Kaden's Fight Against SAMD 9L Syndrome

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Kaden's Fight Against SAMD 9L Syndrome

Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Kaden's Fight Against SAMD 9L Syndrome, Medical and health, 262 Danny Thomas Place, Memphis, TN.

Welcome to Kaden's page where we will keep family & friends up to date on the latest information regarding his fight, bring awareness to these rare life-threatening diseases, and help generate support for him to win his fight!

11/01/2026

Hope everyone had a Happy Halloween….🎃

10/25/2026

I recently celebrated my 8th birthday! 🥳

I haven’t had a lot of updates lately, as the saying goes “No news is good news!”. During the summer my doctor at St. Jude Children’s Research Hospital told my mommy and daddy that he found a boy in the Czech Republic who is the same age as I am and who was also experiencing Somatic Genetic Rescue (SGR) but that his bone marrow failed again and he had to go ahead with chemotherapy and a bone marrow transplant. My doctor then explained that he was going to be observing me for the next two to three years before he could declare I am free of any bone marrow failure syndromes.

09/17/2026

09/17/2026

Cook Children's is proud to announce that five of our specialty programs earned national recognition on the 2026-27 U.S. News & World Report Best Children's Hospitals list.

The recognition includes the 19th consecutive year that Cook Children's Neurology & Neurosurgery program has been nationally ranked. Notably, the program has appeared in the rankings every year since U.S. News and World Report introduced pediatric specialty rankings in 2008, reflecting nearly two decades of consistent excellence in caring for children and families.

Cook Children's was recognized in the following specialties:
• Behavioral Health (Top 50)
• Cancer (No. 41)
• Cardiology & Heart Surgery (No. 47)
• Diabetes & Endocrinology (No. 36)
• Neurology & Neurosurgery (No. 44)

Read more here: https://shorturl.at/CLtdT

09/05/2026

St. Jude has helped push the overall childhood cancer survival rate in the U.S. from 20% in 1962 to more than 80% today. We won't stop until no child dies from cancer.

Join us this September for Childhood Cancer Awareness Month.

08/14/2026

My recent checkup with my local hematologist-oncologist went pretty well even though my platelets had gone down by half since my last CBC. But all my other cell counts were in the normal range! I’m excited to begin the 2nd Grade and see what this new school year has in store for me!

08/10/2026

Cook Children’s sibling support efforts offer specialized care for brothers and sisters of patients.

08/01/2026

Every child with blood cancer deserves a treatment built for their body, not borrowed from an adult's.

Imagine a future where "safer" and "less toxic" aren't hopes, but the standard. Where no parent has to watch their child endure treatments made for someone else.

That future starts with research designed specifically for kids, from the ground up.

Because childhood should be about dreams, not diagnoses.

Find support through the Dare to Dream Project. ⬇️
https://bcutd.org/4bqOAzT

06/29/2026

Do patients with Aplastic Anemia, MDS, or PNH experience severe fatigue?

"Now there is fatigue that is related to therapy that comes with the diagnosis for bone marrow failures, and 80 to 100% of people living with bone marrow failures, experience this type of fatigue, and it's one of the most common side effects of treatment for those who are receiving treatment for their diagnosis," says Christina Cline, RN.

She explains how to manage this fatigue that interferes with daily life in this podcast episode: https://www.aamds.org/podcast/dealing-fatigue-christina-cline-rn

06/21/2026

Happy Father’s Day to all the daddies!

Address

262 Danny Thomas Place
Memphis, TN
38105

Website

https://www.supportnow.org/the-freeman-family

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