Brave Little Hearts S.A.

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Brave Little Hearts S.A. Brave Little Hearts SA is an NGO that provides support for families affected by congenital heart disease (CHD). A gentle reminder that you are not alone.

CHD is Real and So are We. Brave Little Hearts SA (BLHSA) is the Leading Congenital Heart Disease (CHD) Advocacy, Awareness and Heart Patient/Family Education organisation based in Cape Town, South Africa. BLHSA was established in Honour of the Bravery and Courage of Thaakirah Matthews in December 2014 on her 4th birthday, after she triumphed against all odds undergoing two Heart and two Brain operations before her 4th birthday. Thaakirah was born with rare Critical Congenital Heart Defects(CCHD) known as Double Outlet Right Ventricle (DORV), Transposition of the Great Arteries(TGA), Pulmonary Stenosis(PS), Ventricular Septal Defect(VSD) and a defective valve. The combination of her complex heart defects was statistically classed as 1 in 500 000 which falls into 1 – 3% of the global CHD cases. BLHSA strives to share hope, advocate for and educate on CHD through awareness and also offer holistic support to all heart families of children born with Congenital Heart Disease. Brave Little Heart Thaakirah's story can be read and viewed at these links;
https://www.youtube.com/watch?v=YZ4eGtEyA3s
http://childrenshospitaltrust.org.za/thaakirah/
https://www.westerncape.gov.za/news/living-congenital-heart-disease
http://www.pcssa.org/heart-heros/
http://www.iol.co.za/news/south-africa/western-cape/meet-cape-town-s-miracle-girl-1.1817182
http://www.vocfm.co.za/thaakirah-a-brave-little-
heart/

Get Involved in creating awareness for children born with Congenital Heart Disease by sharing this Page.

💙 Every heart has a story. Thank you for listening to ours.❤️Brave Little Hearts SA warmly thanks the Children’s Heart D...
25/10/2026

💙 Every heart has a story. Thank you for listening to ours.❤️

Brave Little Hearts SA warmly thanks the Children’s Heart Disease Research Unit for the opportunity to take part in your **Listen to My Heart Programme**.

We are grateful for the chance to share our experiences, connect with others, and lend our voices to conversations about living with congenital heart disease (CHD).

To your team, thank you for your care and commitment to our heart community. Giving CHD warriors and their families space to be heard means so much. 💙❤️

**CHD is Real – And So – Are We.**

13/10/2026

💙 **BRAVE LITTLE HEARTS SOUTH AFRICA | WEBSITE LAUNCH** ❤️🌍❤️ **WORLD HEART DAY | 29 SEPTEMBER** ❤️🌍On **World Heart Day...
28/09/2026

💙 **BRAVE LITTLE HEARTS SOUTH AFRICA | WEBSITE LAUNCH** ❤️

🌍❤️ **WORLD HEART DAY | 29 SEPTEMBER** ❤️🌍

On **World Heart Day, 29 September**, we are proud to announce the official launch of the **Brave Little Hearts South Africa** website.

Our new digital platform has been created to strengthen access to **information, support, education and community** for individuals and families affected by **Congenital Heart Disease (CHD)**.

Through our website, you can:

❤️ Learn more about Congenital Heart Disease
💙 Access CHD information and resources
❤️ Connect with our awareness initiatives
💙 Learn about our programmes and activities
❤️ Discover ways to support our work and help raise awareness

At **Brave Little Hearts South Africa**, we believe that every CHD journey matters. By increasing awareness, sharing knowledge and building a supportive community, we strive to ensure that Congenital Heart Disease is **recognised, understood and given the attention it deserves**.

🌐 **Our website is now live:**
https://bravelittlehearts-sa.co.za

On this World Heart Day, we invite **CHD Warriors, families, caregivers, healthcare professionals, organisations, supporters and members of the public** to visit our website, learn more about CHD and join us in raising awareness across South Africa. 🇿🇦

**Every heartbeat tells a story.
Every story deserves to be heard.
Every heart deserves care.** ❤️💙

🌐 **Visit us:** https://bravelittlehearts-sa.co.za

**Different journeys. One community. One heartbeat.**

Paediatric Cardiac Society of South Africa The Paediatric Cardiac Society of South Africa Paedspal Children's Hospital Trust Children's HeartLink Brave Little Hearts Namibia Brave Little Hearts Zimbabwe Namibia Hearts Namibia Childrens Heart Trust

Every year about 11 000 South African babies are born with a heart defect. We walk beside their families — from diagnosis, through surgery, and long after.

CHD requires lifelong care.Surgery and medication give a better quality of life.  and so are we
13/09/2026

CHD requires lifelong care.
Surgery and medication give a better quality of life.
and so are we

CHD doesn’t end when childhood does. ❤️💙

That’s something I wish more people understood.

Our heart warriors grow up.

They become teenagers learning more about their own diagnosis, medications, limits, and bodies.

They become adults making decisions about work, school, relationships, pregnancy, insurance, specialists, and lifelong heart care.

And for many, there may still be:
appointments,
testing,
medications,
procedures,
monitoring,
and questions about what comes next.

The journey changes but it doesn’t simply disappear.

That’s why lifelong CHD care matters.
That’s why transition from pediatric to adult congenital cardiology matters.
And that’s why awareness has to include adults living with CHD too.

Our kids are more than their diagnosis, but their hearts may still need care for a lifetime. ❤️‍🩹

CHD is more than childhood. It’s a lifelong journey.

12/09/2026

Meet brave little heart Liyolitha, born on 21 December.
Liyolitha showed the signs of CHD: not feeding well, sweating profusely, heavy breathing especially when feeding, poor weight gain. for 2 months Liyolitha went undiagnosed despite visits to to her local clinic, Eventually, after the clinic and local hospital could not find the cause of her heavy breathing she was transferred to Red Cross Children's Hospital, where she was diagnosed with a Ventricular Septal Defect (VSD).
Little Liyolitha had her open heart surgery on 08 January and is doing really well.
Many mothers see they signs....... they just don't know what they are looking at. Many health care professionals misdiagnose because they too do not know the signs and symptoms of CHD.
Know the signs of CHD... Knowledge is power and can save a life like brave little heart Liyolitha.

Early detection saves lives.
And So Are We.

08/09/2026

Happy birthday Meeran

08/09/2026

Meet brave little heart, Meeran, who spent his first birthday in hospital just a few days after his open-heart surgery.

This is Meeran's story, written by his amazing mother Sadeeqah Roberts

From bed to balloons.
"They say raising boys is wild. But they don't tell you what it takes to keep one alive."

This video starts where no mother wants to stand: a nurse wheeling a tiny cot away down a long hospital hallway. That walk I will never forget. The walk where I had to hand my not-yet-one-year-old son over for a 6-7 hour open-heart surgery. I watched his little bed get smaller and smaller, and I made a duah with every step he took away from me. Then the tubes. Meeran, my Meeran, who has been fighting since day one with his heart condition. The same baby who had fever spikes and went into heart failure because of pneumonia and then double pneumonia that attacked his tiny lungs. There he is, so small, with a tube helping him breathe, wires on his chest, drains from his little body, chest bandaged where they opened him to heal him.

31/08/2026 - A date that will be written in his story forever. The day his heart was repaired. His tiny fingers with pink nails wrapped in bandages, holding onto my finger. In that moment, he doesn't need a machine to tell him he's safe. He has our Creator and me. His mama's hand is his whole world. The tears still on his long eyelashes, the little nose cannula helping him, the lips so dry. He cried, he fought, he was tired. But he was here. He made it through. And then, with Allah's mercy. Same boy. Same hospital crib. But different. A little boy sitting up, making a pouty face, alive, annoyed, beautiful. Looking at balloons on what should be his 1st birthday week. This is 12 months of Meeran. From a heart that struggled to beat, to a heart that was stopped and started again by Allah's permission. From heart failure to now, a journey to healing. From tubes to balloons.
Meeran didn't just survive open-heart surgery.
He taught us all what a strong heart really looks like.

01/09/2026

❤️💙 The language heart families learn…

Before CHD, so many of these words meant absolutely nothing to us.

Echo. Saturations. Gradient. Shunt. Cath. Anticoagulation. Pacemaker. Milrinone.

Then one day, they become part of your everyday vocabulary.

You learn what numbers are “normal” for YOUR child.

You learn medication names, doses, side effects, and schedules.

You learn how to describe symptoms to a cardiologist.

You learn enough about valves, pressures, rhythms, and blood flow to follow conversations you once would have never understood.

And sometimes you hear yourself talking to another heart parent and realize…

We really do have our own language. ❤️

But behind every medical word is something much bigger.

There’s a child.

There’s a family who had to learn.

There are appointments, hospital stays, late-night questions, celebrations, setbacks, and so much love.

None of us entered parenthood expecting to know this language.

We learned it because we had to.

We learned it so we could ask questions, understand the plan, and advocate for our children.

And somehow, words that once sounded terrifying eventually became part of our normal conversations. ❤️💙

Heart parents, what’s ONE medical word you never imagined you’d know so much about? 👇

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Cape Town

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