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Monday 9:30am - 5:30pm Tuesday 9:30am - 5:30pm Wednesday 9:30am - 5:30pm Thursday 9:30am - 5:30pm Friday 9:30am - 5:30pm

Haemophilia Scotland

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Haemophilia Scotland

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A Scottish charity (No. SC044298) for people who have haemophilia, von Willebrands, other bleeding disorders.

Please note that Haemophliia Scotland is not affiliated with The Haemophilia Society UK in any way. Our governance is based solely in Scotland to serve the needs of our community.

29/10/2026

🎬 Bad Blood is coming to ITV.

Last month the upcoming series Bad Blood was announced. The new drama will shine a light on the infected blood scandal and the devastating impact contaminated Factor VIII treatments had on people living with bleeding disorders.

For Haemophilia Scotland, bringing this story to a mainstream audience is an important opportunity to raise awareness of an injustice that has had a lasting impact on individuals, families and communities across Scotland.

We hope the series encourages more people to understand what happened, remember those who lost their lives, and recognise the experiences of those who continue to live with the consequences today.

26/10/2026

Aberdeen, we’re coming your way 👋

There’s still time to sign up for our Aberdeen Local Meet-Up this November!

Join us for a relaxed, friendly get-together bringing together people living with bleeding disorders, alongside parents, siblings, partners and supporters.

It’s a great opportunity to meet others who understand your experiences, share stories, ask questions and build connections within the bleeding disorders community.

📅 Saturday 7 November 2026
⏰ 10:30am–2:30pm
📍 Aberdeen Science Centre

🎟️ The event is free to attend, but please register in advance via the events section of our website.

🔗 Sign up at www.haemophilia.scot/events

We’d love to see you there ♥️

24/10/2026

Maxie, Ruth and Carolyn attended the conference today where we held a stall to raise awareness of heavy menstrual bleeding and women's bleeding disorders. It was a truly inspiring day showing young women how to hold their space and have their voices heard.

22/10/2026

From being dismissed to being diagnosed.

Last month charity member Paige Brodie shared her story with national and regional publications to raise awareness of women with bleeding disordered and share her experience of her own diagnosis with Type 1 Von Willebrand Disease.

Her story featured in the Daily Record, Evening Express, Press and Journal, Sunday Post and Aberdeen Live to name a few, and reached up to 60 million people.

The coverage has helped shine a light on the reality of living with an undiagnosed bleeding disorder, and the importance of recognising symptoms, listening to women’s experiences and encouraging people to seek answers when something doesn’t feel right.

A huge thank you to Paige for sharing her story and helping us raise awareness through our A Spotlight on Young Women Living with Bleeding Disorders campaign.

Want to find out more about Paige's story? Head to our website 👇

https://haemophilia.scot/from-being-dismissed-to-being-diagnosed-paiges-story/

20/10/2026

Final chance to RSVP ⏰

There’s still time to join us for A Chance to Connect, a free, informal get-together for anyone affected by infected blood.

Hosted by Haemophilia Scotland and The Haemophilia Society, it’s an opportunity to catch up with familiar faces, meet others with shared experiences and connect with the wider community in a welcoming, relaxed space.

📅 Friday 30 October | 11am–2pm
📍 The Broughton Suite, The Place Hotel, 34–38 York Place, Edinburgh, EH1 3HU

Please register by 21 October so we can confirm catering numbers.

👇 RSVP via the link below:
https://www.eventbrite.co.uk/e/a-chance-to-connect-tickets-2003206770375

14/10/2026

💙 A Chance to Connect - Edinburgh

Living with the impact of infected blood can feel isolating, but no one should have to navigate it alone.

Join Haemophilia Scotland and The Haemophilia Society UK for A Chance to Connect - a free and informal get-together for anyone affected by infected blood to catch up with familiar faces, meet others with shared experiences and connect with the wider community.

📍 Where: The Broughton Suite, The Place Hotel, 34–38 York Place, Edinburgh, EH1 3HU

📅 When: Friday October 30th, 11 am - 2 pm

Enjoy some refreshments, have a chat with our teams, or simply spend time with others in a welcoming space. There’s no expectation to share your story, you’re welcome to take part in whatever way feels comfortable for you.

Our teams will also be available to chat about ongoing advocacy, community outreach and how we can continue to support those affected.

📅 Please register by October 21st so we can confirm catering numbers.

We look forward to welcoming you and creating space for connection, conversation and support. 💙

Register via the link below 👇

https://www.eventbrite.co.uk/e/a-chance-to-connect-tickets-2003206770375

12/10/2026

🎓 Settling into a new city?

As you settle into a new city, register with a local GP. It might not be at the top of your Freshers’ to-do list, but having a GP who knows your medical history can make a big difference if you become unwell or notice changes in your health.

For young women living with a bleeding disorder, having the right information and support in place is particularly important.

As Paige, a Haemophilia Scotland member living with Type 1 Von Willebrand Disorder, explains:

“Registering with a GP might seem like a small thing when you arrive at university, but it can make such a huge difference. Having a local GP means there is someone who knows your medical history, can monitor changes in your health and investigate symptoms when something doesn’t feel right. For someone living with a bleeding disorder, having the right medical information and support in place can be particularly important.”

Wondering what else you should be doing when you arrive on campus, keep an eye out for our following posts 👀

05/10/2026

A look back at our 2026 AGM 💙

On Saturday 29 August, members of the Haemophilia Scotland community came together at The Studio in Glasgow for a day of connection, conversation and reflection.

The day included updates on our work, plans for the year ahead and opportunities to hear from others across the bleeding disorders community.

🎤 We also heard from Dr Susan McNeill regarding new and emerging treatments in haemophilia, and from physiotherapist, Sean Lloyd, who spoke about our "Join the Movement" virtual physiotherapy programme.

It was fantastic to bring our community together, share experiences and look ahead to another year of supporting people and families affected by bleeding disorders across Scotland.

A huge thank you to everyone who joined us and helped make the day such a special one 🫶

02/10/2026

What gaps still exist in awareness and support for people living with bleeding disorders?

In this video, Alan Martin, Director of Haemophilia Scotland, discusses why women are often diagnosed much later in life and how many may still be living with an undiagnosed bleeding disorder.

🎥 Watch below to hear more about the importance of recognising symptoms, improving awareness and ensuring women get the support they need.

30/09/2026

Our Financial Wellbeing Officer, Maxie, and Trustee, Carolyn, are at the Feisty Gals: Deep Roots, Fierce Futures conference in Stirling today, gathering with brilliant women-led organisations who are shaping bold, sustainable futures across Scotland. 🌿🔥

We’re proud to be part of this fierce, joyful community, and grateful to the Women's Fund for Scotland for backing the work we do with women and girls.

Address

The Eric Liddell Centre, 15 Morningside Road
Edinburgh
EH104DP

Opening Hours

Monday	9:30am - 5:30pm
Tuesday	9:30am - 5:30pm
Wednesday	9:30am - 5:30pm
Thursday	9:30am - 5:30pm
Friday	9:30am - 5:30pm

Telephone

+448458744004

Website

http://www.haemophilia.scot/

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