in my hands from ATTR, a pill bottle became a battle. Here's how my mother's hammer and my wife taught me about asking for help.

10/01/2026

Last chance to enter the ATTR Giveaway! Remember - for a 🎉 BONUS ENTRY 🎉 contribute to the forum listed in the article. We're giving away a gift card for Cushion Lab and an Amyloidosis Awareness water bottle. Enter here!

Enter to win the Self Care and Self Advocacy Kit, complete with an Amyloidosis Warrior water bottle and gift card for comfort-inducing items at Cushion Lab .

09/29/2026

People are sharing what they'd like to say to others with ATTR - and getting a bonus giveaway entry in the process! Check out the conversation here: What would you say to someone living with ATTR? https://bit.ly/4jqKtZk

09/28/2026

The ATTR Giveaway ends Friday! If you already entered, you can get a 🎉 BONUS ENTRY 🎉 by contributing to the forum listed in the article. We're giving away an Amyloidosis Awareness water bottle, along with a gift card for Cushion Lab. Enter here!

Enter to win the Self Care and Self Advocacy Kit, complete with an Amyloidosis Warrior water bottle and gift card for comfort-inducing items at Cushion Lab .

09/22/2026

Erin shares, "Is it possible to be really angry and really relieved at the same time? I think so. That's how it feels knowing that 3 of the 4 siblings in my family have now been tested for our family's hereditary ATTR amyloidosis mutation, and I'm the only one who tested positive..."

One woman describes her experience testing positive for ATTR amyloidosis, why her siblings tested negative, and the mixed feelings it brings.