10/15/2026
Together, we can move PANS/PANDAS care forward.
Families need earlier recognition, better access to care and greater investment in research and medical education. Here are two ways to help:
๐จ๐ฆ Sign petition e-7791
Wendy Wittenbergโs House of Commons petition calls for a national strategy, targeted research funding and expanded professional training on infection-associated neuropsychiatric disorders.
Canadian citizens and residents can sign until February 4, 2027. Remember to click the verification link in Parliamentโs email so your signature counts.
https://www.ourcommons.ca/petitions/en/Petition/Details?Petition=e-7791
Add your experience to the Canadian PANS Registry
For children and adults in Canada affected by PANS/PANDAS, whether newly diagnosed, living with symptoms for years or in remission. Your experience can help researchers better understand these conditions and gaps in care.
The registry has research ethics approval, and participation is voluntary, confidential and free. Sharing health information is a personal decision. You can review the consent information before deciding, and we welcome your questions at [email protected].
https://pansregistry.ca
IBA welcomes this family-led advocacy alongside our registry, planned consensus guidelines initiative and May 2027 Toronto conference, with medical accreditation being pursued.
We need family advocacy, research, medical education and clinical consensus to move care forward together.
Please share to help both efforts reach more families.