Hereditary Angioedema Association - HAEA

Hereditary Angioedema Association - HAEA Founded and staffed by HAE patients and HAE patient caregivers, we are a non-profit patient advocacy organization dedicated to serving persons with HAE.
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Operating as usual

📣 Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet ...
07/20/2021

📣 Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet and Greet for YOU! Join us TONIGHT at 6:30 PM ET to connect with other people affected by HAE and their caregivers in your area. We look forward to seeing you there!

✅ To attend this event, please register HERE:
https://fundraise.haea.org/event/july-haea-meet-and-greet/e319922
#HAE #HAEA #HereditaryAngioedema #MeetAndGreet

📣 Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet and Greet for YOU! Join us TONIGHT at 6:30 PM ET to connect with other people affected by HAE and their caregivers in your area. We look forward to seeing you there!

✅ To attend this event, please register HERE:
https://fundraise.haea.org/event/july-haea-meet-and-greet/e319922
#HAE #HAEA #HereditaryAngioedema #MeetAndGreet

📣 The FINAL 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Submit your best family photo and use the hash...
07/20/2021

📣 The FINAL 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Submit your best family photo and use the hashtag #HAEINMOTIONfamily for your chance to win an HAEA merchandise prize! 👨‍👩‍👦 📸

*Your photo must be posted by July 31st at midnight to be eligible!*

Forgot to post a photo? No problem! You and your team also have the chance to win prizes in our weekly team networking award, step award, and fundraising award!

It’s not too late to join the fun! Register today for the 2021 HAE IN-MOTION® Virtual Challenge and help us reach our goal of raising HAE awareness and completing 50,000 miles!!

✅ Register HERE: https://www.charityfootprints.com/HAEINMOTION2021
#HAEINMOTION #HAE #HereditaryAngioedema

📣 The FINAL 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Submit your best family photo and use the hashtag #HAEINMOTIONfamily for your chance to win an HAEA merchandise prize! 👨‍👩‍👦 📸

*Your photo must be posted by July 31st at midnight to be eligible!*

Forgot to post a photo? No problem! You and your team also have the chance to win prizes in our weekly team networking award, step award, and fundraising award!

It’s not too late to join the fun! Register today for the 2021 HAE IN-MOTION® Virtual Challenge and help us reach our goal of raising HAE awareness and completing 50,000 miles!!

✅ Register HERE: https://www.charityfootprints.com/HAEINMOTION2021
#HAEINMOTION #HAE #HereditaryAngioedema

A HUGE thank you to everyone who attended and made the third installment of the 2021 US HAEA Virtual Summit Series a gre...
07/19/2021

A HUGE thank you to everyone who attended and made the third installment of the 2021 US HAEA Virtual Summit Series a great success!

Log onto the 2021 US HAEA Virtual Summit Series platform to re-watch all of the available live and on-demand sessions including:
-Currently available HAE therapies and those on the horizon
-The FDA's perspective: What it takes for a new medicine to be approved.
-Youth Corner - Youth Leadership Council roundtable discussion.

✅ Access your unique link to the Virtual platform HERE:
https://www.haea.org/autoforms/f/147
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

A HUGE thank you to everyone who attended and made the third installment of the 2021 US HAEA Virtual Summit Series a great success!

Log onto the 2021 US HAEA Virtual Summit Series platform to re-watch all of the available live and on-demand sessions including:
-Currently available HAE therapies and those on the horizon
-The FDA's perspective: What it takes for a new medicine to be approved.
-Youth Corner - Youth Leadership Council roundtable discussion.

✅ Access your unique link to the Virtual platform HERE:
https://www.haea.org/autoforms/f/147
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

07/18/2021
2021 HAE IN-MOTION Virtual Challenge Winners - Week 4!

🎉 Congratulations to last week’s #HAEINMOTION weekly challenge winners!

You and your team still have the chance to win amazing prizes in our weekly team networking award, step award, and fundraising award!

Each week,
-the team which grows the most wins a fabulous prize,
-the participant with the most steps for the week will win a hydration pack, and,
-the participant who raises the most funds each week will win custom HAEA sunglasses!

Don’t forget to participate in this week’s photo challenge and post photos of your favorite trails! Be sure to use the hashtag #HAEINMOTIONtrails 👣

Register HERE and help us reach our goals of raising HAE awareness and completing 50,000 miles by July 31st: https://www.charityfootprints.com/HAEINMOTION2021
#HAEINMOTION #HAE #HereditaryAngioedema

❗ Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet ...
07/18/2021

❗ Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet and Greet for YOU! Join us this TUESDAY, July 20th, at 6:30 PM ET to connect with other people affected by HAE and their caregivers in your area. We look forward to seeing you there!

To attend this event, please register HERE:
https://fundraise.haea.org/event/july-haea-meet-and-greet/e319922
#HAE #HAEA #HereditaryAngioedema #MeetAndGreet

❗ Attention Hereditary Angioedema (HAE) patients and caregivers from ME, NH, VT, MA, RI, CT, the HAEA is hosting a Meet and Greet for YOU! Join us this TUESDAY, July 20th, at 6:30 PM ET to connect with other people affected by HAE and their caregivers in your area. We look forward to seeing you there!

To attend this event, please register HERE:
https://fundraise.haea.org/event/july-haea-meet-and-greet/e319922
#HAE #HAEA #HereditaryAngioedema #MeetAndGreet

👩‍⚕️ 📸 This year, our #PatientSpotlights feature HAEA friends who work in the healthcare field. Thank you to all the her...
07/17/2021

👩‍⚕️ 📸 This year, our #PatientSpotlights feature HAEA friends who work in the healthcare field. Thank you to all the heroes who help those with HAE on a daily basis!

Throughout the month of July, we are spotlighting Kissa. Kissa is a nurse who also has HAE. This week, Kissa shares how having access to medication has helped her:

“Having access to medication has made my life easier. I’m better able to plan vacations and attend work regularly.”

#HAEA #HAE #HereditaryAngioedema #Advocacy #HealthcareHeroes

👩‍⚕️ 📸 This year, our #PatientSpotlights feature HAEA friends who work in the healthcare field. Thank you to all the heroes who help those with HAE on a daily basis!

Throughout the month of July, we are spotlighting Kissa. Kissa is a nurse who also has HAE. This week, Kissa shares how having access to medication has helped her:

“Having access to medication has made my life easier. I’m better able to plan vacations and attend work regularly.”

#HAEA #HAE #HereditaryAngioedema #Advocacy #HealthcareHeroes

🏥 Clinical trials are an important step that is required to develop innovative HAE treatments for our community.Join us ...
07/16/2021

🏥 Clinical trials are an important step that is required to develop innovative HAE treatments for our community.

Join us and learn more about clinical studies on Thursday, July 29th at 7:00 PM ET/ 4:00 PM PT for the HAEA Treatment Education Series Webinar: How to Understand a Clinical Study: A Doctor and a Patient with HAE Help Break Down the Latest Data. Sponsored by Takeda, this webinar will feature Douglas Johnston, DO, and Sarah (Person with HAE).

Register for this virtual webinar HERE:
https://fb.me/e/TRBHhNuV
#HAE #HAEA #HAEAWebinar #VirtualWebinar

🏥 Clinical trials are an important step that is required to develop innovative HAE treatments for our community.

Join us and learn more about clinical studies on Thursday, July 29th at 7:00 PM ET/ 4:00 PM PT for the HAEA Treatment Education Series Webinar: How to Understand a Clinical Study: A Doctor and a Patient with HAE Help Break Down the Latest Data. Sponsored by Takeda, this webinar will feature Douglas Johnston, DO, and Sarah (Person with HAE).

Register for this virtual webinar HERE:
https://fb.me/e/TRBHhNuV
#HAE #HAEA #HAEAWebinar #VirtualWebinar

❓ In what city is the HAEA office located?The first person to comment the correct answer below will receive a voucher fo...
07/16/2021

❓ In what city is the HAEA office located?

The first person to comment the correct answer below will receive a voucher for the HAEA store! You must be registered for the 2021 US HAEA Virtual Summit Series to qualify!

To receive your unique access code for the 2021 US HAEA Virtual Summit Series events register here: https://www.haea.org/autoforms/f/147

#HAE #HAEA #2021HAEASummit
#VirtualSummit #NonProfit #SummitFacts

❓ In what city is the HAEA office located?

The first person to comment the correct answer below will receive a voucher for the HAEA store! You must be registered for the 2021 US HAEA Virtual Summit Series to qualify!

To receive your unique access code for the 2021 US HAEA Virtual Summit Series events register here: https://www.haea.org/autoforms/f/147

#HAE #HAEA #2021HAEASummit
#VirtualSummit #NonProfit #SummitFacts

⚕️ ❤️ Throughout 2021, the HAEA is recognizing dedicated HAEA Healthcare heroes that have made a lasting impact on the l...
07/15/2021

⚕️ ❤️ Throughout 2021, the HAEA is recognizing dedicated HAEA Healthcare heroes that have made a lasting impact on the lives of HAE community members.

Nominate your favorite physician, nurse, physician’s assistant, or other HAEA healthcare hero today! Recognized healthcare providers will receive a personalized award to thank them for their dedicated service to the HAE community!

Nominate your HAEA Healthcare Hero HERE: https://www.haea.org/autoforms/f/148

For more information, please contact HAE Advocate, John Williamson, at [email protected].

#HAEAHealthcareHeroes #HAE #HereditaryAngioedema #HAEA

⚕️ ❤️ Throughout 2021, the HAEA is recognizing dedicated HAEA Healthcare heroes that have made a lasting impact on the lives of HAE community members.

Nominate your favorite physician, nurse, physician’s assistant, or other HAEA healthcare hero today! Recognized healthcare providers will receive a personalized award to thank them for their dedicated service to the HAE community!

Nominate your HAEA Healthcare Hero HERE: https://www.haea.org/autoforms/f/148

For more information, please contact HAE Advocate, John Williamson, at [email protected].

#HAEAHealthcareHeroes #HAE #HereditaryAngioedema #HAEA

🎈 #TBT to the HAEA youth campaign #BeyondHAE! Our youth members loved sharing what it means to live life #BeyondHAE! Wha...
07/15/2021

🎈 #TBT to the HAEA youth campaign #BeyondHAE! Our youth members loved sharing what it means to live life #BeyondHAE!

What does living life #BeyondHAE mean to you?

#HAEA #HereditaryAngioedema #HAE #HAEAyouth #Advocacy

🎈 #TBT to the HAEA youth campaign #BeyondHAE! Our youth members loved sharing what it means to live life #BeyondHAE!

What does living life #BeyondHAE mean to you?

#HAEA #HereditaryAngioedema #HAE #HAEAyouth #Advocacy

✅ Don’t miss TONIGHTS’ exclusive 2021 US HAEA Virtual Summit Series event: Currently available HAE therapies and those o...
07/14/2021

✅ Don’t miss TONIGHTS’ exclusive 2021 US HAEA Virtual Summit Series event: Currently available HAE therapies and those on the horizon at 7:00 PM EST/4:00 PM PST!

Learn about the latest advances in HAE therapies and research and hear from knowledgeable HAE treating physicians as they answer your questions LIVE!

👉 Register TODAY and be entered to win your choice between a selection of speakers (Google Home Mini, Boose, Echo Dot), winner to be announced on July 14th! Also, you will have the chance to win a $500 Amazon Gift Card (winner to be announced on August 18th)!

Secure your spot HERE: https://www.haea.org/autoforms/f/147
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

✅ Don’t miss TONIGHTS’ exclusive 2021 US HAEA Virtual Summit Series event: Currently available HAE therapies and those on the horizon at 7:00 PM EST/4:00 PM PST!

Learn about the latest advances in HAE therapies and research and hear from knowledgeable HAE treating physicians as they answer your questions LIVE!

👉 Register TODAY and be entered to win your choice between a selection of speakers (Google Home Mini, Boose, Echo Dot), winner to be announced on July 14th! Also, you will have the chance to win a $500 Amazon Gift Card (winner to be announced on August 18th)!

Secure your spot HERE: https://www.haea.org/autoforms/f/147
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

07/14/2021
Health Team Tip of the Week - Physician Referrals

HAEA Health Team Tip of the Week!

Hereditary Angioedema (HAE) experienced physicians are key to getting an accurate diagnosis, and obtaining access to HAE therapy.

The HAEA Health team can provide referrals through its robust network of HAE knowledgeable physicians. Our referral service helps you locate a physician in your area.

For more information or assistance, please visit www.haea.org or contact an HAE Health Advocate at (866) 798-5598.
#HAE #HAEA #HereditaryAngioedema #HAETip #HealthTeamTip

🎉 Congratulations to Yarimar C. for scoring the highest points on the 2021 HAEA Virtual Summit leaderboard for the first...
07/14/2021

🎉 Congratulations to Yarimar C. for scoring the highest points on the 2021 HAEA Virtual Summit leaderboard for the first event on May 16th! She won a Kindle Fire!
Signing into the Summit Portal makes you eligible to win great prizes like a Bose Speaker, Google Home Mini, or Amazon Echo. The next winner will be announced during our live event on July 14th at 7:00 PM ET. Anyone who participates by earning points on the leaderboard will automatically be entered into a raffle for a $500 Amazon gift card! This promotion will last until the end of the Virtual Summit Series on August 18th.
➡️ Register or access your unique link to the Virtual platform at www.haea.org
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

🎉 Congratulations to Yarimar C. for scoring the highest points on the 2021 HAEA Virtual Summit leaderboard for the first event on May 16th! She won a Kindle Fire!
Signing into the Summit Portal makes you eligible to win great prizes like a Bose Speaker, Google Home Mini, or Amazon Echo. The next winner will be announced during our live event on July 14th at 7:00 PM ET. Anyone who participates by earning points on the leaderboard will automatically be entered into a raffle for a $500 Amazon gift card! This promotion will last until the end of the Virtual Summit Series on August 18th.
➡️ Register or access your unique link to the Virtual platform at www.haea.org
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

🏃‍♂️ 🏃‍♀️ New week, new challenge! The FIFTH 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Post a photo ...
07/13/2021

🏃‍♂️ 🏃‍♀️ New week, new challenge! The FIFTH 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Post a photo of your favorite trail!

Whether you are hiking, walking, or running, post a picture of your favorite trail! Use the hashtag #HAEINMOTIONtrails for your chance to win an HAEA merchandise prize! 📷

*Your photo must be posted by July 19th at midnight to be eligible!*

Forgot to post a photo? No problem! You and your team also have the chance to win prizes in our weekly team networking award, step award, and fundraising award!

Register today to participate in our challenges for your chance to win weekly and GRAND prizes! https://www.charityfootprints.com/HAEINMOTION2021
#HAEINMOTION #HAE #HereditaryAngioedema

🏃‍♂️ 🏃‍♀️ New week, new challenge! The FIFTH 2021 HAE IN-MOTION® weekly virtual photo challenge has begun! Post a photo of your favorite trail!

Whether you are hiking, walking, or running, post a picture of your favorite trail! Use the hashtag #HAEINMOTIONtrails for your chance to win an HAEA merchandise prize! 📷

*Your photo must be posted by July 19th at midnight to be eligible!*

Forgot to post a photo? No problem! You and your team also have the chance to win prizes in our weekly team networking award, step award, and fundraising award!

Register today to participate in our challenges for your chance to win weekly and GRAND prizes! https://www.charityfootprints.com/HAEINMOTION2021
#HAEINMOTION #HAE #HereditaryAngioedema

📣 Take Action for HAE by registering for a very special #ChronicDiseaseDay Livestream event TODAY at 1:00 PM ET, where i...
07/13/2021

📣 Take Action for HAE by registering for a very special #ChronicDiseaseDay Livestream event TODAY at 1:00 PM ET, where issues that impact the chronic and rare disease communities will be discussed!

You can register today here: https://chronicdiseaseday.org/events/july-webinar/

@gooddays #chronicdisaseday #HereditaryAngioedema #HAE #HAEA

📣 Take Action for HAE by registering for a very special #ChronicDiseaseDay Livestream event TODAY at 1:00 PM ET, where issues that impact the chronic and rare disease communities will be discussed!

You can register today here: https://chronicdiseaseday.org/events/july-webinar/

@gooddays #chronicdisaseday #HereditaryAngioedema #HAE #HAEA

⌛ The third installment of the 2021 US HAEA Virtual Summit Series is just TWO DAYS AWAY! Tune in Wednesday, July 14 at 7...
07/12/2021

⌛ The third installment of the 2021 US HAEA Virtual Summit Series is just TWO DAYS AWAY!

Tune in Wednesday, July 14 at 7:00 PM EST/ 4:00 PM PST for the live session- Currently available HAE therapies and those on the horizon. Learn about the latest advances in HAE therapies and research, and ask HAE knowledgeable physicians your most pressing questions!

✅ In the meantime, you can view the second 2021 US HAEA Virtual Summit Series programs by streaming on-demand NOW on the summit platform!

Register TODAY and be entered to win your choice between a selection of speakers (Google Home Mini, Boose, Echo Dot), winner to be announced during the July 14th live session! Also, you will have the chance to win a $500 Amazon Gift Card (winner to be announced on August 18th)!

Access your unique link to the Virtual platform at www.haea.org!
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

⌛ The third installment of the 2021 US HAEA Virtual Summit Series is just TWO DAYS AWAY!

Tune in Wednesday, July 14 at 7:00 PM EST/ 4:00 PM PST for the live session- Currently available HAE therapies and those on the horizon. Learn about the latest advances in HAE therapies and research, and ask HAE knowledgeable physicians your most pressing questions!

✅ In the meantime, you can view the second 2021 US HAEA Virtual Summit Series programs by streaming on-demand NOW on the summit platform!

Register TODAY and be entered to win your choice between a selection of speakers (Google Home Mini, Boose, Echo Dot), winner to be announced during the July 14th live session! Also, you will have the chance to win a $500 Amazon Gift Card (winner to be announced on August 18th)!

Access your unique link to the Virtual platform at www.haea.org!
#HAE #HAEA #2021HAEASummit #VirtualSummit #NonProfit

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