World Hormone Day

21/10/2026

21/10/2026

As we are approaching World Iodine Deficiency Prevention Day, we want to highlight that iodine deficiency is still a public health problem and draw attention to the key role of iodine for health.

Iodine is a trace mineral the thyroid gland needs to produce thyroxine (T4) and triiodothyronine (T3), hormones that regulate metabolism and are essential for normal brain and nervous system development, particularly during pregnancy and early childhood.

Even mild iodine deficiency during these windows can measurably reduce a child's learning potential, which is why the day carries such public health weight despite iodine being such a small part of the diet.

Changing dietary and lifestyle patterns, lower salt intake for cardiovascular reasons, a shift toward non-iodised gourmet or rock salts, and reduced cow's milk, dairy, and fish consumption have been linked to a re-emerging iodine deficiency.

Iodine is essential for thyroid function, brain development of the baby, cognitive function, and growth.

Iodine is essential before and during pregnancy and lactation to support healthy brain development from conception through the first 1,000 days of life.

Thyroid Federation International works along with partners to implement these insights through the EUthyroid2 project, Iodine Coalition Europe, MotherBabyIodine, and the ThyroMobile screening initiative.

21/10/2026

On World Iodine Deficiency Prevention Day, we want to highlight the importance of preventing iodine deficiency and ensuring adequate intake, particularly during pregnancy and childhood.

🔵 Findings from the first EUthyroid consortium estimate that up to 50% of newborns in Europe may be at risk of deficiency due to insufficient iodine intake. This is particularly concerning given iodine’s essential role in producing thyroid hormones that support fetal brain development, cognitive function, and normal growth.

🔵 Through implementation studies and randomized controlled trials in educational and healthcare settings across eight European regions, the EUthyroid2 public health research project aims to establish effective strategies for improving iodine nutrition.

🔵 Building on this work, Iodine Coalition Europe was co-founded by EUthyroid2, to bring stakeholders together around a shared objective: addressing iodine deficiency and promoting adequate iodine nutrition for all Europeans.

🔵 Thyroid Federation International works along with partners at EUthyroid2 and Iodine Coalition Europe to advance this objective through continued awareness-raising and collaborative action.

How can we ensure adequate iodine intake?

❗ Diet is an important part of prevention. Good sources of iodine include iodised salt, cow’s milk, dairy, fish, eggs, and iodine-fortified plant-based dairy products (always check the label).

Remember:

❗ Iodine is essential for thyroid function, brain development in the baby, cognitive function, and growth.

❗ Iodised salt is the simplest method to ensure adequate daily iodine intake.

because iodine’s essential for

08/10/2026

MORE THAN YOU SEE | LENNON

Some stories don't need spoken words.

Lennon is a true bookworm at heart.

His mom shared that while he may not use spoken words, his world is overflowing with stories, imagination and wonder. He loves cozying up for storytime and sharing his favorite books with the people around him.

And she offered a beautiful reminder about getting to know Lennon:

“If you pay close attention, he'll tell you the most extraordinary tales,you just have to listen with your heart instead of your ears.”

Communication can look different.

So can storytelling.

Sometimes seeing more begins with learning to listen differently.

Every share, conversation and donation helps us continue our mission and bring greater awareness to MCT8 Deficiency.

💙 Donate: https://www.mct8.info/donate/
💙 Meet our families: mct8.info/families
💙 PayPal: [email protected]
💙 Walmart Spark Good: Select MCT8-AHDS Foundation

08/10/2026

24/08/2026

🧬 "It's Not You, It's the Variant."

Genetic results can change over time — and that can be confusing and unsettling. Join Dr. Samantha Greenberg and Alexa Badalamenti from UT Southwestern's PPGL Clinical Center of Excellence on Thursday, August 27th at 9:30 am PST/12:30 pm ET to unpack why reclassification happens and what it means for you and your care team.

Hosted by the Pheo Para Alliance and proudly sponsored by Curirum. Save your spot — register with the following link: https://pheopara.org/2026/08/2026-awareness-week-event-its-not-you-its-the-variant-when-genetic-results-get-reclassified.

24/08/2026

PHAEO PARA AWARENESS WEEK - 24-28 AUGUST

Today marks the start of the 2026 Phaeo Para Awareness Week and to kick off, we wanted to share the inspiring story of Hannah who has the hereditary paraganglioma syndrome, SDHC.

Hannah is a firefighter in the Northeast of the UK. Her Christmas present in 2022 was to find a lump in her neck. Read about how Hannah reacted to her diagnosis and later, her radiotherapy treatment.

We think she's completely inspiring!

Find this and other patient stories on our dedicated Phaeo Para website:

📲 https://phaeoparasupport.org.uk/patients/patient-experience-stories/

03/08/2026

The 7th Pheo Para Awareness Week will take place from 24-28 August 2026.

A key part of the Week's events will be the Pheo Para Alliance (PPA) Educational Webinar:
"It’s Not You, It’s the Variant: When Genetic Results Get Reclassified"
When: 18:30-20:00 27 August, 2026
Where: Online via Zoom

What to expect
As scientific research advances and more individuals undergo testing, new data may lead to reclassification of previously reported genetic variants—including variants of uncertain significance (VUS).

Speakers will explain why genetic classifications evolve, what reclassification means for patients and families, and how healthcare teams can support clear communication and appropriate follow-up. The discussion will focus on reducing uncertainty, strengthening patient-provider communication, and supporting informed decision-making as genetic knowledge continues to grow.

Register now 👉 https://pheopara.org/2026/08/2026-awareness-week-event-its-not-you-its-the-variant-when-genetic-results-get-reclassified
Find out more 👉 https://pheopara.org/

24/07/2026

July is Parathyroid Disease Awareness Month 💚

ESE is proud to partner with several Patient Advocacy Groups supporting people affected by parathyroid conditions. Together, we are helping to raise awareness, amplify patient voices and improve understanding of these often overlooked disorders

Learn more and access patient resources 👉 https://www.ese-hormones.org/membership/organisational-memberships/patient-advocacy-group-affiliate-members/calcium-and-bone-pag-community/

24/07/2026

Understanding disability burnout in Osteogenesis Imperfecta 🤯
Living with (OI) comes with unique challenges, some visible, some not. One of those challenges is disability burnout, a real and often overlooked experience.

What is Disability burnout?
In this interview, Raul Krauthausen from Germany 🇩🇪 explains the exhaustion that comes from constantly adapting to a world that isn’t always built for accessibility or inclusion. For people with OI, it might mean pushing through pain, advocating for accommodations, or managing daily tasks differently. It isn’t just about physical tiredness, it’s emotional, mental, and sometimes even social. Recognizing it is the first step towards self-care and support.

Why it matters during Disability Pride month?
Disability Pride Month is about celebrating identity, not just resilience. Burnout is a real part of many disabled lives, including those with OI. This article helps us recognize it, talk about it, and support each other.

🔗Read the full article on our website: https://oife.org/2023/08/27/oi-disability-burn-out/