Young Epilepsy

29/10/2026

Do you want to help shape autism and epilepsy research and care?

Our research team is exploring a new type of brain-scanning technology called OPM-MEG and wants to hear directly from autistic children and young people about their experience of the equipment and environment.

Taking part does not involve a brain scan. You will be invited to visit our research centre, in Lingfield Surrey, try on the OPM-MEG helmet, explore the scanning environment and share feedback about what works well and what could be improved.

We want to hear from autistic children and young people with epilepsy, or suspected epilepsy.

Your feedback will help make future research and clinical assessments more accessible and inclusive for autistic children and young people.

👉 Interested in taking part? Register here: https://ow.ly/E8uA50ZZqTS

Or you can email/call:
📧 [email protected]
📞 01342 831273

Thank you for helping us shape the future of autism and epilepsy research. 💜

28/10/2026

Stories. Community. Impact. 💜

When a child is diagnosed with epilepsy, life can change in an instant. Families are left asking: what happens next? Too many families are given life-changing news and left to cope alone.

Our new Transforming Lives Together booklet is packed with voices from families just like yours.

👉 Young people living with epilepsy who have shared their journeys, and parents and carers who found support through Young Epilepsy and have gone on to give something back. Their stories are honest, moving and full of hope: https://ow.ly/wzcY5101eyG

27/10/2026

Every child living with epilepsy deserves the right support around them 💜

Our free one-to-one Youth Support service matches young people aged 8 to 25 with a dedicated Youth Support Coordinator, someone who will listen, understand and tailor their support entirely to your child's individual needs.

Parents/carers can refer their child by simply submitting the form on their behalf: https://ow.ly/2YRw5101exL

27/10/2026

We need your imagination! We’re creating a friendly new mascot for Young Epilepsy - and we want children to help shape the character. What kind of purple animal should it be? What should it be called? And what would make it special?

Ready to create your mascot? Download your entry pack today and get started: https://www.youngepilepsy.org.uk/resources/design-our-new-mascot

Make sure to submit your entry by 1 Dec 2026.

27/10/2026

There's still time to take part - see details in the post below 👇

Do you want to help shape autism and epilepsy research and care?

Our research team is exploring a new type of brain-scanning technology called OPM-MEG and wants to hear directly from autistic children and young people about their experience of the equipment and environment.

Taking part does not involve a brain scan. You will be invited to visit our research centre, in Lingfield Surrey, try on the OPM-MEG helmet, explore the scanning environment and share feedback about what works well and what could be improved.

We want to hear from autistic children and young people with epilepsy, or suspected epilepsy.

📅 Appointments are available during the half-term break.

Your feedback will help make future research and clinical assessments more accessible and inclusive for autistic children and young people.

👉 Interested in taking part? Register here: https://ow.ly/E8uA50ZZqTS

Or you can email/call:
📧 [email protected]
📞 01342 831273

Thank you for helping us shape the future of autism and epilepsy research. 💜

26/10/2026

Young people with epilepsy are often defined by other people's assumptions.

That's why last year we teamed up with Jake Lambert and members of our Youth Voice Network to create a documentary exploring what happens when young people are given a microphone, a stage and the confidence to share their stories.

Through stand-up comedy, they tackle stigma, challenge misconceptions and show that epilepsy does not define who they are or what they're capable of.

The documentary also highlights the power of bringing young people together. As one of the young people explains, meeting others with shared experiences helped them realise they weren't alone.

🎬 You can watch the full documentary on YouTube now – https://youtu.be/Nh4-eNJetKk

If you'd like to help us create more opportunities like this for children and young people with epilepsy, tickets are now available for our next comedy night on 22 March 2027.

The perfect Christmas gift and every ticket sold helps support Young Epilepsy's work.

🎟️ Get your tickets here: https://www.youngepilepsy.org.uk/new-events/big-laugh-at-comedy-store

25/10/2026

"If I’m open and honest about my epilepsy, people want to help.”

Renell, Youth Voice Network member, and our Youth Support team members Marianna and Alex emphasise how powerful understanding can be in protecting the epilepsy community from bullying, isolation and stigma.

On , hear them reflect on stories of bullying and social media harassment and why there's still a need to make offline and online spaces truly safe for young people living with epilepsy.

Every young person deserves to feel accepted and supported.

💻 Explore the support and resources available to your child and family: https://ow.ly/6WoW50ZZzLJ

🎙️ Watch the full Let’s Talk About Epilepsy podcast episode: https://ow.ly/Ssgg50ZZzLK

📲 And remember, your child can text PURPLE to 85258 to connect with a trained Shout volunteer. Free, confidential and available any time of the day or night.

25/10/2026

"We got the bright eyes back. We got the smiles." 💜

In this clip from our latest Let's Talk About Epilepsy podcast episode, Marie shares her daughter Amelia's experience of starting the ketogenic diet.

After trying multiple anti-seizure medications and continuing to experience up to 100 seizures a day, Marie explains the difference she saw when Amelia started ketogenic diet therapy, including a significant reduction in seizures and improvements in her alertness and engagement.

The episode also highlights an important message: while ketogenic diet therapy can be life-changing for some children and young people with drug-resistant epilepsy, it is a medical treatment that should always be managed by an experienced healthcare team.

A huge thank you to Vitaflo for sponsoring this episode and supporting conversations that help families better understand epilepsy treatment options.

🎧 Watch or listen to the full episode of the Let's Talk About Epilepsy podcast on Spotify, YouTube, Apple Podcasts and all major podcast platforms.

💜 Want to learn more about the ketogenic diet and epilepsy? Visit the Young Epilepsy website and search "Keto" for trusted information and support.

Remember epilepsy is a highly individualised condition. The information, experiences and views shared in this podcast may not reflect those of Young Epilepsy and are not intended to replace professional medical advice. Always consult a qualified healthcare provider for personalised support.

If you're child is feeling sad, worried or lonely, they can text PURPLE to 85258 to start a conversation with a trained Shout volunteer 24/7.

24/10/2026

Don't just take our word for it. 💜

Hear from young people who have completed MyEpilepsyMind and learn how the course helped them better understand their wellbeing and develop practical coping skills.

See how MyEpilepsyMind can help: https://www.youngepilepsy.org.uk/myepilepsymind-digital-self-help-resource

24/10/2026

Do you want to help shape autism and epilepsy research and care?

Our research team is exploring a new type of brain-scanning technology called OPM-MEG and wants to hear directly from autistic children and young people about their experience of the equipment and environment.

Taking part does not involve a brain scan. You will be invited to visit our research centre, in Lingfield Surrey, try on the OPM-MEG helmet, explore the scanning environment and share feedback about what works well and what could be improved.

We want to hear from autistic children and young people with epilepsy, or suspected epilepsy.

📅 Appointments are available during the half-term break.

Your feedback will help make future research and clinical assessments more accessible and inclusive for autistic children and young people.

👉 Interested in taking part? Register here: https://ow.ly/E8uA50ZZqTS

Or you can email/call:
📧 [email protected]
📞 01342 831273

Thank you for helping us shape the future of autism and epilepsy research. 💜