New England Hemophilia Association

10/29/2026

Applications are now open to attend Washington Days in March of 2027!

This is an excellent opportunity for you to share your story with your elected officials and their staff while also asking for them to support policies that are important to our community. First-time attendees will be paired with seasoned advocates to help every step of the way! NEHA will be awarding one travel scholarship to a patient or family from each New England state to attend. Sign up below.

NBDF is hosting their Annual Washington Days program in Washington, DC from Wednesday, March 3 to Friday, March 5.

10/28/2026

More than seven years ago, Chip was one of the first patients to receive gene therapy for hemophilia B as part of CSL’s clinical trial. On Wednesday, November 11, at 6 PM, he’ll join us at Timber Kitchen and Bar in Bangor, ME, to share his journey and what life has been like since receiving treatment.

In addition to enjoying dinner, attendees will also hear from Dr. Richard Lemons, MD, medical director and professor of pediatrics in the Division of Pediatric Hematology/Oncology at the University of Utah. A Q&A period will follow. Sign up below to join us.

On Wednesday, November 11 at 6 PM, we are hosting an educational dinner at Timber Kitchen and Bar in Bangor, ME with CSL.

10/27/2026

Michael Eck has lived with hemophilia his entire life, but it wasn’t until he was more than 50 years old, when he attended his first NEHA event, that he connected with the bleeding disorders community and met someone outside his family who also had hemophilia.

On a recent episode of the BloodStream Media, Michael shared his story about living with a bleeding disorder. He also shared how finding NEHA changed his life and his hopes for future generations, including his grandson, who also has hemophilia. Watch the episode below to hear his story!

10/22/2026

Last week, eight young adults from New England represented our community at the Save One Life, Inc. NEXT Leaders Congress in Phoenix, Arizona!

The more than 50 young adults from across the country spent the long weekend building leadership skills, exploring advocacy, learning to navigate the healthcare system with confidence, and discovering how they can make a difference in the bleeding disorders community. Just as importantly, they connected with peers who share their experiences and understand the importance of supporting one another.

We’re so proud to see so many young leaders from our community take part in this program and we look forward to seeing how they apply their skills and connections to shape the future of our community!

10/21/2026

Are you ready to get in the game? The CSL Junior National Championship (JNC) returns in 2027, and we’re inviting athletes from our community to apply!

Kids ages 7–18 living with a bleeding disorder can take part in this unique experience, building skills in swimming, golf, baseball, or basketball while enjoying friendly competition and connecting with peers from across the country. CSL will cover transportation and lodging for selected participants and a parent or guardian.

Apply by December 11 for the chance to represent our community: www.newenglandhemophilia.org/events/jnc27

10/19/2026

Do you have a topic you think the national bleeding disorders community should know more about? Share your knowledge, experience, and ideas at the National Bleeding Disorders Foundation Annual Bleeding Disorders Conference (BDC) next summer!

NBDF invites community members to develop and lead sessions that educate, inspire, and connect attendees. Learn how you can bring your voice to BDC by clicking below. Travel and accommodations for selected speakers will be covered by NBDF. Apply by November 20!

Join us in National Harbor, Maryland for the 2027 NBDF’s Bleeding Disorders Conference for expert education, networking, and the latest research for patients, families, and health care professionals.

10/16/2026

Join us on Wednesday, November 11 at 6 PM for an educational dinner with CSL at Timber Kitchen and Bar in Bangor, ME.

Enjoy a delicious meal while learning more about a long-term treatment option for people with hemophilia B. You’ll hear directly from Chip, a patient who has received this treatment, and have the opportunity to learn from and ask questions of Dr. Richard Lemons, medical director and a professor of pediatrics in the Division of Pediatric Hematology/Oncology at the University of Utah. Sign up below to join us!

On Wednesday, November 11 at 6 PM, we are hosting an educational dinner at Timber Kitchen and Bar in Bangor, ME with CSL.

10/13/2026

There’s still time to nominate someone who makes a difference in our community! Nominations for the NEHA Annual Awards at FallFest will be accepted until tomorrow, Wednesday, October 14.

This year’s awards include: Advocate of the Year, The Matty Vieira Service Award, New Family Engagement Award, The Spirit of Philanthropy Award, Volunteer of the Year Award, Champion of Healthcare Award and BLeader Teen Award.

Submit your nomination today at www.nehafallfest.org.

10/12/2026

Join us virtually on Tuesday, October 20, at 6:30 PM for an educational presentation with Pfizer focused on a treatment option for people with hemophilia A and hemophilia B.

You’ll learn about the science behind this rebalancing approach, how it works, and what clinical trials have shown so far. You’ll also have the opportunity to explore this treatment option in more detail and gain information to help you have informed conversations with your healthcare team. Learn more and register today by clicking below!

On Tuesday, October 20 at 6:30 PM, we are hosting a virtual educational presentation with Pfizer.

10/09/2026

Despite it being peak pumpkin spice season in New England, we’re already getting into the holiday spirit! Registration is now open for both of our annual Holiday Parties!

Trade your flannel for your ugliest holiday sweater and join us for a festive lunch, arts and crafts, and a special visit from Santa Claus. Children younger than 12 will also receive a special gift.

🎄 North: Saturday, December 5 in Bangor, ME
🎄 South: Sunday, December 6 in Lincoln, RI

Learn more and register at www.nehaevents.org.