American Porphyria Foundation

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American Porphyria Foundation Official page, American Porphyria Foundation. Formed in 1982 by Desiree Lyon. The American Porphyria Foundation has supported the Porphyria community since 1983.

Our mission is to improve the health and well-being of all individuals and families impacted by Porphyria. We have maintained a relentless focus on education, advocacy, support services and research for the prevention, treatment and cure of the Porphyrias. The APF also serves as an advocate on your behalf to other public, private, and government agencies interested in funding research and educational programs. Our Scientific Advisory Board is made up of the world's foremost experts in Porphyria management, diagnosis, and research. They have written or approved the medical information our website

10/18/2026
🚨 TONIGHT: Free Acute Hepatic Porphyria (AHP) Education Events in Little Rock & Phoenix! 💜Living with acute hepatic porp...
09/29/2026

🚨 TONIGHT: Free Acute Hepatic Porphyria (AHP) Education Events in Little Rock & Phoenix! 💜

Living with acute hepatic porphyria (AHP), including acute intermittent porphyria (AIP)? Caring for someone who is? Join a free, in-person educational program on AHP tonight, sponsored by Alnylam Pharmaceuticals. Hear from people who understand, ask your questions, and connect with others in the porphyria community.

📍 LITTLE ROCK, ARKANSAS
🗓 Tonight, Tuesday, September 29
⏰ 6:30 PM Central
🍽 Arthur's Prime Steakhouse, 16100 Chenal Parkway, Little Rock, AR 72223
👉 Register: https://alnylamevents.com/patientevents?id=EM-06723

📍 PHOENIX, ARIZONA
🗓 Tonight, Tuesday, September 29
⏰ 6:00 PM Arizona Time
🍽 The Capital Grille, 2502 E Camelback Rd., Suite 199, Phoenix, AZ
👉 Register: https://alnylamevents.com/patientevents?id=EM-06866

Know someone with porphyria in Arkansas or Arizona? Tag them below or share this post, because it could make a real difference. 💜

Questions? Contact APF at 866-APF-3635 or [email protected].

🩺 Community Event: Learn About a Treatment Option for Acute Hepatic Porphyria (AHP) 🩺Attention Arkansas patients and car...
09/21/2026

🩺 Community Event: Learn About a Treatment Option for Acute Hepatic Porphyria (AHP) 🩺

Attention Arkansas patients and caregivers in the Acute Porphyria community! Alnylam Pharmaceuticals is hosting a local educational dinner event to discuss GIVLAARI® (givosiran), a treatment for adults living with Acute Hepatic Porphyria (AHP).

📅 When: Tuesday, September 29, 2026 | 6:30 PM – 8:00 PM CDT
📍 Where: Arthur's Prime Steakhouse, 16100 Chenal Parkway, Little Rock, AR
🎤 Hosted by: Kim Bischel
💊 Topic: Discover GIVLAARI® (givosiran): A Treatment for Adults with Acute Hepatic Porphyria (AHP)

This is a great opportunity to connect with others in the AHP community, ask questions, and learn more about treatment options directly from Alnylam. Seating is limited — register here: https://alnylamevents.com/patientevents?id=EM-06866

The is sharing this event as a resource for our community.

Know someone in the Little Rock area who lives with Acute Hepatic Porphyria? Tag them below or share this post! 💜

Address

6605 33rd Street E, Ste C
Sarasota, FL
34243

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 6pm

Telephone

+18662733635

Website

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