Common Variable immunodeficiency -cvid; Starting the Journey.

10/07/2026

Heads up folks!

09/04/2026

Warning ⚠️
(And for the millionth time, my *opinion* is that the reason this is happening is due to Covid being in the herd immunity population. Not just all the variance illnesses but also the vaccines. Don't get me wrong. I am *pro vaccine* except for Covid because we know for a fact that it was tampered with on purpose. If it's still available to Public, you can look that up yourself. There is a whistleblower from South Carolina. He was one of the doctors on the team creating it. This is not a conspiracy theory.
For anyone who keeps experiencing adverse reactions from either the vaccines or these infusions, it's something to seriously consider. )

07/01/2026

I have learned that there can be gastrointestinal complications with CVID. I just went through a colonoscopy and endoscopy and found a handful of issues. Three biopsies will eventually tell us more, but that will take five weeks, evidently. I just learned I have a sliding hiatal hernia… How exciting. The doctor thinks there might be some seepage from the gut into the body. It’s amazing how quickly things can take a downturn.

04/12/2026

I have stepped away from IVIG for now. Since 3 blown veins and one blood clot, no improvement to my daily function in over a year, and no real likelihood of my doing SCIG, I am taking life on life’s terms. We must each do what is best for us 💕 no one can tell another what that is for them. Make the best of each day, even when it’s your worst. Even if you’re in bed and can’t move- what is the smallest of wins? The tiniest bit of gratitude? “May this food nourish me.” That is enough.

02/23/2026

CVID- the gift that keeps on giving.
Can i get a return? ;)

02/08/2026

Frustrated that my medical team 'can't see the rash' that is obvious on my arm, on day 10 post infusion and phlebitis. I'd like an honorary doctorate please, as i treat myself for cellulitis 🥺

01/30/2026

Aaaaand another bout of phlebitis. 🥺🤬🤯🙄

01/29/2026

IGI (the bear "just like me") is not having a good time. My fourth case of phlebitis.
😭 I can has vacation meow (now)? 

01/17/2026

PSA... antibiotic resistant 

A case report published yesterday in Antimicrobial Stewardship & Healthcare Epidemiology describes the identification of a novel strain of extensively drug-resistant Shigella in Los Angeles.

01/09/2026

Ooops, this is worse than I thought it was. Day 10 post infusion gone wrong.
The upper part is looking pretty good. I try to get to the clinic today but beginning of the year insurance snafu.