MSSoulshine a wellness journey

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MSSoulshine a wellness journey

MSSoulshine strives to bring you a variety of ways to honor your body and feed your soul. We promote health and wellness through authenticity.

No one knows your body like you do. Groove is a way to move in your unique way. You can't get it wrong!

02/10/2026

This is why I share and I hope to share more!

Update from previous post: doctor responded by saying “The fact that it improved so quickly is reassuring. I would tend to say lets keep an eye out for recurrences for now. If she developed sustained significant weakness or impairment walking that is not improving would seek more immediate care.”

Good news🌻❤️

01/10/2026

I have MS and had a new neurological episode today that was very different from my usual fatigue or weakness.

I was sitting down eating lunch. When I finished, I swung my legs around and prepared to stand. My feet were planted and I was consciously trying to get up, but my body would not initiate the movement. It felt like my brain was telling my body to stand, but the movement command wasn’t getting through.

I tried to stand for approximately 1-2 minutes. My husband came over and gave me both of his hands to help pull me up, but even with his assistance I still could not make my body move into a standing position.

This did not feel like simply being too weak or tired to stand. It felt more like I could not initiate the movement at all, and it seemed to involve my body rather than just my legs.

The episode resolved, and I am currently able to stand and walk normally. I did not notice facial drooping, speech problems, vision changes, numbness, or other obvious symptoms during the episode.

Because this was sudden, lasted several minutes, and felt like a disconnect between my intention to move and my body’s ability to execute the movement, I plan to report it promptly and ask whether I need to be evaluated for a new neurological event rather than assuming it was an MS symptom.
Has anyone else experienced anything like this?

17/08/2026

That’s my main squeeze taking me to my MRI wearing Allen Stone merch because he knows that’s what gets me through days like today!
MRIs are bearable with support and the best music!
Now waiting for the results!

15/08/2026

MRIs are scheduled for Monday morning early. I already know that this guy is gonna help me through it just like he ALWAYS has. I have been a fan since the beginning and when asked what I wanted to listen to in the tube there was no one else that came to mind not Allen Stone radio but “This is Allen Stone. All Allen Stone the whole time! Allen Stone

14/08/2026

Thank You, MSAA & Polar Products 💙❄️

A huge thank you to the Multiple Sclerosis Association of America (MSAA) and Polar Products for providing me with free cooling products through the MSAA cooling program. 💙

Living with MS in Mobile, Alabama, where the heat index has been absolutely brutal, makes staying cool so much more than a comfort—it can make a real difference in how I feel and function.

Heat can be incredibly challenging with MS, and having access to these cooling products is such a blessing. I’m beyond grateful for organizations and companies that understand the very real impact heat can have on those of us living with MS and choose to help.

Thank you, MSAA and Polar Products, for seeing us, supporting us, and making these hot days just a little more manageable. 🦋💙❄️

HeatIntolerance MSWarrior MobileAlabama InvisibleIllness MSLife

20/07/2026

One of the biggest misconceptions I had after being diagnosed with MS was that giving up dairy was only about reducing inflammation.

The more I’ve learned, the more I realized it’s more complicated than that.

For some people with MS, certain dairy proteins may be mistaken by the immune system for proteins found in myelin—the protective coating around our nerves. This idea, called molecular mimicry or cross-reactivity, is still being researched, and it doesn’t affect everyone. But it was enough for me to want to learn more and make intentional choices about what I eat.

I may have thrown myself into a flare recently with bringing dairy back into my diet.

I’m not here to tell anyone what they should or shouldn’t eat. I’m just sharing what I’m learning on my own MS journey.

Every diagnosis teaches you something new. Sometimes it’s not just about treating symptoms—it’s about understanding your body a little better, one piece at a time. 💙

LearningAsIGo

06/06/2026

Meet Lawrence.

Today was our first official outing together.

Yes, Lawrence is my cane. And yes, I named him. If he’s going to be by my side, he deserves a proper introduction.

I’ll be honest—using a cane for the first time wasn’t a milestone I was excited to reach. There was grief in it. Acknowledging that MS has changed things yet again isn’t always easy.

But somewhere between the emotions and the reality of the day, something unexpected happened.

Lawrence did his job.

He helped me conserve energy. He gave me stability when my body wasn’t cooperating. He made it easier to keep moving instead of fighting through every step. And while I never imagined I’d be introducing a cane on social media, here we are.

What I thought would feel like a loss also felt a little like freedom.

MS has a way of teaching lessons I never signed up for. Today’s lesson was this: accepting support isn’t giving up. It’s adapting. It’s choosing to work with my body instead of constantly battling it.

So here’s to Lawrence—my new sidekick, mobility manager, and occasional reminder that strength doesn’t always look the way we thought it would.

Some of us carry our resilience. Some of us lean on it.

Today, I did both. 💙

30/05/2026

World MS Day 🌻

MS taught me that survival isn’t about fighting the sun—it’s about finding the shade.

Hat. SPF. Umbrella. Sunglasses. Boundaries. Rest.

Whatever it takes.

Especially with triple digit heat index !!

Here’s to everyone living with MS and learning to adapt while still finding joy. 💙

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