Hereditary Angioedema Association - HAEA

Hereditary Angioedema Association - HAEA Founded and staffed by HAE patients and HAE patient caregivers, we are a non-profit patient advocacy organization dedicated to serving persons with HAE.
(82)

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who r...
05/09/2020

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who reside in the United States and have a confirmed HAE diagnosis. *One kit per child and the child must be a member of the US HAEA to qualify.
If you would like an HAE Attack Support Kit sent to your child, please email Lisa Facciolla at [email protected].
#HAEAttackKit #HAEAkids #BradyClub

🚩NEW MEXICO, IT’S YOUR TURN: NEW HAEA VIRTUAL MEET & GREET! We invite all New Mexico patients and caregivers to connect ...
05/08/2020
Virtual New Mexico Monday Meet & Greet

🚩NEW MEXICO, IT’S YOUR TURN: NEW HAEA VIRTUAL MEET & GREET! We invite all New Mexico patients and caregivers to connect with us for a Virtual Meet & Greet event on Monday, May 18th at 6:00 PM MST. This is a great opportunity for patients, families, and friends to learn about HAEA programs and services available to you, hear from HAEA staff, ask your HAE questions, and meet others in your local HAE community! REGISTER HERE 💻: https://fundraise.haea.org/event/virtual-new-mexico-monday-meet-and-greet/e283298, or contact Mike Mallory at [email protected]. #HAEAMeetGreet #HAE #HereditaryAngioedema

HEREDITARY ANGIOEDEMA ASSOCIATION INC

05/08/2020
hae day :-) Virtual Walk (US HAEA)

🏃 GET READY TO JOIN 2020 hae day :-) How to HAE Campaign! The How to HAE (Host A “Virtual” Event) campaign is an EASY way to RAISE HAE AWARENESS, and FUNDS, or simply RAISE your SPIRIT VIRTUALLY! As part of our How to HAE campaign, you can REGISTER for the Stepping Forward Together Virtual Walk to track a variety of activities like biking, swimming, yoga, or others, and convert those activities to steps. Help us get to our goal of 25,000 miles by May 31st by registering and tracking your steps while you raise HAE awareness and funds. Register HERE 👣 https://www.charityfootprints.com/haea2020/. Don’t forget to submit your photos on the scrapbook section to compete for awards in this week’s most #haedayScenic Photo Challenge! #HAEAVirtualWalk #HAEawareness #HAE #HereditaryAngioedema

05/07/2020
Nathan's HAE Story

🗣️ SHARE NATHAN’s HAE story and raise awareness! If you would like your HAE story to be featured in our social media channels, please fill out this form: https://bit.ly/3aGHdDe. Your powerful STORY helps raise HAE awareness! #HAEawareness #HAE #HereditaryAngioedema.

05/07/2020
Nico's Lunchbox - ENGLISH Audiobook

🎧 📚Listen to Nico’s Lunchbox’s first AUDIOBOOK on YouTube with your family! Tune in to the US HAEA YouTube channel (ushaea) here https://youtu.be/-rab8u5Put0 and choose the English or Spanish versions. #NicosLunchbox #HAEAkids #BradyClub

Nico's Lunchbox Audiobook - ENGLISH The US HAEA teamed up with children’s author Caryn Sonberg Seiler to develop a three-book series that will help kids lear...

🏥 Wishing Nurses A Happy And Healthy Nurses Week. Thank you for all that you do. #NursesWeek #HAE #HereditaryAngioedema
05/07/2020

🏥 Wishing Nurses A Happy And Healthy Nurses Week. Thank you for all that you do. #NursesWeek #HAE #HereditaryAngioedema

✅ Lower your stress levels to stay healthy. Remember that the HAEA is here to answer your questions and address any conc...
05/06/2020

✅ Lower your stress levels to stay healthy. Remember that the HAEA is here to answer your questions and address any concerns. Please feel free to contact any of the HAEA Health Advocates at (866) 798-5598. #HAEAhealth #HAE #HereditaryAngioedema #MentalHealth #HOPE

🎙️HAEA SPEAKS PODCAST - 1st EPISODE! The US HAEA is excited to announce the launch of the HAE Speaks Podcast. Patients, ...
05/06/2020
What is HAE? by HAE Speaks • A podcast on Anchor

🎙️HAEA SPEAKS PODCAST - 1st EPISODE! The US HAEA is excited to announce the launch of the HAE Speaks Podcast. Patients, caregivers, and medical professionals will be bringing you podcast episodes discussing important HAE topics. Episode 1 is hosted by Missy. Listen to Missy’s Episode HERE https://bit.ly/2A32Cc5 #HAESpeaks #HAE #HereditaryAngioedema #RareDisease

A brief overview of HAE and the Hereditary Angioedema Association.

05/05/2020
Beyond HAE Podcast Jack

🎙️New #BeyondHAE podcast episode is now available! May's episode of the #BeyondHAE Podcast series is now available, hosted by Jack. Click here to listen to our latest episodes https://anchor.fm/haeayouth. #HAE #HereditaryAngioedema #YouthAdvocacy

🗞️Get the latest HAE news from the HAEA in Action May 2020 Newsletter! Check out the Newsletter here: https://bit.ly/35y...
05/05/2020

🗞️Get the latest HAE news from the HAEA in Action May 2020 Newsletter! Check out the Newsletter here: https://bit.ly/35yVT5q #IMAGINEthePossibilities #HAEAnewsletter

05/05/2020
hae day :-) Virtual Walk (US HAEA)

👣 🏃START COUNTING your STEPS by joining the 2020 hae day :-) Stepping Forward Together Virtual Walk! Track a variety of activities like biking, swimming 🏊, yoga 🧘 , or others, and convert those activities to steps. Together we can reach our goal of 25,000 miles by May 31st. This week, we are holding the most #haedayScenic Photo Challenge! Submit your photo on the Scrapbook section of the website by May 11th and you can win an award!
Register HERE https://www.charityfootprints.com/haea2020/

#HAEAVirtualWalk #HAEawareness #HAE #HereditaryAngioedema

🚩Attention Virginia Patients and Caregivers! Don’t miss our EXCLUSIVE HAEA Virtual Meet & Greet event TODAY at 6:00 PM E...
05/04/2020

🚩Attention Virginia Patients and Caregivers! Don’t miss our EXCLUSIVE HAEA Virtual Meet & Greet event TODAY at 6:00 PM EST and connect with us from the comfort of your home. This is a great opportunity for patients, families, and friends to learn about HAEA programs and services available to you, hear from HAEA staff, ask your HAE questions, and meet others in your local HAE community! REGISTER HERE: https://fundraise.haea.org/event/virtual-virginia-monday-meet-and-greet/e282817 or contact Mike Mallory at [email protected]. #HAEAMeetGreet #HAE #HereditaryAngioedema

05/04/2020
Special HAEA Webinar Brief featuring Troyce Venturella, MPH, RN, CCM

🚩Message from US HAEA President, Tony Castaldo:
We invite you to watch this special HAEA Webinar Brief featuring Troyce Venturella, MPH, RN, CCM.

❓“How to deal with the loss of health insurance due to COVID-19"

HAEA Nurse Case Manager, Troyce Venturella outlines strategies and steps to find alternatives and maintain an uninterrupted supply of HAE medicines.

💻 Watch the VIDEO HERE: https://youtu.be/p5s1j3ePg1I
#HAE #HereditaryAngioedema #COVID19 #Coronavirus

🔬Do you want to participate in a new Clinical Trial? For more information about new clinical trials, and study sites nea...
05/03/2020

🔬Do you want to participate in a new Clinical Trial? For more information about new clinical trials, and study sites near you, please contact John Williamson at [email protected] or CLICK HERE: https://www.haea.org/pages/p/advances. #ClinicalTrials #AdvancesinResearch #HAE #HereditaryAngioedema

💡#HAEASpotlight "My name is Adina and I’m from Louisville, Kentucky. For me, living with Hereditary Angioedema (HAE) mea...
05/03/2020

💡#HAEASpotlight "My name is Adina and I’m from Louisville, Kentucky. For me, living with Hereditary Angioedema (HAE) means adapting to difficult situations, advocating for myself and all patients, and appreciating the progress that’s been made when it comes to available treatments." – Adina (Kentucky). We're SPOTLIGHTING Adina’s incredible JOURNEY. Follow her STORY on Instagram and Facebook! #HAEASpotlightAdina #IMAGINEthePossibilities

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who r...
05/02/2020

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who reside in the United States and have a confirmed HAE diagnosis. *One kit per child and the child must be a member of the US HAEA to qualify.

If you would like an HAE Attack Support Kit sent to your child, please email Lisa Facciolla at [email protected].
#HAEAttackKit #HAEAkids #BradyClub

📲Participate in the HAEA VIRTUAL SUPPORT GROUP MEETINGS! Whether you are an HAE patient or caregiver, you may find it he...
05/01/2020

📲Participate in the HAEA VIRTUAL SUPPORT GROUP MEETINGS! Whether you are an HAE patient or caregiver, you may find it helpful to turn to others outside your immediate circle for support. For more information, contact Troyce Venturella at [email protected] or (866) 798-5598. #SupportGroups #HAE #HereditaryAngioedema

05/01/2020
hae day :-) Virtual Walk (US HAEA)

🏃GET READY TO JOIN 2020 hae day :-) How to HAE Campaign! The How to HAE (Host A “Virtual” Event) campaign is an EASY way to RAISE HAE AWARENESS, and FUNDS, or simply RAISE your SPIRIT VIRTUALLY! As part of our How to HAE campaign, you can REGISTER for the Stepping Forward Together Virtual Walk to track a variety of activities like biking 🚴‍♀️, swimming 🏊 , yoga 🧘‍♂️ , or others, and convert those activities to steps 👣. Help us get to our goal of 25,000 miles by May 31st by registering and tracking your steps while you raise HAE awareness and funds. Register HERE https://bit.ly/2YnecJ9. Submit your photos doing the activities that you LOVE on the scrapbook section and win awards! #HAEAVirtualWalk #HAEawareness #HAE #HereditaryAngioedema

04/30/2020
Nico's Lunchbox - ENGLISH Audiobook

🎧 📕Listen to Nico’s Lunchbox first AUDIOBOOK on YouTube with your family! Tune in to the US HAEA YouTube channel (ushaea) here https://youtu.be/-rab8u5Put0 and choose the English or Spanish versions. #NicosLunchbox #HAEAkids #BradyClub

Nico's Lunchbox Audiobook - ENGLISH The US HAEA teamed up with children’s author Caryn Sonberg Seiler to develop a three-book series that will help kids lear...

🗣️BE PART of the #BeyondHAE Challenge like Jasmeen! We want to know what you’re doing to keep yourself busy while most o...
04/29/2020

🗣️BE PART of the #BeyondHAE Challenge like Jasmeen! We want to know what you’re doing to keep yourself busy while most of the country is spending an increasing amount of time at home. Whatever you’re doing to pass the time, we challenge you to take a photo of it and post it online using the #BeyondHAE hashtag.

How to participate:
- Post a photo or video of yourself doing something fun at home.
- Use the Hashtag #BeyondHAE in your post,
- Include the #BeyondHAE logo in the photo or video you post on Facebook, Instagram, and TikTok. (make sure the words #BeyondHAE are clear and easy to read on your photo)
- If posting on Instagram, tag @haeayouth.
- To download the digital version of the #BeyondHAE logo to use in your social media or video post, go HERE HAEA.org.
- To get a #BeyondHAE sticker by mail, you can place the online order HERE HAEA.org.

#HAE #HAEAyouth #HereditaryAngioedema #RareDisease

✅ Reducing your stress keeps you healthy. Remember that the HAEA is here to answer your questions and address any concer...
04/28/2020

✅ Reducing your stress keeps you healthy. Remember that the HAEA is here to answer your questions and address any concerns. Please feel free to contact any of the HAEA Health Advocates at (866) 798-5598. #HAEAhealth #HAE #HereditaryAngioedema #MentalHealth #HOPE

😷How to protect yourself from COVID-19 (Coronavirus)? Slow the spread in your community. 4. Cover your mouth and nose wi...
04/27/2020

😷How to protect yourself from COVID-19 (Coronavirus)? Slow the spread in your community.
4. Cover your mouth and nose with a cloth face cover when around others
Source: Centers for Disease Control and Prevention (CDC). For more information go to www.cdc.gov
#HAE #HereditaryAngioedema #Coronavirus #COVID19

💡#HAEASpotlight "Hereditary Angioedema (HAE) is a part of who I am. I will continue to do my part to help improve treatm...
04/26/2020

💡#HAEASpotlight "Hereditary Angioedema (HAE) is a part of who I am. I will continue to do my part to help improve treatment and find a cure for this condition. I’m thankful for the opportunity to share my story with everyone." – Red (Alabama). We're SPOTLIGHTING Red’s incredible JOURNEY. Follow his STORY on Instagram and Facebook! #HAEASpotlightRed #IMAGINEthePossibilities

🚨🐻HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who r...
04/25/2020

🚨🐻HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who reside in the United States and have a confirmed HAE diagnosis. *One kit per child and the child must be a member of the US HAEA to qualify.

If you would like an Attack Kit sent to your child, please email Lisa Facciolla at [email protected].
#HAEAttackKit #HAEAkids #BradyClub

✅ Join the HAEA VIRTUAL SUPPORT GROUP MEETINGS! Whether you are an HAE patient or caregiver, you may find it helpful to ...
04/24/2020

✅ Join the HAEA VIRTUAL SUPPORT GROUP MEETINGS! Whether you are an HAE patient or caregiver, you may find it helpful to turn to others outside your immediate circle for support. For more information contact Troyce Venturella at [email protected] or (866) 798-5598. #SupportGroups #HAE #HereditaryAngioedema

04/24/2020
HAEA Webinar Brief featuring expert HAE Physician Dr. Marc Riedl

🚩Message from US HAEA President, Tony Castaldo:
We invite you to watch this special HAEA Webinar Brief featuring expert HAE Physician Dr. Marc Riedl.
❓“How I would treat one of my HAE patients infected with the COVID-19 (Coronavirus)."
HAE expert physician Dr. Riedl shares his thoughts and treatment strategy should a patient under his care contract the COVID-19 (Coronavirus).

💻 Watch the VIDEO HERE: https://youtu.be/xOMtLdjhNtk
#HAE #HereditaryAngioedema #COVID19 #Coronavirus

📕TODAY is #WorldBookDay! Celebrate this amazing day by watching our Nico’s Lunchbox AUDIOBOOKS on YouTube! Tune in to th...
04/23/2020

📕TODAY is #WorldBookDay! Celebrate this amazing day by watching our Nico’s Lunchbox AUDIOBOOKS on YouTube! Tune in to the US HAEA YouTube channel (ushaea) here https://www.youtube.com/user/ushaea, and choose the English or Spanish versions #NicosLunchbox #HAEAkids #BradyClub

🗣️Are you ready to participate in the #BeyondHAE Social Media Challenge❓We want to know what you’re doing to keep yourse...
04/22/2020

🗣️Are you ready to participate in the #BeyondHAE Social Media Challenge❓We want to know what you’re doing to keep yourself busy while most of the country is spending an increasing amount of time at home. Whatever you’re doing to pass the time, we challenge you to take a photo of it and post it online using the #BeyondHAE hashtag.

❓How to participate:

Post a photo or video of yourself doing something fun at home
- Use the Hashtag #BeyondHAE in your post
- Include the #BeyondHAE logo in the photo or video you post on Facebook, Instagram, and TikTok. (make sure the words #BeyondHAE are clear and easy to read on your photo)
- If posting on Instagram, tag @haeayouth
- To download the digital version of the #BeyondHAE logo to use in your social media or video post, go HERE https://www.haea.org//assets/img/BeyondHAE1860x500.png.
- To get a #BeyondHAE sticker by mail, you can place the online order HERE https://www.haea.org/autoforms/f/103.

#HAE #HAEAyouth #HereditaryAngioedema #RareDisease

✅ Reducing your stress keeps you healthy. Remember that the HAEA is here to answer your questions and address any concer...
04/21/2020

✅ Reducing your stress keeps you healthy. Remember that the HAEA is here to answer your questions and address any concerns. Please feel free to contact any of the HAEA Health Advocates at (866) 798-5598. #HAEAhealth #HAE #HereditaryAngioedema #MentalHealth

🤧 How to protect yourself from COVID-19 (Coronavirus)? Slow the spread in your community. 3. Cover coughs and sneezesSou...
04/20/2020

🤧 How to protect yourself from COVID-19 (Coronavirus)? Slow the spread in your community.
3. Cover coughs and sneezes
Source: Centers for Disease Control and Prevention (CDC). For more information go to www.cdc.gov.
#HAE #HereditaryAngioedema #Coronavirus #COVID19

🔬Do you want to participate in a new Clinical Trial? There are currently several HAE clinical trials taking place in the...
04/19/2020

🔬Do you want to participate in a new Clinical Trial? There are currently several HAE clinical trials taking place in the US. For more information about new clinical trials, and study sites near you, please contact John Williamson at [email protected] or CLICK HERE: https://www.haea.org/pages/p/advances. #ClinicalTrials #AdvancesinResearch #HAE #HereditaryAngioedema

💡#HAEASpotlight “Hereditary Angioedema (HAE) therapies change my life! My first HAE treatment was like a miracle. It see...
04/19/2020

💡#HAEASpotlight “Hereditary Angioedema (HAE) therapies change my life! My first HAE treatment was like a miracle. It seemed like turning a light switch off; my stomach pain subsided within minutes. That treatment was by IV infusion. Then, came a treatment by injection, which was much easier to self administer.

Since that time I have been involved in two more clinical trials; first for a new injection and another one for an oral pill." – Red (Alabama). We're SPOTLIGHTING Red’s incredible JOURNEY. Follow his STORY on Instagram and Facebook! #HAEASpotlightRed #IMAGINEthePossibilities

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who r...
04/18/2020

⛑️HAE Attack Support Kit for Kids! HAE Attack Support Kits are available for children between the ages of 2 and 13 who reside in the United States and have a confirmed HAE diagnosis. *One kit per child and the child must be a member of the US HAEA to qualify.

If you would like an Attack Kit sent to your child, please email Lisa Facciolla at [email protected].

#HAEAttackKit #HAEAkids #BradyClub

➡️ #MeetJohn “Fun Facts:I live in Austin, TX.  In my free time, I enjoy camping on the beaches of our beautiful Texas co...
04/17/2020

➡️ #MeetJohn “Fun Facts:
I live in Austin, TX.
In my free time, I enjoy camping on the beaches of our beautiful Texas coast.” – John Williamson. Follow John’s STORY! Reach out to John at [email protected]! #HAEAStaff #HAE #HereditaryAngioedema #IMAGINEthePossibilities

Address

10560 Main Street, Suite PS40
Fairfax, VA
22030

Alerts

Be the first to know and let us send you an email when Hereditary Angioedema Association - HAEA posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Business

Send a message to Hereditary Angioedema Association - HAEA:

Videos

Nearby health & beauty businesses