American Lipedema Association

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The American Lipedema Association, a non-profit, represents United States lipedema patients.
📈 Raising Lipedema Awareness
📚 Educating with Trusted Resources
🤝 Connecting Our Community
📢 Advocating for Better Care

29/10/2026

💜 Three conferences. One global lipedema community. 🌎

Early-bird registration is open for these 2027 events! Save this post and start planning.

Registration Links:
FDRS: https://www.fatdisorders.org/events/fdrs2027
Lipoedema Australia: https://conference.lipoedema.org.au/register
LWC: https://www.lwc2027.com/register

16/10/2026

🇩🇪 Major lipedema research in Germany. What could it mean for the U.S.? 🇺🇸
The LIPLEG trial, published in The Lancet, brings important new evidence about lipedema treatment, pain relief, quality of life, and safety.
The findings have already helped shape healthcare policy in Germany. Could this research help influence future U.S. clinical guidelines, insurance coverage, and access to care?
💜 Research doesn’t stop at borders. Neither should awareness.
👉 Swipe through for the findings and why they matter.

Full study below:
https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(26)00910-4/fulltext

04/10/2026

We are excited to help share the news that Fat Disorders Resource Society will be back in 2027 with FDRS!

What we know so far:
🗓️ April 8-11th
📍Minneapolis, Minnesota

Can’t wait to connect with you all there!

28/09/2026

🚨Members-Only Event, DIY Lipedema Therapist🚨

Join Bailey Rotenberry-Maddox, CLT, for a practical session all about conservative care for lipedema. Bailey will walk us through non-surgical approaches like compression, movement, therapy, and other tools that can support your day-to-day care.
We’ll also talk about how to build a realistic care plan that works with your life—including ways to keep some form of conservative care going when the holidays get busy and routines don’t exactly go according to plan.

Event Details:

Topic: DIY Lipedema Therapist: Conservative Care

Featuring: Bailey Rotenberry-Maddox, CLT

Date & Time: October 10th, 2026 | 8 PM Eastern
Location: Zoom (membership & registration required)

https://americanlipedemaassociation.org/join/

19/09/2026

🚨Upcoming members only benefit October 1st🚨

Conversation Corner is a one-hour Zoom gathering hosted by ALA board members Carina Johannessen and Jenny Beaujean. Bring your questions, hopes, and even your fears to share in a supportive space with fellow Lipedema patients.

Pre-registration is required and open to ALA members only.

Conversation Corner will take place quarterly and will NOT be recorded, so everyone can feel comfortable speaking freely.

Have questions or ideas for future conversations? Share them in the comments below. 💜

08/09/2026

You asked. We listened. 💜

Our ALA Lipedema badges were such a hit that we decided they deserved to go home with you.

The designs you loved are now available as 3” vinyl stickers—because apparently being Medically Complex But Fun deserves official documentation. 😉

Choose your favorite or collect the whole set. Stick them on your water bottle, laptop, compression bag, pump case… wherever you keep the things helping you navigate life with lipedema.

And with every order, you’ll receive our All or Something sticker as a free bonus, created in loving memory of Pattie. 💜

Available in packs of 1, 3, 5, or all 8.
https://americanlipedemaassociation.org/ala-store/

Which badge are you claiming first? 👇

11/08/2026

🚨Members-Only Event, DIY Lipedema Therapist🚨

Join Bailey Rotenberry-Maddox, CLT, for a foundational session on Manual Lymphatic Drainage (MLD). What it is, how it works, and how to do it yourself! Bailey will go over the lymphatic system, hands-on techniques for the legs, arms, and abdomen, and where compression garments and pumps fit into the bigger picture, so you understand not just the “how” but the “why” behind your care.

Event Details:

Topic: DIY Lipedema Therapist: Compression Garments and Pumps

Featuring: Bailey Rotenberry-Maddox, CLT

Date & Time: August 27th, 2026 | 7 PM Eastern
Location: Zoom (membership & registration required)

Please register now by visiting the members-only area of our website at https://americanlipedemaassociation.org/member-login/

03/08/2026

A diagnosis can bring relief and grief at the same time.

Relief because you finally have an explanation. Grief because you realize how long you’ve been living without answers.
Many people look back and wonder:
“What if I had known sooner?”
“Would things be different today?”

Those questions are a natural part of processing a diagnosis. Whatever you’re feeling—validation, sadness, anger, hope, or all of them at once—there’s room for it.

💜 Healing isn’t just physical. It’s emotional, too.

What was the first emotion you felt when you received your lipedema diagnosis? Your story may help someone who is just beginning their own journey realize that every feeling is valid.

27/07/2026

Let’s normalize celebrating the wins that don’t always get posted.

💜 Getting through a flare.
💜 Wearing compression all day.
💜 Making it to an appointment.
💜 Choosing rest without guilt.
💜 Taking one more step than yesterday.

Those victories matter.

What’s one small win you’re celebrating this week? We’d love to cheer you on.

22/07/2026

One diagnosis.
Many different journeys.
Some people choose surgery. Some rely on conservative care. Some combine both. Others are still exploring their options.

No matter where someone is on their journey, they deserve support… not comparison.

Because our community grows stronger when we respect that every path forward is personal.

💜 What has helped you most in managing your lipedema? Share your experience without judgment—it might help someone else discover a path that works for them.

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Website

http://www.AmericanLipedemaAssociation.org/

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