10/15/2026
A parent's nightmare!
For us, discharge is the end of a long journey...but for parents, it's just the beginning.
Speaking to parents, they tell me going home is a bag of mixed emotions. Of course they are excited, but also scared. Specially with complex babies.
In one study of 224 infants discharged home with a tracheostomy, 57% needed a home ventilator. Unfortunately, 18% of those babies ended up dying later, with 38% of those deaths happening at home (citation in the comments).
Most trach-related deaths come from accidental decannulation and blocked tubes, and some caregivers go home with gaps in their knowledge. The good news? Standardized hands-on training significantly improves caregiver skills.
👨‍⚕️So we know training parents saves lives. So how does YOUR unit train your parents for home care?
❣️Special thank you to Ms. Ream (Nicole Ream | Medical Mom) for giving me permission to share her story