Shep's world

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Shep's world This is Shep's life with Tracheal Agenesis, a rare congenital anomaly in which there is no trachea at birth.

Medically Complex - VACTERL association - NICU Graduate - Pediatric Airway Journey - Trach Baby

Meta likes removing our captions for some reason so let's try this again. While Shep's in surgery we figured now is a go...
09/24/2026

Meta likes removing our captions for some reason so let's try this again. While Shep's in surgery we figured now is a good time to go over the diagnosis we received in Boston. With a voiding ultrasound they determined he has a double urethra and partial imperforate a**s. Classified as a type 2 A2 Y urethral duplication based on how it was explained to us. Some facts about urethral duplication ⬇️⬇️⬇️

Urethral duplication is an extremely rare congenital anomaly overall, occurring in fewer than 1 in 1,000,000 live births Worldwide, less than 500 total cases of all types have been documented.

90 - 95% of cases occur in males.

Y type duplication accounts for 22% - 36.5% of all cases.

This will need to be a multi staged repair which will require a couple trips back to Boston. Some things need to be ironed out beforehand but until those happen this is what we know. 🫶🏻

Shep has been nominated to be a Grand Marshal for this years Run for All Children. What an honor for them to consider hi...
08/27/2026

Shep has been nominated to be a Grand Marshal for this years Run for All Children. What an honor for them to consider him and his story. If anyone that is not already signed up is interested in joining Shep's team (Shep's Herd) the link in our bio will take you to his sign up page. The code above will get you $5 off your registration.

Shep’s first visit to the dentist! 🦷💙 A few tears, but overall, he handled it well! Big shoutout to SmileLYNN Pediatric ...
08/19/2026

Shep’s first visit to the dentist! 🦷💙 A few tears, but overall, he handled it well! Big shoutout to SmileLYNN Pediatric Dentistry for your patience, expertise, and helping ease our minds with the few concerns we had. We’re so grateful for such a kind and understanding team! 🩵

08/17/2026

Dinner and a show, Shep was the main event. He had everyone laughing except himself 😂

1st hair cut yay 😍. I think he probably aged 6 months.
08/13/2026

1st hair cut yay 😍. I think he probably aged 6 months.

Address

501 6th Ave S
Saint Petersburg, FL
33701

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