Inflamed Brain Alliance

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Inflamed Brain Alliance Canadaโ€™s PANS PANDAS charity providing support, education & research.

Together, we can move PANS/PANDAS care forward.Families need earlier recognition, better access to care and greater inve...
10/15/2026

Together, we can move PANS/PANDAS care forward.

Families need earlier recognition, better access to care and greater investment in research and medical education. Here are two ways to help:

๐Ÿ‡จ๐Ÿ‡ฆ Sign petition e-7791
Wendy Wittenbergโ€™s House of Commons petition calls for a national strategy, targeted research funding and expanded professional training on infection-associated neuropsychiatric disorders.

Canadian citizens and residents can sign until February 4, 2027. Remember to click the verification link in Parliamentโ€™s email so your signature counts.

https://www.ourcommons.ca/petitions/en/Petition/Details?Petition=e-7791

Add your experience to the Canadian PANS Registry
For children and adults in Canada affected by PANS/PANDAS, whether newly diagnosed, living with symptoms for years or in remission. Your experience can help researchers better understand these conditions and gaps in care.

The registry has research ethics approval, and participation is voluntary, confidential and free. Sharing health information is a personal decision. You can review the consent information before deciding, and we welcome your questions at [email protected].

https://pansregistry.ca

IBA welcomes this family-led advocacy alongside our registry, planned consensus guidelines initiative and May 2027 Toronto conference, with medical accreditation being pursued.

We need family advocacy, research, medical education and clinical consensus to move care forward together.

Please share to help both efforts reach more families.

Happy Thanksgiving from the Inflamed Brain Alliance!Today, weโ€™re especially grateful for our PANS/PANDAS community acros...
10/12/2026

Happy Thanksgiving from the Inflamed Brain Alliance!

Today, weโ€™re especially grateful for our PANS/PANDAS community across Canada โ€” individuals living with PANS/PANDAS, families, caregivers, clinicians, researchers, volunteers, and advocates.

Itโ€™s a privilege to serve this community and work together toward greater understanding and better care.

We know the journey isnโ€™t always easy, especially during the holidays. Wherever you are, we hope today brings moments of peace, connection, and comfort.

Wishing you and your loved ones a restful Thanksgiving. ๐Ÿ

๐Ÿ’š Help put PANS/PANDAS on the map!330 landmarksโ€”nearly 100 more than in 2025. One incredible wave of green across the wo...
10/10/2026

๐Ÿ’š Help put PANS/PANDAS on the map!

330 landmarksโ€”nearly 100 more than in 2025. One incredible wave of green across the world for .

Share your photos and videos to capture how communities everywhere are shining a light on PANS/PANDAS and standing with everyone affectedโ€”because no one should face it alone.

๐Ÿ“ Our Google landmark map: Weโ€™ll upload selected landmark photos to the existing mapโ€”one per landmark, without peopleโ€”so visitors can click each location and see the landmark lit green.

๐ŸŽฌ Campaign collage and video: Landmark and community photos and videos, with or without people, are welcome!

Homes, workplaces and people wearing green count tooโ€”choose โ€œCommunity photosโ€ at the top of the formโ€™s list. You can also share a short personal message about what taking part meant to you.

Upload original files without added text or graphics, one landmark or set of community photos per response. Itโ€™s quick and easy!

๐Ÿ“ธ Submit by October 18:
https://tinyurl.com/LightUp4PANS2026Photos

๐Ÿ’š October 9 update: 328 landmarks and counting!Today is World PANS/PANDAS Awareness Day! Through  , 21 global partners h...
10/09/2026

๐Ÿ’š October 9 update: 328 landmarks and counting!

Today is World PANS/PANDAS Awareness Day! Through , 21 global partners have united to bring PANS/PANDAS into the lightโ€”raising visibility, building understanding and reminding people affected that they are not alone.

Find a landmark near you:

๐Ÿ“„ View the updated PDF, organized by country and region:
https://tinyurl.com/LightUp4PANS2026PDFOct9

๐Ÿ“ Explore Google Mapsโ€”browse locations, zoom in and plan your visit:
https://tinyurl.com/LightUp4PANS2026Map

Check the lighting date before visiting, as some landmarks light on nearby dates.

Visit a landmark, light your home or office green, or wear green today! Invite family, friends and colleagues to join you, and share why youโ€™re taking part.

๐Ÿ“ธ Help us capture the world lighting up green! Share your landmark photos for our interactive map and, with your permission, our campaign photo collage and video.

For the map, weโ€™ll select photos without people; for the collage and video, photos with or without people are welcome!

Submit photos: https://tinyurl.com/LightUp4PANS2026Photos

Need help? [email protected]

Today is World PANS/PANDAS Awareness Day!PANS/PANDAS are medical conditions that can cause sudden, life-altering changes...
10/09/2026

Today is World PANS/PANDAS Awareness Day!

PANS/PANDAS are medical conditions that can cause sudden, life-altering changes in a person's mental and physical health. Yet too many families still face delayed diagnoses and barriers to appropriate care.

Please share to help raise awareness. Greater understanding can lead to earlier recognition and better care for those affected.

๐Ÿ‡จ๐Ÿ‡ฆ Learn more: www.inflamedbrain.org

It's World PANS/PANDAS Awareness Day!Help us spread awareness today by adding a   frame to your Facebook profile picture...
10/09/2026

It's World PANS/PANDAS Awareness Day!

Help us spread awareness today by adding a frame to your Facebook profile picture!

It's a simple way to show your support, start conversations, and help more people learn about PANS/PANDAS.

Choose from four profile frames and customize yours here: https://canva.link/8ja2k5a6n3d8ady

How to Create Your Awareness Day Profile Frame
1. Open the Canva link above to access the frames.
2. Click File โ†’ Make a copy to create your own editable version.
3. Select Uploads โ†’ Upload files to add your profile photo.
4. Drag your photo into the circular frame and adjust its position.
5. Click Share โ†’ Download (or tap the download icon on mobile).
6. Select your favourite frame and download it to your device.
7. Upload your new image as your Facebook profile picture!

Let's fill Facebook with green today and help bring PANS/PANDAS into the light!

This World PANS/PANDAS Awareness Day, help us turn lived experiences into meaningful change.Across Canada, individuals a...
10/09/2026

This World PANS/PANDAS Awareness Day, help us turn lived experiences into meaningful change.

Across Canada, individuals and families affected by PANS/PANDAS continue to face delayed diagnoses, limited access to knowledgeable healthcare providers, and barriers to timely, appropriate treatment.

We need better recognition, more research, improved medical education, and equitable access to care. And we need Canadian data to help make that possible.

๐Ÿ‡จ๐Ÿ‡ฆ The research ethics-approved Canadian PANS Registry has reached its first milestone of 100 participants, and we're preparing to share the first aggregated findings from this important initiative.

But we're just getting started!

Every person who joins helps us better understand the experiences of Canadians living with PANS/PANDAS, strengthening the evidence needed to inform research, clinical education, and advocacy for improved care.

Whether you're newly diagnosed, have lived with PANS/PANDAS for years, or are now in remission, your experience matters. Both children and adults are welcome.

Our next milestone is 150 participants. Help us get there!

Participation is free, voluntary, and confidential.

๐Ÿ”— Join the Canadian PANS Registry: https://pansregistry.ca

Your experience is more than a story. It's part of the evidence that can help shape a better future for Canadians affected by PANS/PANDAS.

Calgary, join us for the   Calgary Tower Meet-Up!Tomorrow, Friday, October 9, the Calgary Tower will light green for Wor...
10/08/2026

Calgary, join us for the Calgary Tower Meet-Up!

Tomorrow, Friday, October 9, the Calgary Tower will light green for World PANS/PANDAS Awareness Day, joining landmarks around the world helping shine a light on PANS/PANDAS.

Weโ€™d love to have families, friends and supporters from the Calgary area join us to see it light up together.

Friday, October 9, 7:00 PM
๐Ÿ“ Calgary Tower, Calgary
Meet in the parking lot at 1111 1st St. SE.
Google Maps โ€” https://maps.app.goo.gl/xscz6fqxguguku8v5

Wear green if you can, bring your family and friends, and come be part of this special evening. Weโ€™ll have signs printed for photos! ๐Ÿ’š

Live near a participating landmark in Canada? Weโ€™d love to see your photos! Send us a DM or email [email protected] so we can share them with our community.

๐Ÿ’š Celebrating our 21 global   partners!Behind this initiative are people reaching out to landmarks, sharing resources an...
10/08/2026

๐Ÿ’š Celebrating our 21 global partners!

Behind this initiative are people reaching out to landmarks, sharing resources and bringing communities together for World PANS/PANDAS Awareness Day on October 9.

To every partner: thank you for your time, persistence and care. Your contributions make this global effort possible.

Across countries and languages, weโ€™re helping families know they are not alone.

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PO Box 71023 Silver Springs
Calgary, AB
T3B5K2

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