International Myeloma Foundation

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International Myeloma Foundation Let’s face multiple myeloma together. We’re here with support, resources, and community.

About the International Myeloma Foundation

Founded in 1990, the International Myeloma Foundation (IMF) is the world’s leading organization dedicated to multiple myeloma. The IMF is steadfast in its mission: improving the quality of life of myeloma patients while working toward prevention and a cure. The IMF serves people impacted by myeloma at every stage of the disease by combining world-class research, trusted education, global advocacy, and direct support. A cornerstone of this work is the International Myeloma Working Group® (IMWG)—a network of more than 300 internationally renowned researchers and clinicians who establish the guidelines that shape how myeloma is diagnosed, treated, and managed across the globe. Through its global network of support groups, educational programs, its 24/7 generative-AI myeloma assistant Myelo®, its InfoLine staff, and its advocacy for greater healthcare access, the IMF helps people living with myeloma and their care partners navigate diagnosis, treatment, and survivorship. At the same time, the IMF ensures scientific advances translate into better care and outcomes. The IMF is driven by its vision: A world where every myeloma patient can live life to the fullest, unburdened by the disease. Learn more at www.myeloma.org or contact the IMF InfoLine at (800) 452-CURE (2873) (U.S. & Canada), +1 (818) 487-7455 (worldwide), or [email protected].

10/31/2026

If you stop Revlimid maintenance and your numbers rise, can you go back on it before it becomes a full relapse? IMF NLB member Sam Shenoy breaks down what it depends on in this short clip.

“The future of myeloma depends on our ability to bring scientific innovation to patients more quickly and more equitably...
10/29/2026

“The future of myeloma depends on our ability to bring scientific innovation to patients more quickly and more equitably.”

That is how Dr. S. Vincent Rajkumar, Chairperson of the International Myeloma Foundation, describes the vision behind the new US Myeloma Network, or USMN.

For people living with myeloma, that vision comes down to this:

Better treatments, faster.

And more opportunities for more people to take part in the research that makes these treatments possible.

Clinical trials take a long time to open, and many studies are concentrated at major cancer centers. That can slow research and make it harder for people to learn about or participate in studies.

USMN is designed to change that.

The goal is to help better treatments reach people faster while moving myeloma research closer to prevention and cure.

This new national clinical research network will connect leading myeloma centers, community oncology practices, researchers, and industry partners. USMN will help studies open faster, expand participation, and move promising treatments toward patients sooner.

Dr. Rajkumar sees the network as an opportunity to bring researchers across the country together around that shared goal.

“The US Myeloma Network creates an unprecedented opportunity to unite investigators across the country,” he said, with the aim of accelerating clinical trials, expanding patient participation, and advancing research toward the prevention and cure of myeloma.

Why this matters

Faster research can mean getting answers sooner about which treatments work and who may benefit from them. Broader participation can also help make sure future myeloma care reflects the needs of the people it is meant to serve.

USMN will support research across all stages of myeloma, from prevention and early intervention through relapsed and refractory disease.

Learn more: https://mmsm.link/3VPQzsL

A new bill could help catch myeloma sooner.Congresswoman Nanette Barragán has introduced the CARE for Blood Cancer Act, ...
10/27/2026

A new bill could help catch myeloma sooner.

Congresswoman Nanette Barragán has introduced the CARE for Blood Cancer Act, and the International Myeloma Foundation (IMF) is proud to support it. It would create a National Blood Cancer Program to teach the public about warning signs, train healthcare workers, and fund blood cancer research. The bill is bipartisan, meaning it has support from both Democrats and Republicans.

Right now, there is no routine test that can catch every blood cancer. Signs like bone pain or feeling tired all the time are easy to miss or blame on something else. For many people living with myeloma, that can mean a long wait to get the right diagnosis.

This bill aims to change that.

The program would bring the country's top health agencies together to:
• Teach the public the warning signs of blood cancer
• Train doctors, nurses, and other health workers to spot blood cancers sooner
• Fund research on better ways to find and treat blood cancers
• Close gaps in care for communities hit hardest by blood cancer

The bill was just introduced. That is the first step. Congress still needs to pass it before it can become law.

Why this matters:
When myeloma is found early, people can start treatment sooner. That often means starting before serious problems like bone damage or kidney trouble set in. This bill would help more people get the right diagnosis at the right time, no matter where they live. This is hopeful news for everyone touched by blood cancer.

For Congresswoman Barragán, this work is personal. Her sister is living with multiple myeloma.

"Far too many people living with multiple myeloma and other blood cancers face unnecessary delays in diagnosis and barriers to accessing the care they need," said Heather Cooper Ortner, President and CEO of the IMF.

The IMF has worked closely with Congresswoman Barragán's office for several years to help shape this bill. IMF Medical Advisor Dr. Joseph Mikhael shared his expertise along the way. Our focus: shorter waits for a diagnosis, fair access to care for everyone, and helping doctors spot myeloma sooner.

Learn more: https://www.myeloma.org/node/13075

At the International Myeloma Foundation, we are committed to helping people living with myeloma and their families understand news like this and what it may mean for their care. Call us. We're here for you. The IMF's InfoLine is available to answer your myeloma-related questions and concerns. Call 1-818-487-7455 or email [email protected].

10/27/2026

Can bispecific therapies increase the risk of serious lung infections like pneumonia or bronchiectasis? IMF NLB member Sam Shenoy explains the risk and how to help prevent it.

10/26/2026

Who is this new CELMoD for? Learn more about Zenbexus, the first CELMoD approved for multiple myeloma treatment.

10/25/2026

A new treatment option is here. But what are the side effects? Learn more about Zenbexus, the first CELMoD approved for multiple myeloma treatment.

10/24/2026

Breakthroughs are no accident. Myeloma research relies on the myeloma community and their participation in clinical trials. Find a clinical trial near you at myeloma.org/sparkcures

10/23/2026

What questions should patients ask their doctors about CELMoDs? IMF Medical Advisor Dr. Joseph Mikhael walks you through it in this short clip.

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